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Bring someone with you

User
Posted 17 Aug 2024 at 14:02

Si I had my biopsy, which wasn't as bad as some had suffered. Also a bone scan. No side effects at all. Got a call from hospital saying to bring someone with me to result appointment. Is this normal. Also, if they say I need radiation, will I still be able to work. I work from home. Thanks.

User
Posted 17 Aug 2024 at 19:56

At the results appointment, I was told I had cancer. My wife came with me and took the notes about staging and next steps. Because I was reeling. 

One year after surgery, I had salvage radiotherapy. I took a month off work during that period, and was glad I did towards the end when fatigue kicked in. But I probably could have worked for at least part of that time.

User
Posted 17 Aug 2024 at 20:18

I went to my diagnosis appointment on my own, I was convinced it was going to be negative. I knew nothing about prostate cancer and two work mates had raised PSAs but no cancer.

I remember the first sentence and the last sentence of the meeting. I did immediately have a meeting with the urology cancer nurse,she bombarded with lots of info and lots of literature. 

So yes take someone with you and take a notebook, some consultants will allow you to record the consultation. 

Thanks Chris 

User
Posted 17 Aug 2024 at 20:49

Steve, like you, I had already been told it was probably cancer but it still hits you like a train which makes it difficult to take in everything that is being said. My diagnosis was during Covid so I wasn't allowed to bring anyone with me. All the questions I felt I should have asked didn't materialise until afterwards. So having someone with you is not only a source of pastoral support but a second pair of ears. I was given a copy of the Prostrate Cancer UK publication "A guide to men who've just been diagnosed" The urologist filled in some diagnosis notes which proved helpful. It might be worth downloading a copy before your appointment as it may well prompt some questions you can raise at the appointment.

As for radiotherapy, the main interruption to work is the daily journeys to the hospital and back. I was retired at the time but the mild fatigue would not have prevented me from working from home. 

User
Posted 18 Aug 2024 at 12:28

I would definitely take someone with you if you can, it really helps. Write down any questions you have, as in the stress of t(e moment you may well forget to ask something. Also ask if you can record the meeting. a I did this once and it really helped afterwards to listen to it.

Good luck!

Derek

 
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