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RT and bladder control type questions

User
Posted 23 Aug 2024 at 21:10

Hi all

First time poster.

I'm scheduled to start RT in October and I'm quite anxious about it. Not the RT itself, but bladder control. 

I've been doing my pelvic floor exercises, but I feel like I'm going backwards at the moment. I think it's in my mind rather than physical but once I need to go it's become an almost impossible battle. And if I do mange to hold it in it's only by distracting myself and moving about -  as in not staying still which is, I believe, what they want.

What if I can't hold it in when being treated? Aside from the shame and embarrassment will they withdraw the treatment? As my cancer is in my lymph nodes as well prostate I don't have many options outside of RT.

Does anyone have any tips or tricks to help me feel like I'm regaining control? Is this bladder control anxiousness normal?

Thanks for reading (and hopefully answering!)

PP

User
Posted 23 Aug 2024 at 22:05

Empty your bladder , drink 500ml of water and hang onto it for 40 minutes and this will replicate usually what you need to do at each RT session. 

My centre had a bottle in the treatment room in case you couldn't hold it any longer and the staff are not fazed by accidents .I recall before my treatment holding on to a pint of water for 2 hours just to see what I could do .

Machine breakdown or backlogs can happen at the treatment centre and I had to tap a drop off sometimes,  this is worth practicing too .

You will be fine try not to overthink it.

Best wishes  , Mike. 

 

 

User
Posted 23 Aug 2024 at 22:10

Hi PP

I can't comment on RT as I had surgery, but I'm pretty sure they wouldn't stop your treatment, and must be pretty used to treating blokes with bladder issues. I have significant incontinence issues after my recent RARP, and was worried about leaving the house for the first couple of weeks, until I realised that actually the Tena pads are really pretty good and reliable. They hold a lot! It might be worth considering getting some if you haven't already, and wearing them as a safety net?  

Good luck with your treatment, and keep us posted mate.

Ian.

User
Posted 23 Aug 2024 at 23:13

I was told I could take a urine bottle into the treatment room and use it if really needed. In my hospital I kept my joggers and underwear on,they just pulled the waistband down a little without exposing my bits. So I had a tena pad in my underwear, a controlled leak will be absorbed, a sudden full gush may be more of an issue. 

Although things may change during treatment, you could practice drinking water and holding it for a set period. Keep hydrated during the treatment days. By practicing you will also find out how long it takes to refill your bladder. 

To see how effective my pads were I put a pad in my underwear and stood in the shower to see how well the urine was absorbed. If I could slow the flow, I could get to the bottle or loo in time ,if I just let the whole bladder go at once the pad didn't contain everything. You could experiment with bigger pads. 

Having said all that, the RT staff have seen it all before.

Hope all goes well.

Thanks Chris 

User
Posted 24 Aug 2024 at 07:23
PP

I completed 20 fractions of RT nearly 5 weeks ago. My hospital treated with a certain volume in the bladder. About 40 minutes prior to treatment I was told to empty my bladder and then drink three paper cups of water quickly. On going into treatment they did an ultrasound to check the volume in my bladder. I reached an agreement with the radiotherapy staff that I could release a little if my bladder volume was at the top end of the limits. The pelvic floor exercises help

.

There were times when I thought I wouldn’t be able to hold it in but it’s surprising how you cope. Don’t worry and speak with the staff - they know it’s not easy and will do everything possible to make the process bearable.

I would advise you know where there are toilets on your route home - even though my journey was only 30 minutes there were occasions when I needed to stop.

User
Posted 24 Aug 2024 at 08:52

Originally Posted by: Online Community Member
PP

I would advise you know where there are toilets on your route home - even though my journey was only 30 minutes there were occasions when I needed to stop.

Good advice from Probbo, also find out where the nearest toilet is to the treatment room and also a backup location in case that one is occupied.

Thanks Chris 

User
Posted 24 Aug 2024 at 10:17
Empty milk carton in car boot was reassuring too , never had to use it but happy it was there .
User
Posted 01 Sep 2024 at 19:42

Sorry for delay in replying. Been a busy old time. And thanks so much for the replies and suggestions - it's really appreciated.

For the record I have been practicing drinking a pint of water and holding as instructed by prostate team. Sometimes I'm fine and others I'm not, but either way I'll continue.

In terms of completely emptying my bladder that's not something I can do; I seem to have a never ending stockpile of urine these days but I do my best.

Since I wrote my question I've come to the conclusion I need to try and strop worrying; what will be will be and all that. Early results seem to suggest if nothing else it's helping with the sleep a little bit.

Thanks again.

PP

User
Posted 01 Sep 2024 at 21:25

Hi PP….how appropriate🤣🤣

Yes, the best thing you can do is stop worrying😊 if the staff are anything like mine were, you have NOTHING to worry about. They’ve seen it ALL before and will guide and support you through the whole process. I was really struggling one day during the treatment, I shouted out that I was struggling, they told me not to worry if I had an accident and counted me down to the end of treatment, They were standing ready with a bottle when the machine stopped whirring, even before they lowered the table. it was quite funny actually!

You’ll soon get into a routine and might actually quite enjoy the daily chat with the staff and others in the waiting room. One tip I found VERY useful is to keep your mind off needing to pee whilst in the waiting room. I wrote a poem about my experience and played solitaire on my phone when I wasn’t chatting to other patients. Always good to have a change of trouser and underwear in case you do have an accident. I wore shorts or jogging bottoms which are really easy to pull down if you need to dash to the look after a session.

If you’ve got a car journey home, buy yourself a pee bottle from Amazon and keep it in the car along with a towel(to hide yourself!) and some wipes should you need to go before you reach home and can’t find a toilet. It’s worth finding out where toilet stops could be on he way home. get yourself a MacMillan Toilet Card for Cancer patients…if you show it you should be able to use any toilets.

Good Luck,

Derek

User
Posted 02 Sep 2024 at 08:15

Another suggestion - wear disposable pants such as Tena Mens. Then it doesn't matter much if you leak. I wore these from about half way through the radiotherapy.

Edited by member 02 Sep 2024 at 08:16  | Reason: Not specified

User
Posted 02 Sep 2024 at 13:47

Is it worth hanging around for a while in the hospital before starting the journey home? I will be starting RT in about a month. 

Edited by member 02 Sep 2024 at 13:47  | Reason: Not specified

User
Posted 02 Sep 2024 at 15:22

Originally Posted by: Online Community Member
Is it worth hanging around for a while in the hospital before starting the journey home?

Yes, I waited for at least 30 mins, by which time I'd had two pees. The WiFi was good enough to work there too, and the Macmillan centre sometimes had a spare counseling room which I'd use for work Zooms.

You may find several of the RT patients going through at the same time as you are happy to hang around for a chat and mutual support. I remained in touch with a couple of them for about 2 years afterwards. One hospital had space problems in the waiting room because patients tended to go back afterwards to continue chatting.

User
Posted 02 Sep 2024 at 15:40

Thanks Andy. Looking forward to my new social life. All that and cheap parking! 

Peter

 

 
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