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Tb3 prostate cancer

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User
Posted 30 Aug 2024 at 08:07

Hi everyone 

my dad has recently been diagnosed with TB3 prostate cancer Gleason score 9 psa was 11.2 what a shock it was feeling very low at times when my mind isn’t being positive he started on hormone tablets yesterday and will have hormone injection next Friday we are waiting ct scan results! But bone  scan 4 weeks ago was clear I’m so scared I’m going to lose him very soon 

User
Posted 31 Aug 2024 at 07:13

Hi Terriex,

I was T3b like your dad but with PSA 36 when diagnosed. I was terrified at the time, but just over 2 years down the line since treatment started I am now undetectable and finished treatment. So, there is plenty of Hope, try and stay strong for your dad, he is so lucky to have a daughter like you to look after him๐Ÿ˜Š

Mine had just broken though to the Seminal Vesicles (like your dad perhaps) so surgery was rule out. I went down the HT/RT route. The RT was a doddle, the HT for me has not been good as I had every side effect going๐Ÿ˜ฉ, but some people seem to get off lightly and I have no idea why. As Andy says I suspect surgery will be ruled out, but both treatments are likely to have similar CURATIVE outcomes.

As everyone will tell you, the waiting around for tests and results is by far the worst part of this journey, just try and keep you and your dad as busy and active as possible to stop your minds from wandering. I would avoid Dr Google…there is so much knowledge on this site as well as the Specialist nurses who you can phone anytime.

Do as many nice things with your dad as possible during the waiting just to show you both that life goes on, give him some treats(not forgetting yourself of course!) . I have found this really helps keep my mood better.

I wish you BOTH all the best on your journey.

Derek

User
Posted 30 Aug 2024 at 17:26

Hi Terriex,

I was diagnosed this past May also Stage 3 (cancer outside the prostate) with a PSA of 12.7 and a biopsy result that rated my cancer Gleason 9 (4+5) w/ Cribriform pattern present. Read my thread "MRI Result Meltdown". I was scared out of my mind, but several members on the board here assured me that the waiting around for test results is really the worst part of it all - and they were right. Once treatment starts, you and your dad will feel much better because you will start to feel in control of the situation. I just had RP surgery myself on Aug. 19th and feel so much better mentally. In fact, things turned out to be not as bad as my initial scans showed.

There are many great treatments now for prostate cancer at any age, any stage. The hormone treatment they give your dad should lower his PSA significantly and may prevent any further cancer spread. Is the plan for him to have radiation treatment down the road? If so, even better as that could potentially cure him. How is your dad's health otherwise? Did they determine stage 3 from an MRI?  

Read through other threads here and you will see there are members here with PSA levels in the THOUSANDS that are getting along for many years on hormone treatments. Also, as I think others will tell you, tempting as it will be, don't start asking Dr Google questions. Much information is outdated and frankly just reads far worse than what is in reality.

Sending good vibes your way as others did for me. Things will get better.

Mike

User
Posted 30 Aug 2024 at 18:32

Brilliant news I don’t think he can have sugery not sure what’s happening 

User
Posted 30 Aug 2024 at 19:35

Surgery isn't offered for T3b because the recurrence rate is too high.
Radiotherapy can treat T3b though.

User
Posted 31 Aug 2024 at 13:10

Me to Mike ๐Ÿ™il keep you all update I’m trying to keep a positive mind I have children to look after well she’s 12 the other is 21 โ˜บ๏ธ

User
Posted 07 Sep 2024 at 18:55

Well he’s only just started treatment so not sure what we are dealing with those Wer her words just hoping that the sound of raised lymph nodes isn’t a death sentence xx

User
Posted 08 Sep 2024 at 19:29

Hi no that’s not what I was asking the nurse said from the details of ct scan there wasn’t spread to organs near by…. the lymph nodes Wer slightest raised with no hard mass but consultant Will explaine he’s only been on hormone tablets for nearly a week and a half and had injection on Thursday  

User
Posted 19 Feb 2025 at 10:09

Your Dad  will no doubt be glad he has got the radiotherapy behind him. The next PSA test will be very low but this will be as a result of the hormone therapy. The effect of radiotherapy takes much longer to take effect. This will be a gradual process of up to two years. It's when the cancer cells try to divide and find they can't because their DNA has been scrambled by the radiation. They then die. When your Dad comes off the HT that will be the moment of truth about the success of his treatment. 

