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User
Posted 07 Nov 2024 at 22:49

Deleted 

Edited by member 05 Dec 2024 at 10:37  | Reason: Not specified

User
Posted 07 Dec 2024 at 10:11

Thank you guys. The relief is enormous with all the mental preparations I had made to deal with what I thought would be the worst news. With the two areas on my prostate and a Lickert score of 4         I was settled on hearing a bad outcome of the biopsy.

It's easy to say don't worry now that I have a hell of a lot less to worry about. But the advice I was given here to try not to worry about things that may never happen was the best advice I could have received. 

The possibility of a cancer diagnosis is a truly terrifying prospect. But letting your fears get out of control won't help you deal with the process of tests and waiting involved.

I purposely tried not to read too far ahead into possible outcomes and treatments, but its very hard not to pick up negative information which deeply affects your mood etc. 

I received so much support from friends and family and people on this forum during the few months it has taken to arrive at the negative diagnosis. I know this support would only have strengthened had it gone the other way and it is truly amazing how much that support improves your mood and ability to cope with the pressure that going through this horrible process involves.

I have yet to receive my discharge letter but I assume it will tell me a bit more detail about what was found, or rather not found. And hopefully advice about what I need to do in the future regarding PSA testing or whatever. 

I can't imagine how I and my wife would have coped with the results if it had have been cancer, I know we would have, but it would have been a completely different life to the one we can now look forward to. My thoughts are with all those who have not been fortunate enough to get the same outcome as me. And for those who will get the bad news in future. 

I will remain a member of the forum and hopefully provide the kind of sage advice to men and their partners who are forced to board the Prostate roller coaster ride that was given freely to me by this wonderful group of people.

Let's hope testing becomes better and treatment can be improved to make all forms of cancer a thing of history. 

Happy Christmas to one and all and thank you again for the kind support and patience you show to everyone who visits this site.

Best regards always,  Mick. 

User
Posted 08 Nov 2024 at 14:01
If it transpires that you have PCa, it might be insignificant and not call for immediate ttreatment so that you are just offered Active Surveilance (AS).. Should your have more significant/advanced cancer, you will be offered appropriate treatments with the possibility that you may be left to decide between options. PCa is a very individual specific. Don't think a treatment and i results that apply to anybody else will necessarily be the same for you. So when all tests have been completed and discussed by clinicians you will be given a diagnosis and advised of your options. At that stage you need to consider these and pros and cons of various treatments where a choice is offered. But as you have been advised, take one step at a time. It may be that you don't have PCa currently.

i

Barry
User
Posted 09 Nov 2024 at 20:41

Hi Mick,

As others have said, you may not have Prostate Cancer at all, but it's good that you're being given a full MOT.  

I didn't need an enema before my biopsy, but hospitals may differ in their procedures.  As far as the discomfort of the procedure goes, it's much less uncomfortable than, say, having a tattoo, if that means anything to you.  You will hear a click each time they take a small sample and feel a slight 'nick' of the tissue, but that's about it.  You will have to wear one of those hospital gowns and lie back with your legs spread, so that's the most uncomfortable part!  The staff are usually very good at putting you at your ease and chat away to you as if you were in the barbers 😊.

Best of luck with it.

JedSee.

User
Posted 12 Nov 2024 at 06:54

Hi Mick, Paul from down the road (Gills).

You will find lots of support here, and answers to your questions.  We have all been on this particular journey,  it's all a bit overwhelming at first, but as I've always lived by, no point in worrying until there is something to worry about,  and even then worrying doesn't help anything.  PSA number is still pretty low, and not much away from normal , and as you see can vary from day to day. Mine was 17 one day and 13 ten days later.

My profile here is toadoftoadhall. Lots of people write their journey on the profile.

Fore warned is fore armed.  Get the booklet from here if they still do it, lots of information on treatment if you ever do need it. 

Paul.

 

User
Posted 12 Nov 2024 at 11:46

Nice one Mick.👍 A full detailed profile is very helpful to others, and like you, I found that writing things down, helped me keep track of things.

Good luck mate.

User
Posted 06 Dec 2024 at 15:50
Biopsy results came back negative for cancer.

New PSA level will be passed to GP for monitoring purposes.

A lot of worry for nothing, but a happy outcome.

Like everyone said, one test at a time, don't worry till there is something to worry about.

Mick

User
Posted 10 Dec 2024 at 11:53

Thanks Adrian,   I thought the volume was a bit big, that's why the nurse said they would give me a new baseline PSA level.

I'll see what my GP recommends for the future, hopefully just a yearly PSA test will be enough. 

Mick 

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User
Posted 08 Nov 2024 at 02:38

Originally Posted by: Online Community Member
Am I being a bit of a stress head? Should I just relax until there is more concrete news?

Hello Mick.

Welcome to the forum. 

Have they given you the MRI results. Did it show anything suspicious? Did you get a PIRADS or Likert score?

