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Help to give me hope

User
Posted 01 Nov 2024 at 17:11

Hello Everyone

Thank you for this forum  & all the information and experiences you share

My very fit 78yr old husband of 52yrs has been diagnosed with prostate cancer from a psa of 4000 and rectal examination and hourly frequency at night for 2wks.He has had ct, bone & 2 mri scans..a flexible cystoscopy that revealed 3 bladder stones. He is having  perineal biopsies in 2wk and bladder stone removal 2 days later. The Consultant appointment resulted in an indwelling catheter, thats made such a big difference and a  loading dose of Degarelix. He has no pain now although 5 wks ago sciatic type pain started our journey at the GP. 

I am terrified he will not be considered for treatment/management. I know we need the biopsies but is there still hope of interventions to help prolong our time together? 

Thank you all.

T

User
Posted 01 Nov 2024 at 21:07

I'm not clear from your post. Has your husband completed the diagnostic process and received his final "staging" and treatment recommendations?

Chris

User
Posted 01 Nov 2024 at 21:11

Sorry you are here Sofee. He will definitely be considered for treatment/management, and I suspect he will have a reasonably long life.

Prostate cancer usually responds very quickly to hormone therapy (HT) and any symptoms of cancer are likely to disappear quickly. The question then becomes how long will the hormone treatment work? It tends to average about five years, after that stronger treatments may work, but they tend to become ineffective after about a year.

4000 is a very high PSA, I think it is very likely the cancer is no longer confined to the prostate so surgery or radiotherapy therapy are unlikely to be able to kill the cancer cells which are probably throughout his body. So it is a case of managing his cancer, which HT does by making the cells dormant. Chemo kills cancer cells, but it is unlikely to kill all of them. With current treatments this mean management of the cancer. Hormone therapy has side effects which are OK for some men, but not all men get on with it.

You would be very unfortunate if HT did not last at least a year, you would be very lucky if it lasted longer than ten years.

My advise is only general advise based on posts I have seen on here over the last five years. Only medics who have seen all your husbands test results can give accurate advise.

 

Dave

User
Posted 02 Nov 2024 at 17:42

Thank you for both replies. I very much appreciate you taking the time. My husband still has to have template biopsies & removal of bladder stone. There has been some indication that there is spread in his spine(he does not know this) but ct chest is clear as is lymph. He has tolerated the HT loading dose well and is booked to have next. I know I  have to be patient.

Thank you again 

 

User
Posted 14 Dec 2024 at 15:41

Hello again

An update from my first post,thank you for the replies I received.

My husband has had successful removal of 3 bladder stones.  Pelvic MRI, full body MRI, bone scan,template biopsy.

We had a results appt yesterday.

Gleason was 5+5, bone mets (that we knew about quite early in the journey), 2 vertebrae &a pelvic segment.

No other spread ct chest clear, bladder biposy clear, no lymphadenopathy, liver clear. 

He has had Degarelix since 14th Oct & continuing. We are to have an appt with Oncology in Jan & to have psa, bloods checked then. In my good moments I'm so relieved the has been no other spread, in my darker moments I'm  v scared to believe the HT is controlling it & wonder for how long. The is ? that Oncology may add in Apalutamide. 

I look forward to any help,comments possible,and send you allgood wishes on your own journeys.

Thank you. 

User
Posted 26 Dec 2024 at 14:14

Just a line to let you know I was 72 when diagnosed in 2019 with incurable prostate cancer since then the trust I am getting treatment from, they have always come up with treatment as and when it was needed, so hopefully your urology team will be similar, by all means look at my Bio

Hugs to help you both, getting thro’ initial tests results and meetings is a worrying time

Edited by member 26 Dec 2024 at 14:16  | Reason: Not specified

 
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