Bone profile results during Docetaxel chemo

User

Posted 26 Sep 2024 at 10:49

Hi, I’m 7 sessions into Docetaxel chemo treatment. Diagnosed locally advanced back in January 2018, aged 63.

Had HDR Brachy plus Radiotherapy mid 2018, and a couple of years of HT . Recurrence almost immediately and tried out different HT drugs which didn’t work and eventually Abiraterone which didn’t work either. Spread to lymph nodes in upper chest first then to spine, rib and hip. Obviously incurable now.

So now on Docetaxel chemo treatment. 7th session yesterday and got a list of full blood test for this time and the previous one. First time I’ve seen these.

PSA going down albeit slowly. Now at 12.37 , last time and the one before was 13.3 and the time before was 18.

But one that stood out was Alkaline Phosphates. Last time reading was 126 which is within limits. This time it’s gone up to 239 which is quite a jump and is flagged. I made the mistake of Dr Googling and a couple of hits say possibility of chemo resistant mets showing up.

So anyone out there with some knowledge of these readings who can shed some light and put my mind at rest ? I have 4 weeks before my next Consultant meeting F2F.

I saw my consultant 2 weeks ago and he’s taken me off the daily steroids which I was well pleased about. So only on the dexamethasone for 3 days either side of the chemo.

Cheers

Phil

User

Posted 26 Sep 2024 at 15:56

Hi Phil,

I fully understand your anxiety to a specific, potentially, poor result, but I wouldn't look into it too deeply. I'm sure if the result is significant you'll be informed and helped.

User

Posted 26 Sep 2024 at 16:41

Hi Adrian. Yeah I know what you mean. It just seems my whole journey has been one step forward 2 steps back. Nothing seems to work for too long before the cancer beats it. It’s very wearing mentally and I’m so looking forward to chemo finishing just for a rest.

Hopefully the bone profile will be ok

Dont mean to sound too ungrateful to the wonderful staff at my hospital. And I am happy to still be around and breathing 🤣. I know without my early treatment I probably wouldn’t be around any more 😬

Cheers

Phil

Edited by member 26 Sep 2024 at 16:57 | Reason: Not specified

User

Posted 27 Sep 2024 at 08:49

Originally Posted by: Online Community Member

Hi Phil.

I would hate to have to be going through what you're having to endure. I'd struggle to cope anywhere as well as you are doing. I've reread my post and it sounds a bit uncaring and dismissive. It certainly wasn't meant to, and I apologise if I gave that impression.

As you know, I have no medical or scientific back ground. However, the research I've done on your alkaline phosphate rise, does sound like it merits some attention. On reflection, if I were in your shoes, to clarify the position and put my mind at rest, I'd be contacting the consultant.

Four weeks is a long time to have to wait for a face to face with him; when dealing with something new that concerns you, when you've already got so much on your plate.

Best of luck mate.

Edited by member 27 Sep 2024 at 10:32 | Reason: Typo

User

Posted 27 Sep 2024 at 10:15

Hi Adrian. Your reply was absolutely fine. 👍.
Doing the dr Google it doesn’t seem like there’s much about those readings during a chemo treatment so I do need feedback from my consultant really and yes I’ll probably contact my specialist nurses to see if they can find out anything.

Cheers

Phil

User

Posted 28 Sep 2024 at 08:43

🤞for you Phil, treatment still doing its job slowly but surely and you can look forward to a break soon.

Take care

Jac and Al

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