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Just coping

User
Posted 16 Sep 2024 at 17:53

Sorry for this rambling venting 


This is a difficult post to make for me, when I was first told I had incurable cancer I made an effort to put the cancer in a box at the back of my mind so I could think of today etc and not dwell on Cancer. A couple of months later I had a bad reaction to Chemo meds, which only lasted 4 minutes before I had a reaction, we then had a meeting with our oncologist who when we asked what the prognosis was now with no chance of Chemo, the reply came that I had a 40% chance of surviving 4 years.


So stuffing everything to do with cancer in the box only to be looked at when I had to, this served me well for three years keeping the cancer anchored to the back of mind, only as the use by date 17 August 2023 was getting closer I became upset, having more and more bad days, then I visited our local doctors who gave me a change of meds and telephone numbers for Macmillan and talking changes, at first I thought no way am I going just talk to somebody.


First I called Macmillan who arranged six weekly massage and chat sessions, eventually I spoke to Talking changes who scheduled me in for 6 one hour phone sessions still what can they say to help me I’ve got Cancer and that’s it. Come the first session just talking about being told, how I coped with it, my feelings my support network I was in tears for most of the call. The second call we talked more about the box I had stuffed all the bad news about Prostate cancer and how I dealt with it, help from family and friends, then the talk took a surprising turn being asked if I could visualise things, saying imaging your box as a boat with all the cancer bits and all the good things about my life feelings etc, safely tucked inside, now just cast off and drift I honestly thought that’s what I expected just words.


The next phone call we talked again and agreed that focusing on that date helped me to cope initially it became an anchor not letting me move forward, now with my box / boat adrift it was like joining everyone else without a date could be tomorrow, next year who knows when.


Twelve months on and those phone calls really helped my outlook on Life


Hope this helps show others there is help around if we ask and take the first step


 

User
Posted 16 Sep 2024 at 17:53

Sorry for this rambling venting 


This is a difficult post to make for me, when I was first told I had incurable cancer I made an effort to put the cancer in a box at the back of my mind so I could think of today etc and not dwell on Cancer. A couple of months later I had a bad reaction to Chemo meds, which only lasted 4 minutes before I had a reaction, we then had a meeting with our oncologist who when we asked what the prognosis was now with no chance of Chemo, the reply came that I had a 40% chance of surviving 4 years.


So stuffing everything to do with cancer in the box only to be looked at when I had to, this served me well for three years keeping the cancer anchored to the back of mind, only as the use by date 17 August 2023 was getting closer I became upset, having more and more bad days, then I visited our local doctors who gave me a change of meds and telephone numbers for Macmillan and talking changes, at first I thought no way am I going just talk to somebody.


First I called Macmillan who arranged six weekly massage and chat sessions, eventually I spoke to Talking changes who scheduled me in for 6 one hour phone sessions still what can they say to help me I’ve got Cancer and that’s it. Come the first session just talking about being told, how I coped with it, my feelings my support network I was in tears for most of the call. The second call we talked more about the box I had stuffed all the bad news about Prostate cancer and how I dealt with it, help from family and friends, then the talk took a surprising turn being asked if I could visualise things, saying imaging your box as a boat with all the cancer bits and all the good things about my life feelings etc, safely tucked inside, now just cast off and drift I honestly thought that’s what I expected just words.


The next phone call we talked again and agreed that focusing on that date helped me to cope initially it became an anchor not letting me move forward, now with my box / boat adrift it was like joining everyone else without a date could be tomorrow, next year who knows when.


Twelve months on and those phone calls really helped my outlook on Life


Hope this helps show others there is help around if we ask and take the first step


 

User
Posted 16 Sep 2024 at 18:46

Thanks for posting this, I'm glad you found it of help, and posting this may also help others.

User
Posted 16 Sep 2024 at 20:44

What a thoughtful and informative post airyarris, so much of what you say resonates with me. When I was diagnosed I couldn’t talk about it with anyone except close family. My breakthrough came when my wife talked me into visiting Maggies together 6 months after being diagnosed!. We talked with one of their counsellors and I began to open up. But the real change came when I attended the first Men’s Cancer Support Group meeting. I didn’t think I would say much, but after listening to the other guys, I really opened up and was quite emotional. The support I got from them was amazing and continues to this day. It completely changed the way I dealt with Cancer. I really believe talking is SO important.