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User
Posted 30 Aug 2024 at 17:26

Hi Terriex,

I was diagnosed this past May also Stage 3 (cancer outside the prostate) with a PSA of 12.7 and a biopsy result that rated my cancer Gleason 9 (4+5) w/ Cribriform pattern present. Read my thread "MRI Result Meltdown". I was scared out of my mind, but several members on the board here assured me that the waiting around for test results is really the worst part of it all - and they were right. Once treatment starts, you and your dad will feel much better because you will start to feel in control of the situation. I just had RP surgery myself on Aug. 19th and feel so much better mentally. In fact, things turned out to be not as bad as my initial scans showed.

There are many great treatments now for prostate cancer at any age, any stage. The hormone treatment they give your dad should lower his PSA significantly and may prevent any further cancer spread. Is the plan for him to have radiation treatment down the road? If so, even better as that could potentially cure him. How is your dad's health otherwise? Did they determine stage 3 from an MRI?  

Read through other threads here and you will see there are members here with PSA levels in the THOUSANDS that are getting along for many years on hormone treatments. Also, as I think others will tell you, tempting as it will be, don't start asking Dr Google questions. Much information is outdated and frankly just reads far worse than what is in reality.

Sending good vibes your way as others did for me. Things will get better.

Mike

User
Posted 30 Aug 2024 at 17:52

Hi Mike 

thank you very much for replying to me 

my dad had a stroke in 2017 that left him with left side weakness he can walk but it’s a fashionable walk other than that he don’t smoke he don’t drink he’s 72 this year yes thy spoke  about radiation in January he had enlarged prostate back in 2018 and had the TURP clearly there was no cancer back then so he’s been under urology for some years but they cancelled and few of his appointments now 6 weeks ago he gets diagnosed with this we have been through so much as a family I’m just praying that he will have a few more years left left ๐Ÿ˜ž and yes as for Google I think I’ve read it all ha hope you are well Mike xx

User
Posted 30 Aug 2024 at 17:59

Sorry Mike the said from the Gleason score and biopsy it was TB3 so can things be even better if scan if ok sorry once again 

User
Posted 30 Aug 2024 at 18:29

I was T3b, gleeson 9, large tumour, PSA 35 March 23 , Prostap and 25 radiation treatments,  changed to Degarelix now .

Latest PSA 0.08 and told can stop injections after 2 years rather  than 3 , so keep going and good outcomes do happen .

Mike.

User
Posted 30 Aug 2024 at 18:32

Brilliant news I don’t think he can have sugery not sure what’s happening 

User
Posted 30 Aug 2024 at 19:11

Think surgery maybe unlikely but plenty of options,  fingers crossed for a great outcome,  keep posting. ๐Ÿ˜€ 

User
Posted 30 Aug 2024 at 19:35

Surgery isn't offered for T3b because the recurrence rate is too high.
Radiotherapy can treat T3b though.

User
Posted 30 Aug 2024 at 19:48

Thank you hope for a few years xx

User
Posted 30 Aug 2024 at 20:19
HT/RT should be able to treat it and have less side effects at his age. The chances are very high that something else will eventually get him rather than prostate cancer.

We often say that most men die with prostate cancer rather than because of it.

He'll be around for a lot longer :)

User
Posted 30 Aug 2024 at 20:47

Thank you so much โ˜บ๏ธ I bloody hope so he’s my world he’s a strong one at times 

User
Posted 30 Aug 2024 at 21:01

T3b definitely treatable at his age with RT/HT. I went through the process at age 75.

It would be worth asking if the treatment will take in the possibility of spread to seminal vesicles and nearby lymph nodes. That wouldn't take it out of the range of being treatable but might give a better definition of his cancer.

