One year in,stage 4.

User

Posted 06 Sep 2024 at 06:56

Diagnosed 1year ago, PSA 159, Gleason score 4+4=8, spread to distant lymph nodes, left seminal vessel and over towards bowel, 6 bone mets 2 ribs 2 pelvis 2 vertebrates, no organ involvement. Virtually no symptoms I just thought it was BPE.

Life expectancy from oncologist 5 yrs

Treatment so far

Chemotherapy 6 x Docetaxel

External beam radiation 6 x double dose to the prostate and surrounding area's 1 week apart

Zoladex every 3 months

Nubeqa daily

One year on PSA 0.06

Worst side affects from treatment are mentaI anxiety and hot flushes.

I live in Australia am I receiving the best treatment, is there anything else I should be looking at?

Thanks in advance Tim

User

Posted 10 Sep 2024 at 18:47

Hi Tim

Your diagnosis has some similarities to my Dad's, he'll be 2 years since diagnosis in a couple of months. I don't have any specific advice as I'm still on my learning curve to help my Dad but I thought my reply might help by bumping your post.

Best wishes

Loz

User

Posted 10 Sep 2024 at 22:10

Hi Tim,

Sounds like you’re doing well all things considered.

I suffered debilitating anxiety after starting Prostap(I was coping during and after diagnosis) so it was definitely the effects of this drug that brought it on. My GP prescribed me a low dose of sertraline and it sorted it out. I’ve now finished HT 6 months ago but am staying on it until my testosterone returns.

Onwards and (PSA) Downwards,

Derek

User

Posted 09 Nov 2025 at 14:38

If your scan is going to be a PSMA PetScan then I believe it should be able to indicate at quite low PSA levels eg around 0.2 but it may need to be at least that level be useful for lesion detection.

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User

Posted 10 Sep 2024 at 18:47

Hi Tim

Best wishes

Loz

User

Posted 10 Sep 2024 at 22:10

Hi Tim,

Sounds like you’re doing well all things considered.

Onwards and (PSA) Downwards,

Derek

User

Posted 09 Nov 2025 at 09:38

Hi all

Just a quick update

My PSA bottomed in Feb 2025 at 0.03

Went up to 0.04 in May

Went up to 0.05 in August

Latest up to 0.09 in November

My oncologist seems to think I have an outbreak somewhere and says I will need a scan and potential RT if my next test (February 26) is 0.2 or above!

Will anything show up at this PSA level, any input on this development appreciated

Regards Tim

User

Posted 09 Nov 2025 at 14:38

If your scan is going to be a PSMA PetScan then I believe it should be able to indicate at quite low PSA levels eg around 0.2 but it may need to be at least that level be useful for lesion detection.

User

Posted 20 Nov 2025 at 08:56

Originally Posted by: Online Community Member

Hi all

Just a quick update

My PSA bottomed in Feb 2025 at 0.03

Went up to 0.04 in May

Went up to 0.05 in August

Latest up to 0.09 in November

My oncologist seems to think I have an outbreak somewhere and says I will need a scan and potential RT if my next test (February 26) geometry dash scratch is 0.2 or above!

Will anything show up at this PSA level, any input on this development appreciated

Regards Tim

Thank you for sharing

Edited by member 21 Nov 2025 at 09:06 | Reason: Not specified

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