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Looking at Lutetium 177 now

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User
Posted 10 Sep 2024 at 19:52

Well, my dad's urologist has suggested he goes and tries Lu177 therapy now.

He finished his 6 cycles of chemo in late Aug, and his PSA about halfway through his chemo treatment was still about 40. It has not dropped as fast as they had hoped, and then they gave him a PMSA scan just last week.

My dad has remained tight-lipped about the results of the scan. I guess the cancer has spread further and the urologist is now selling him this Lu-177 treatment.

I remember his oncologist saying earlier this year that this was end-stage treatment, and usually only recommended to men with about 6 months left....

My dad does not live in the UK so does not have to go via the NHS where it would most likely be denied to him...but still.... knowing this is an end stage treatment makes me extremely anxious, scared and sad. :(

I can't find much about Lu-177 on this forum and of the few, it seems that most if not all have passed on.

Feeling despondent tonight. :(

 

User
Posted 12 Sep 2024 at 16:31
Try this video from the US Prostate CAncer Research Institute.

https://www.youtube.com/watch?v=Th42pFOx0Fs

User
Posted 12 Sep 2024 at 16:43

If the link in Alibar's post won't work (it doesn't for me) this is the same video:

 

https://www.youtube.com/watch?v=Th42pFOx0Fs

 

Does it work now?

User
Posted 12 Sep 2024 at 20:15

Yes, that link works, thank you. I will watch it later tonight once I've made dinner.

If anyone is interested in this treatment, I will try and update my dad's progress here. There does not seem to be a lot of patient info about it.

Will update after my dad sees the nuclear medicine specialist next week.

Best, Ru

 

User
Posted 23 Sep 2024 at 04:30

Hi,

We're from the U.S. and my dad had that treatment about a year ago. I know the effects can vary, but overall, I think it gave him about 8 months of no progression. He has an aggressive cancer (gleason 9) which normally doubles the PSA about every 6 weeks.

The effect did seem to wear off near the end of his sessions, and he's now on the final chemo option.

Overall, he did not have major side effects other than some dry mouth and tiredness. I think he may have had some bone pain too. Obviously 8 months isn't a long time, but it was definitely a worthwhile treatment for him since it gave him more time without major issues.

Hope this helps. Good luck!

User
Posted 09 Oct 2024 at 08:19

Originally Posted by: Online Community Member

If the link in Alibar's post won't work (it doesn't for me) this is the same video:

 

https://www.youtube.com/watch?v=Th42pFOx0Fsuno online

 

Does it work now?

it’s understandable to feel scared and anxious with the uncertainty. While Lu-177 is often used in advanced cases, it has shown promising results in extending quality of life for some, so it might help to speak with his doctor about what to realistically expect from the treatment.

User
Posted 09 Oct 2024 at 08:28

Hi womble 

Lu-177 is on the horizon for me,I'm awaiting a pet scan appointment and will see what the results say,Enza and Docetaxel been used,Lu-177 or rad(self funded) and cabazitaxel remain,running out of options,will update my thread once I know more.

Best wishes womble 

User
Posted 10 Oct 2024 at 17:30

Hi womble and also Phil

I've looked into Lu177 a little. 

Phil, is your scan as a precursor to Lu 177? Or to assess you following your chemo?

Good luck both 

Melissa x

Mrs MAS

User
Posted 10 Oct 2024 at 18:11

Hi Mrs Mass

Yes I think it is,lu177 and rad 233(is that correct?) we're both mentioned one was NHS one was to be self funded I'm not sure which.

Are the 2 the same?is it one or the other?I'm not sure I'm trying not to think of it till my next onco appointment in Nov when by then i should have had my pet scan and will hear my results.

Regards Phil 

User
Posted 11 Oct 2024 at 15:59

Hi Phil 

I understand your feelings. Allan had an oncology appointment today, his bone scan shows more spread and so does his CT scan now including spread to lobes of his lungs. They have said for him to continue with the cabazitaxel chemo. 

My understanding is that Radium 223 is NHS funded and given to men with spread to bones. As far as I know it is only to treat pain and not prolong life. 

Lu 177 is the private option.

Good luck, as always and keep us informed. 

Melissa x

Mrs MAS

 
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