I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Get my biopsy results on Monday

User
Posted 27 Sep 2024 at 14:56

I get my biopsy results on Monday in a face to face appointment with a consultant from the MDT team. I'm expecting it to be prostate cancer as in a previous communication from the consultant it said '‘Negative results are normally communicated by paper letter to patient and GP at the same time. Positive results normally by a face to face appointment’.

 

 
User
Posted 27 Sep 2024 at 15:29

Hi Andy.

I see in a previous post that the suspicious area is well contained within the prostate, which is good news. I'm afraid you'll just have to wait for your biopsy results which will show far more clearly what's going on.

Most of us find the waiting for result the most difficult problem to deal with.

Have you posted your PSA result?

Best of luck mate.

Edit: I see that you've suffered from prostatitis and that your PSA tests have fluctuated between 4 and 6.6. which in the grand scheme of things, aren't very high.

 

Edited by member 27 Sep 2024 at 15:36  | Reason: Additional text

User
Posted 27 Sep 2024 at 19:45

A nurse told me my result, I was hopeful until I realised it was a Macmillan nurse although maybe they do them all.

It's surprising you were told a paper letter is normally negative.  Even so I'd cling to the UTI theory being possible. They should want to treat it.  Some people get very high psa from inflammation.

I was ready for whatever.

User
Posted 30 Sep 2024 at 16:34

Hi Andy.

With those results I'd go AS, but it's up to you mate. They'll be others that will tell you AS disaster stories, I have one myself, but despite this, on probabilities,  I'd still go for active monitoring.

https://www.cancer.gov/news-events/cancer-currents-blog/2022/prostate-cancer-active-surveillance-increasing

 

Edited by member 30 Sep 2024 at 16:41  | Reason: Add link

User
Posted 30 Sep 2024 at 16:47

Hi,  that's a shame. 

It's quite a thing about whether you can tolerate it being inside of you.   I felt rushed as it was said to be near the edge.  There was another person on here at the time and he spoke to several consultants taking about 6 months.  I thought he was being too relaxed but he went to meet a consultant in London who gave him a non-standard op on the NHS, I think it's called a Retzius operation that goes in from underneath and is said to give better results.  It hasn't caught on though, don't know why.  For some reason he stopped posting after a few years.

I didn't think I'd like the very small recurrance inside me but the Consultant said I could wait for years if it doesn't change the rate of growth and I'm now comfortable with it 98% of the time.   Yours is sheathed to a large extent by the prostate although it's larger, it depends how it's growing.

Mine was near the edge and 13mm diameter did no-one give you an indication of that?  Mine was also 4+3 and ended up as 4+4 so I getting on with it was better.

If I was you I think I'd be pencilling in a schedule.  When do you need to make a decision.   Is your hobby worth delaying treatment.  Would you like it before Christmas or after.  Is it putting off the inevitable.  Mine was a week before Christmas which was better for me as I could hide away and in winter you can wear big clothes and pads.

Something to ponder.  Good luck Peter

User
Posted 01 Oct 2024 at 16:25

Dr Scholz is even more bullish than that - he quotes research which effectively shows that Gleason 6 never spreads, and so AS is, in his view, the obvious route for men with Gleason 6, who in many cases may then live out their lives without ever having invasive treatment.

Two problems with this are:

a. scans and biopsies, although they have improved, are still not accurate enough to determine with complete certainty that somebody really does have only Gleason 6.

b. there is nothing to stop a man with Gleason 6 later developing another prostate cancer of higher grade.

That is why it is so important that Active Surveillance needs to be very "active" - to check that the diagnosis is accurate and to keep monitoring (especially with scans and PSA tests and then, if necessary, repeat biopsies) how things develop.

User
Posted 03 Oct 2024 at 09:33

Originally Posted by: Online Community Member
I was recently diagnosed with Gleason 6, although cancerous cells were found in 4 out of 5 areas giving a diagnosis of T2c.

Hi JP.

I too was diagnosed T2c. I believe under the new Cambridge Prognostic Group. T2a, T2b and T2c have all be clumped together as T2.

I started a conversation one T2c disease and active surveillance some months ago which you may find helpful.

https://community.prostatecanceruk.org/posts/t29997-T2c-disease-and-active-surveillance

 

Show Most Thanked Posts
User
Posted 27 Sep 2024 at 15:29

Hi Andy.

I see in a previous post that the suspicious area is well contained within the prostate, which is good news. I'm afraid you'll just have to wait for your biopsy results which will show far more clearly what's going on.