Jules

User
Posted 30 Aug 2024 at 21:06

That’s good news not sure when we will know the cancer nurse said it was TB3 said it was contained to prostate but broken through to Siemen vessel I’m hoping for better news he’s always had problems with urinating since his stroke and the enlarged prostate so it’s come as a shock to be honest I’m a stress head as you can tell me looking for answers on here ๐Ÿ˜ž

User
Posted 31 Aug 2024 at 07:13

Hi Terriex,

I was T3b like your dad but with PSA 36 when diagnosed. I was terrified at the time, but just over 2 years down the line since treatment started I am now undetectable and finished treatment. So, there is plenty of Hope, try and stay strong for your dad, he is so lucky to have a daughter like you to look after him๐Ÿ˜Š

Mine had just broken though to the Seminal Vesicles (like your dad perhaps) so surgery was rule out. I went down the HT/RT route. The RT was a doddle, the HT for me has not been good as I had every side effect going๐Ÿ˜ฉ, but some people seem to get off lightly and I have no idea why. As Andy says I suspect surgery will be ruled out, but both treatments are likely to have similar CURATIVE outcomes.

As everyone will tell you, the waiting around for tests and results is by far the worst part of this journey, just try and keep you and your dad as busy and active as possible to stop your minds from wandering. I would avoid Dr Google…there is so much knowledge on this site as well as the Specialist nurses who you can phone anytime.

Do as many nice things with your dad as possible during the waiting just to show you both that life goes on, give him some treats(not forgetting yourself of course!) . I have found this really helps keep my mood better.

I wish you BOTH all the best on your journey.

Derek

User
Posted 31 Aug 2024 at 09:00

Morning Derek thank you for replying it means a lot and I’m praying for a good outcome I don’t like it when you hear the word aggressive though that scares me I’m praying nuts like you that he’s here in 2 years and more lost my mum in 2016 not ready to lose another yet x

User
Posted 31 Aug 2024 at 10:51

The impact of our positive words are not much at this time of your waiting. Most people at this stage think of the worse but once you father starts his treatments you both will see the half full of the glass and be more positive.

Your dad will be around for many good years (a decade or more) to come. Remember, 2 decades ago the life expectancy of similar diagnoses was half what is now. Thanks to medical advancement especially with prostate and it is getting momentum . Who knows in 5 years time a new medicine is out that could extend it more. I just read that there is tablet to fight long cancer. May be the same happens for prostate.

 

User
Posted 31 Aug 2024 at 10:59

Thank you โ˜บ๏ธ this site gives me some positive thoughts 

User
Posted 31 Aug 2024 at 11:13
When given my diagnosis the only words I heard were CANCER, AGGRESSIVE,INOPERABLE and ADVANCED.

A little time and support and it changes , after HT and RT hope mine is back in it's box and hope yours joins it .

Mike

User
Posted 31 Aug 2024 at 13:10

Me to Mike ๐Ÿ™il keep you all update I’m trying to keep a positive mind I have children to look after well she’s 12 the other is 21 โ˜บ๏ธ

User
Posted 06 Sep 2024 at 14:47

Hi all been with dad to hospital today saw nurse my dads had the injection the nurse said from the ct scan it only looks like the lymph nodes are slightly swollen but no mass is this bad news will know more in October when we see consultant 

User
Posted 07 Sep 2024 at 14:59
is the plan to treat Dad with RT? If this is the case it is likely that any suspicious lymph nodes, at least in the pelvic area will be dosed at the same time.
Barry
User
Posted 07 Sep 2024 at 15:09

He’s on the tablets at the min had first injection yesterday and the nurse told him what was on his notes about the scan said lymph nodes slightly raised but no hard mass ๐Ÿคท๐Ÿป‍โ™€๏ธ we see consultant in oct 

User
Posted 07 Sep 2024 at 18:43
I was Tb3 PSA 35 with maybe local nodes affected, after HT and RT PSA 0.08 so would think any nasty nodes were dealt with too .

Best wishes.