I'm not medically trained but I doubt that your wait loss is prostate related. Your rise in PSA, which is still relatively low, could be due to other non cancerous prostate conditions.

The timescale for procedures seem reasonable. Your biopsy will shed much more light on your condition. You don't need an enema or to fast for the biopsy. You have no need to fret over the procedure. It's just a bit undignified and some find it a little uncomfortable. 

Most of us have felt anxious during these initial investigations. I know it's difficult but try not to worry and deal with one result at a time.

Good luck mate and please keep us informed how you get on.

 

User
Posted 08 Nov 2024 at 08:27

Things will move fast - they are supposed to be able to tell you within 28 days of the GP referral if you have cancer or not. That couldn't happen if the MRI took 2 weeks to come back.

I didn't have an enema for the biopsy, possibly because they only decided to do it on the spur of the moment when I was in the urology one-stop shop, but this varies from one hospital to another.

Most people diagnosed have no symptoms. Prostate cancer isn't a lifestyle cancer which is caused by eating the wrong things, drinking, smoking, etc, so lots of really healthy people get it, and that's often a surprise.

 

User
Posted 08 Nov 2024 at 08:54

Hi Mick,

Welcome aboard, hopefully your time here is short lived and it turns out to be nothing serious.

I started my journey back in early may of this year and to be honest the timescales you have mentioned seem pretty much the same as mine.

As Adrian has said, there will be a much clearer picture for you post biopsy and you can then plan with the relevant teams what comes next.

When I was at the same stage of you I was stressing myself over what was going to happen over the coming months and trying to research every possible outcome and option. Trust me (and I know it is easy for me to say) but try and just focus on the next step in the process, it will protect your sanity 🙂

Oh and try and keep busy and occupied, it really does help

Dave

User
Posted 08 Nov 2024 at 10:46

Hi Mick

As Adrian pointed out there is the possibility you don't have Prostate Cancer (PC). A guy my age (69) went through the same diagnostic procedures as me, PSA test, MRI and transperineal prostate biopsy to be told he didn't have PC but had benign prostatic hyperplasia (BPH). Your biopsy will determine the diagnosis.

The transperineal prostate biopsy isn't as bad as it sounds and mine was over in 20 mins or so. No real pain just a bit of discomfort afterwards which soon passed.

If it turns out you have PC then you will be on a well trodden treatment pathway that nearly everyone here has been on. Just take things one step at a time. 

We are here to support you, so feel free to post anything anytime.

Good Luck

Len

Edited by member 08 Nov 2024 at 12:41  | Reason: Not specified

User
Posted 08 Nov 2024 at 12:47

Hi Mick

Reference time frames. It took 2 months from my first visit to the GP to being given a diagnosis of prostate cancer,  which was exactly what was explained to me at the time. To be honest it was a very efficient process.

For a more detailed view of my experience have a look at my profile.

 

LEN

User
Posted 08 Nov 2024 at 14:01
If it transpires that you have PCa, it might be insignificant and not call for immediate ttreatment so that you are just offered Active Surveilance (AS).. Should your have more significant/advanced cancer, you will be offered appropriate treatments with the possibility that you may be left to decide between options. PCa is a very individual specific. Don't think a treatment and i results that apply to anybody else will necessarily be the same for you. So when all tests have been completed and discussed by clinicians you will be given a diagnosis and advised of your options. At that stage you need to consider these and pros and cons of various treatments where a choice is offered. But as you have been advised, take one step at a time. It may be that you don't have PCa currently.

i

Barry
User
Posted 09 Nov 2024 at 20:41

Hi Mick,

As others have said, you may not have Prostate Cancer at all, but it's good that you're being given a full MOT.  

I didn't need an enema before my biopsy, but hospitals may differ in their procedures.  As far as the discomfort of the procedure goes, it's much less uncomfortable than, say, having a tattoo, if that means anything to you.  You will hear a click each time they take a small sample and feel a slight 'nick' of the tissue, but that's about it.  You will have to wear one of those hospital gowns and lie back with your legs spread, so that's the most uncomfortable part!  The staff are usually very good at putting you at your ease and chat away to you as if you were in the barbers 😊.

Best of luck with it.

JedSee.

User
Posted 10 Nov 2024 at 18:54

Mick,

Did you get or see a copy of your MRI report and what lesions or abnormalities were noted. You mentioned that you were getting a trans rectal biopsy. Mine was maybe 20 minutes. Did not really feel much, just heard the clicks. I was on my side. It was an MRI fusion directed biopsy due to a spotted lesion on the MRI. You may ask if yours is guided. That way they usually get several cores from that specific lesion and then do the random grid for the others. No real discomfort afterwards and on about your daily life. I did need to take antibiotics for a week to eliminate potential infection which my Urologist said he had never had one in his patients. He believed because he emphasized the importance of taking the antibiotics as instructed. There was no preparation like a colonoscopy, but I only had to inject a fleet enema at home before the procedure. I had no blood in rectum, and only once in urine at time after procedure and it was more clot like visible. Your semen for several weeks will definitely be rust colored but perfectly okay. 