Most of us find the waiting for result the most difficult problem to deal with.

Have you posted your PSA result?

Best of luck mate.

Edit: I see that you've suffered from prostatitis and that your PSA tests have fluctuated between 4 and 6.6. which in the grand scheme of things, aren't very high.

 

Edited by member 27 Sep 2024 at 15:36  | Reason: Additional text

User
Posted 27 Sep 2024 at 16:01

My latest PSA in June was 6.6. But it has fluctuated considerably over the last 8 years. It started at 5.3 in 2016. It has gone down and back up. 6.3 in 2023 but high because of a UTI. After treating the UTI it went back to 5.3.

After the MRI I got a letter from the consultant saying ‘The left posterior side of your prostate appears abnormal and may be related to your prostatitis but I think it would be prudent for us to do some prostate biopsies’. At the biopsy the same consultant was still suggesting that it was likely to be down to prostatitis.

User
Posted 27 Sep 2024 at 19:45

A nurse told me my result, I was hopeful until I realised it was a Macmillan nurse although maybe they do them all.

It's surprising you were told a paper letter is normally negative.  Even so I'd cling to the UTI theory being possible. They should want to treat it.  Some people get very high psa from inflammation.

I was ready for whatever.

User
Posted 27 Sep 2024 at 22:43

All the best for your results.

Try and keep busy over the weekend, plan something fun with family or friends, it helps to stop the worrying and over thinking. 

User
Posted 30 Sep 2024 at 16:12

I got my biopsy results today and it is cancer.

Grade Group 1, Gleason 6 (3+3), Stage T2, N0, M0.

Treatment options - AS, RT + HT, Surgery

12 out of 20 cores were cancerous on the left side of the prostate. (8 on the right hand side were non-cancerous).

They say that I have time to make a decision on treatment. My instinct is to go for surgery. I’m 66 in good health and reasonably fit. I hate the thought of the urinary and ED side effects both for surgery and RT. AS is an option but it depends if I can cope mentally with the thought of having cancer inside of me. They said that because of the volume found (12/20), they would expect to have to have treatment at some point. I’ve also asked about HIFU, but this is all a bit of an unknown treatment and doesn’t allow for surgery at a later date as far as i understand.

So surgery seems the best option. It’s when do I get it done. A big part of me says to just get it done asap. Though there are things that I would like to commit to hobby wise between now and early March.

User
Posted 30 Sep 2024 at 16:34

Hi Andy.

With those results I'd go AS, but it's up to you mate. They'll be others that will tell you AS disaster stories, I have one myself, but despite this, on probabilities,  I'd still go for active monitoring.

https://www.cancer.gov/news-events/cancer-currents-blog/2022/prostate-cancer-active-surveillance-increasing

 

Edited by member 30 Sep 2024 at 16:41  | Reason: Add link

User
Posted 30 Sep 2024 at 16:47

Hi,  that's a shame. 

It's quite a thing about whether you can tolerate it being inside of you.   I felt rushed as it was said to be near the edge.  There was another person on here at the time and he spoke to several consultants taking about 6 months.  I thought he was being too relaxed but he went to meet a consultant in London who gave him a non-standard op on the NHS, I think it's called a Retzius operation that goes in from underneath and is said to give better results.  It hasn't caught on though, don't know why.  For some reason he stopped posting after a few years.

I didn't think I'd like the very small recurrance inside me but the Consultant said I could wait for years if it doesn't change the rate of growth and I'm now comfortable with it 98% of the time.   Yours is sheathed to a large extent by the prostate although it's larger, it depends how it's growing.

Mine was near the edge and 13mm diameter did no-one give you an indication of that?  Mine was also 4+3 and ended up as 4+4 so I getting on with it was better.

If I was you I think I'd be pencilling in a schedule.  When do you need to make a decision.   Is your hobby worth delaying treatment.  Would you like it before Christmas or after.  Is it putting off the inevitable.  Mine was a week before Christmas which was better for me as I could hide away and in winter you can wear big clothes and pads.

Something to ponder.  Good luck Peter

User
Posted 30 Sep 2024 at 22:58

I would ask about the latest RT which is 5 doses and no HT. It's not suitable for everyone, you may need to be referred to another hospital. 