I do hope others read your post and are encouraged to seek out the support that’s out there if you look for it.


Derek

User
Posted 16 Sep 2024 at 20:54

Airyarris, thanks for sharing your experience with us , l am sure it will help many people. I had some RT treatment done at a Genesis centre and they offered counseling that proved to be beneficial.


Thanks Chris 

User
Posted 17 Sep 2024 at 11:09
Well past your use by date now Airy. Keep it up!
User
Posted 21 Sep 2024 at 13:12

Originally Posted by: Online Community Member
First I called Macmillan who arranged six weekly massage and chat sessions,


Hello mate


I've found Macmillan support excellent. Eight years ago, when my dad was on his last legs dying with prostate cancer, they were magnificent, whilst the service given by his GP was abysmal.


When I was first diagnosed, a local Macmillan volunteer used to telephone me regularly. She was brilliant but never offered a massage.😉


"Enjoy today, whatever it brings, and smile"


What a great attitude.👍

Edited by member 21 Sep 2024 at 17:15  | Reason: Additional text

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User
Posted 16 Sep 2024 at 18:46

Thanks for posting this, I'm glad you found it of help, and posting this may also help others.

User
Posted 16 Sep 2024 at 20:44

What a thoughtful and informative post airyarris, so much of what you say resonates with me. When I was diagnosed I couldn’t talk about it with anyone except close family. My breakthrough came when my wife talked me into visiting Maggies together 6 months after being diagnosed!. We talked with one of their counsellors and I began to open up. But the real change came when I attended the first Men’s Cancer Support Group meeting. I didn’t think I would say much, but after listening to the other guys, I really opened up and was quite emotional. The support I got from them was amazing and continues to this day. It completely changed the way I dealt with Cancer. I really believe talking is SO important.


I do hope others read your post and are encouraged to seek out the support that’s out there if you look for it.


Derek

User
Posted 16 Sep 2024 at 20:54

Airyarris, thanks for sharing your experience with us , l am sure it will help many people. I had some RT treatment done at a Genesis centre and they offered counseling that proved to be beneficial.


Thanks Chris 

User
Posted 17 Sep 2024 at 11:09
Well past your use by date now Airy. Keep it up!
User
Posted 21 Sep 2024 at 12:50

Just to say THANKS to Nick, Decho, Chris and Francji, that is all now back to enjoy today whatever it brings and smile

Edited by member 21 Sep 2024 at 12:51  | Reason: Not specified

User
Posted 21 Sep 2024 at 13:12

Originally Posted by: Online Community Member
First I called Macmillan who arranged six weekly massage and chat sessions,


Hello mate


I've found Macmillan support excellent. Eight years ago, when my dad was on his last legs dying with prostate cancer, they were magnificent, whilst the service given by his GP was abysmal.


When I was first diagnosed, a local Macmillan volunteer used to telephone me regularly. She was brilliant but never offered a massage.😉


"Enjoy today, whatever it brings, and smile"


What a great attitude.👍

Edited by member 21 Sep 2024 at 17:15  | Reason: Additional text

User
Posted 22 Sep 2024 at 15:17

I’ve not used MacMillan or Maggies but got immediately referred to the NHS counselling. It was quite a rollercoaster of a journey as it turns out my biggest mental issues weren’t the cancer but my childhood trauma and feelings of abandonment and I was spending most of the sessions in tears. But we got through it and the counselling helped me to understand my own feelings and emotions including the cancer. I also had repressed emotions which didn’t help..  
I would recommend it to everyone to understand themselves more and put everything into perspective. 
As I said my counselling was through the NHS but I imagine MacMillan is just as good. Dont know much about Maggies as they’re not in my area. Not sure if Prostate Cancer UK do counselling ? 


Phil

Edited by member 23 Sep 2024 at 10:47  | Reason: Not specified

 
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