prostatitis for 2.5 years

User

Posted 11 Sep 2024 at 15:46

I have been suffering from prostatitis symptoms for 2.5 years with no let up

initially treated with antibiotics which felt like they helped after a few weeks but in stopping was just the same

i then went private through bupa they suggested the same after 4 dirffenent lots of Antibiotics still no better had urodynamics test, cystoscopy and prostatic secrestions tested, all clear

then put on flow max

asked if there is a scan we can do just see anything else going on , this found a cyst in the prostate

had this drained tunrned out infected with ecoli

more anbx but still no change

had cyst removed via TURP

recovered and still same symptom

since then had 2 ops to try botox in the prostate no differncet

tried physio, acupuncture and anti depressants for blocking nerve pain

now my sypmtoms are just the same if not worse

i have always cycled alot but had a lot of time off to see if improved, nothing

it Burns when i go to the toilet and the feeling of needing to go never really goes sometimes i go 20 mins later just to releave what feels like pressure on my prostate

i was then passed to pain specialist but bupa wont cover a nerve block as just temp

im 47 and active and its affecting my whole life and family

im here for help if there are an recomended prostatitis specialist , im conviced there is still an infection but told not but i cannot carry on like this

User

Posted 11 Nov 2024 at 19:41

I've had similar symptoms for 3 years now. I feel your pain. It took an absolute age to get diagnosed.

Some really poor healthcare along the way including my GP in annoyance asking what I wanted him to do. A specialist who started the consolation asking who I was and why I was there. Maybe check your notes mate? It ended with him telling me I had sciatica. That followed up 3 months of pointless chiropractic sessions and a lot of wasted money.

After 2 years, I finally gave up on the NHS, paid private and was diagnosed in 15 minutes.

Physio has helped to get past the worst symptoms but quickly plateaud. Did you have internal massage? Are you using a pelvic wand?

I hope it gets better for you. It's not fun at all. Keep an eye on your mental health as mine plummeted after the 2 year mark. I'm having counselling to keep on top of things at more personal expense.

User

Posted 11 Nov 2024 at 21:12

I suffered from prostatitis for many years before I was diagnosed with prostate cancer. I have a suspicion that continuous inflammation of the prostate for many years may be the cause of my prostate cancer - there is no scientific evidence for this - but there is some anecdotal evidence that serious cyclists may be at risk. After my diagnosis I had an option to remove my prostate which I chose hoping that my prostatitis would leave with the prostate which it did. I no longer have any prostatitis symptoms. That was over 13 years ago. Of course I am not suggesting this as a cure!

I tried prostate massage with no avail but there is some evidence that 'milking' the prostate helps some people.

As far as I know from my long experience prostatitis has no cure but it waxes and wanes and can disappear completely. In my view it is advisable to keep your eyes on your PSA.

Edited by member 11 Nov 2024 at 21:15 | Reason: Not specified

'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.' Richard Feynman (1918-1988) Nobel Prize laureate

User

Posted 12 Nov 2024 at 11:38

Hi thanks for the reply.

i get the same impression they ask me what i want them to do!

ive seen a pelvic physio but no real help but no internal massage etc

im going in next week for yet anther botox injection and injection of anti biotics! certainly not holding my breath im just setting myslef up for this is how it is.

yes id certainly does affect my mood and i have less patients for sure and can feel low. i just take it a day at a time.

User

Posted 12 Nov 2024 at 22:06

I hear ya. My patience is the same, although I've never been that much of a patient person. I'd definitely try the internal release stuff. It's a bit embarrassing but with this condition that's standard ha! From what I understand a lot of people get positive results from it. It helped me but only to make it better, not a cure. Maybe in time with continued therapy, who knows. The pelvic wand thing also is like internal release just not as effective as you're self-directed and not a pelvic physio doing the work.

I wish there were more successful treatments. Physio and counselling have been the only positives so far. I'm hoping pain team offer something to make the bad days easier.

I hope those upcoming appointments help, interesting idea on the antibiotics into the prostate. Please let me know if it helps?

User

Posted 13 Nov 2024 at 13:16

I think going down the antibiotics route is an easy option for the doctors because they can't think of anything better. Many years ago, before I had my prostate removed, when I was referred to a urologist he massaged my prostate to produce prostatic fluid to check for infection. The result was negative and he lost interest in my case! I also purchased a medical grade prostate massager and used it for a few weeks but no discernible improvement. However after we have had sex the pain seem to virtually disappear for a couple of days; masturbation did not help. So we had a lot of sex! Joking apart, I wish there was an answer because the condition is so debilitating.

'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.' Richard Feynman (1918-1988) Nobel Prize laureate

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