Dave

User
Posted 01 Oct 2024 at 11:35

I slightly got the number of cores with cancer wrong in my earlier post. In fact it is 10/20 i.e. 50%. The full biopsy report:

Left anterior- 3 cores  - 1 of which contains acinar type adenocarcinoma Gleason 3+3 measuring 7mm in maximum size (discontinuous growth).

Right anterior - none of which contains high grade PIN or adenocarcinoma.

Left posterior - 9 cores - all of which contain Gleason 3+3 acinar adenocarcinoma, measuring 12mm in maximum size (discontinuous growth).

Right posterior - 6 cores - none of which contains high grade PIN or adenocarcinoma.

Previous MRI  T2a N0 M0

All treatment options offered including AS.

I’m leaning possibly towards AS for a while and then surgery. The concern about AS is the high volume of 50% and how big a risk this poses.

User
Posted 01 Oct 2024 at 11:57

Hi Andy.

Presumably this was a targeted biopsy and that the positive cores were from the target area. The number of positive cores wouldn't bother me if they were all Gleason 6 (3+3). I'd be more interested into how many tumours there are and how contained they are within the prostate. Your T2a staging indicates a tumour in just one half or less of the prostate.

If you opt for AS, please ensure that you are actively monitored with follow up PSA checks, DREs and MRIs.

Best of luck mate.

Edited by member 01 Oct 2024 at 14:21  | Reason: Not specified

User
Posted 01 Oct 2024 at 13:14

Hi Adrian,

It was a targeted biopsy. From what I saw on the MRI picture there only appeared to be the one PIRADS5 tumour in the lower left hand side. 

User
Posted 01 Oct 2024 at 15:33

I notice in today's Times an article from a scientific paper saying Grade 1, Gleason 3+3, shouldn't be called cancer as it's low risk and it worries people unnecessarily.  Active Surveillance with regular monitoring should be prescribed.

I've read that before. Dr Scholz of YouTube fame said similar and that it's  less likely to spread.

That might be re-assuring.  (Although they are abnormal cells so I don't think the name change idea means much in reality.)

User
Posted 01 Oct 2024 at 16:25

Dr Scholz is even more bullish than that - he quotes research which effectively shows that Gleason 6 never spreads, and so AS is, in his view, the obvious route for men with Gleason 6, who in many cases may then live out their lives without ever having invasive treatment.

Two problems with this are:

a. scans and biopsies, although they have improved, are still not accurate enough to determine with complete certainty that somebody really does have only Gleason 6.

b. there is nothing to stop a man with Gleason 6 later developing another prostate cancer of higher grade.

That is why it is so important that Active Surveillance needs to be very "active" - to check that the diagnosis is accurate and to keep monitoring (especially with scans and PSA tests and then, if necessary, repeat biopsies) how things develop.

User
Posted 01 Oct 2024 at 23:12

Hi Andy 

Sorry to hear your news, seems that we’re on a similar journey as I was recently diagnosed with Gleason 6, although cancerous cells were found in 4 out of 5 areas giving a diagnosis of T2c. The MRI stated one area that could be inflammatory and so I was a little surprised to hear that it was in a few places. At 43 I was advised that the two options available are AS or RP and that if I go for AS I will need some form of treatment at some point. My wife is pushing for RP as we have two young boys and she doesn’t want this to escalate, which I am partly onboard with, but just worried about side effects that I could perhaps delay for a bit. However as others have stated, does the MRI and biopsy potentially under diagnose? It’s a difficult one and a decision that is unique to each of us. 

All the best 

Edited by member 01 Oct 2024 at 23:23  | Reason: Not specified

User
Posted 02 Oct 2024 at 09:34

Hi JP,

Thank you for your reply. I agree that there is the worry that the biopsy results might have under diagnosed the cancer staging. I too do not like the thought of the two major side effects of RP. I do worry how effective the AS actual monitoring is too. Bit by bit I feel that inevitably I’m moving towards RP.

Andy

User
Posted 03 Oct 2024 at 09:33

Originally Posted by: Online Community Member
I was recently diagnosed with Gleason 6, although cancerous cells were found in 4 out of 5 areas giving a diagnosis of T2c.

Hi JP.

I too was diagnosed T2c. I believe under the new Cambridge Prognostic Group. T2a, T2b and T2c have all be clumped together as T2.

I started a conversation one T2c disease and active surveillance some months ago which you may find helpful.

https://community.prostatecanceruk.org/posts/t29997-T2c-disease-and-active-surveillance

 

 
Forum Jump  
©2024 Prostate Cancer UK