User
Posted 07 Sep 2024 at 18:55

Well he’s only just started treatment so not sure what we are dealing with those Wer her words just hoping that the sound of raised lymph nodes isn’t a death sentence xx

User
Posted 08 Sep 2024 at 07:54

Was you showing any sign with lymph nodes at all it’s worrying me now 

User
Posted 08 Sep 2024 at 19:03

Terriex, I have had two separate cancerous pelvic lymph nodes treated. If you are asking were there any symptoms or pain, then in my case the answer is no. The raised PSA led to a PSMA scan detecting the tumors.

Thanks Chris 

User
Posted 08 Sep 2024 at 19:29

Hi no that’s not what I was asking the nurse said from the details of ct scan there wasn’t spread to organs near by…. the lymph nodes Wer slightest raised with no hard mass but consultant Will explaine he’s only been on hormone tablets for nearly a week and a half and had injection on Thursday  

User
Posted 19 Feb 2025 at 07:33

Hi everyone my dad is coming up to his final day of radio on Friday he’s been ok first week he was very tired and he’s suffered with abit of diarrhoea apart from that he’s been ok I’m juts praying his psa leve when checked will be very low not sure when this will be checked hope you are all doing ok 

Terrie 

User
Posted 19 Feb 2025 at 09:45

Hi Terrie.

Thanks for the update. I'm pleased that your dad's treatment is going okay. I had surgery so I can't help with when he should get his PSA results on completion of his radiology. However, I'm sure that those who've gone down that path will help you out.

Best of luck.๐Ÿ‘

Edited by member 19 Feb 2025 at 09:50  | Reason: Typo

User
Posted 19 Feb 2025 at 09:49

Thanks for replying hope you are well 

User
Posted 19 Feb 2025 at 10:09

Your Dad  will no doubt be glad he has got the radiotherapy behind him. The next PSA test will be very low but this will be as a result of the hormone therapy. The effect of radiotherapy takes much longer to take effect. This will be a gradual process of up to two years. It's when the cancer cells try to divide and find they can't because their DNA has been scrambled by the radiation. They then die. When your Dad comes off the HT that will be the moment of truth about the success of his treatment. 

User
Posted 19 Feb 2025 at 10:14

Yes he so tired today he’s in there now as we speak I’m hoping and praying this all works for him I hear many people are cured or still here years down the line they said there’s still other things they can do ๐Ÿ™

User
Posted 19 Feb 2025 at 10:45

Originally Posted by: Online Community Member

... I’m juts praying his psa leve when checked will be very low not sure when this will be checked ...

It will probably be six months after treatment. Any PSA test just after RT is useless as cells will be dieing and releasing PSA. They may do a test prior to six months, but if the results were weird, they would say "Oh we'd better test again at six months". Even the result at six months isn't very useful as it takes about two years before all the cells die from the radiation, there can also be a PSA bounce. If he is still on HT that will be suppressing the "true" PSA.

I was diagnosed in March 2018 (PSA 25) , I was on HT until March 2020, I had RT in October 2018. It was nice seeing PSA of 0.1 on every test since June 2018, but the first PSA test which I considered reliable was April 2021. Fortunately that was also 0.1 and the highest it has been since then is 0.2 . 

Dave

User
Posted 19 Feb 2025 at 12:06

That’s good then so there’s a lot of hope it will work for him they did say there’s still other aim was to cure it or live many many good years with it thanks ๐Ÿ™ 

User
Posted 19 Feb 2025 at 13:07

Yes, Hope is what we have to cling on to, and when he finishes his HT it’s even more important. I’m at that stage now and I can’t say it’s easy but I just keep myself busy and active,  and have as much fun as my HT weakened body allows me to.

I didn’t suffer from tiredness or fatigue during my 4 weeks of RT but everyone is different…I would say I am more tired now, almost 2 years since I had RT but I’m working on that to improve my physical state.
Tell your dad to keep as active as he can. I’m not sure what age he is but any exercise will help his physical state when on HT. Walking is good and if he’s not a gym goer buy some resistance bands and do some exercises with them, particularly his legs…thats where I suffered the most. Of course some men don’t get side effects from HT so hopefully your dad is coping.

wish him luck from me for the future

Derek

 

 
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