User
Posted 10 Nov 2024 at 21:36

Mick,

In the meantime while you are waiting for your biopsy, immediately request and obtain a copy of your MRI report. That not only identifies any abnormalities, it rates lesion’s under a PIRADS system. It also gives you important information on your prostate, volume, density size 

 

User
Posted 12 Nov 2024 at 06:54

Hi Mick, Paul from down the road (Gills).

You will find lots of support here, and answers to your questions.  We have all been on this particular journey,  it's all a bit overwhelming at first, but as I've always lived by, no point in worrying until there is something to worry about,  and even then worrying doesn't help anything.  PSA number is still pretty low, and not much away from normal , and as you see can vary from day to day. Mine was 17 one day and 13 ten days later.

My profile here is toadoftoadhall. Lots of people write their journey on the profile.

Fore warned is fore armed.  Get the booklet from here if they still do it, lots of information on treatment if you ever do need it. 

Paul.

 

User
Posted 12 Nov 2024 at 11:46

Nice one Mick.👍 A full detailed profile is very helpful to others, and like you, I found that writing things down, helped me keep track of things.

Good luck mate.

User
Posted 13 Nov 2024 at 13:50

Hi Mick,

I not medically trained at all so can only go on my own experience. Did you get a Likert score from the MRI scan, this would give a grading of 1 to 5 on the likelihood of cancer being present.

So you are now at the same place I was (and most of us I assume) where the MRI scan has shown something aint right, but can't show what it is. The medics will use the scan result to target the correct area of the Prostate to take the samples during the biopsy. The biopsy will be the confirmation one way or the other of the presence of cancer.

Best of luck with it mate but it really is straight forward and more humbling than painful

Dave

User
Posted 19 Nov 2024 at 16:55

Mick,

Good luck with the results. My urologist was also in favor of trans rectal biopsies. He stated that certainly by just looking at the numbers and percentage’s , perinuem biopsies had reported a smaller lower infection rate, but felt rectal got a bad rap. He has done hundreds and no patient has had one. His belief is that you definitely need to take antibiotics beginning just before the biopsy and then for a week after. I actually had two different antibiotics to take. He said again from his experience and talking with other Urologists is that he believes patients have not adhered strictly to the post biopsy antibiotic regimen’s. I think it’s important not to scare people in advance of the rectal if that is what their Doctor is doing. 

User
Posted 19 Nov 2024 at 18:29

Mick,

That is interesting why the UK has moved to TP in London. I think because I have a compromised immune system from chemotherapy years ago for non-hodgkins lymphoma that I was on antibiotics longer. 

User
Posted 04 Dec 2024 at 21:09

Hi Mick.

There seems to be a misunderstanding here. I was challenging the comments of the clinician, not anything you said. Especially as Ned@1 seemed to accept what he said as read.

I do not think anything you said was racist. I'm sorry if  I was not clear enough and you interpreted that way. 

I wouldn't even accuse the clinician, of being racist, just wrong. 

User
Posted 04 Dec 2024 at 22:17

It would be interesting to see if there are any prospective clinical studies to back up the consultants opinion.

User
Posted 06 Dec 2024 at 15:50
Biopsy results came back negative for cancer.

New PSA level will be passed to GP for monitoring purposes.

A lot of worry for nothing, but a happy outcome.

Like everyone said, one test at a time, don't worry till there is something to worry about.

Mick

User
Posted 06 Dec 2024 at 23:44

Mick, a nice early Xmas present. At least you have a baseline reading to compare future tests against.

Hopefully you will not need any further intervention.

Thanks Chris 

User
Posted 07 Dec 2024 at 07:50

Hi Mick,

Thanks for the update. I'm very pleased for you. 👍

User
Posted 07 Dec 2024 at 10:11

Thank you guys. The relief is enormous with all the mental preparations I had made to deal with what I thought would be the worst news. With the two areas on my prostate and a Lickert score of 4         I was settled on hearing a bad outcome of the biopsy.

It's easy to say don't worry now that I have a hell of a lot less to worry about. But the advice I was given here to try not to worry about things that may never happen was the best advice I could have received. 

The possibility of a cancer diagnosis is a truly terrifying prospect. But letting your fears get out of control won't help you deal with the process of tests and waiting involved.

I purposely tried not to read too far ahead into possible outcomes and treatments, but its very hard not to pick up negative information which deeply affects your mood etc. 

I received so much support from friends and family and people on this forum during the few months it has taken to arrive at the negative diagnosis. I know this support would only have strengthened had it gone the other way and it is truly amazing how much that support improves your mood and ability to cope with the pressure that going through this horrible process involves.

I have yet to receive my discharge letter but I assume it will tell me a bit more detail about what was found, or rather not found. And hopefully advice about what I need to do in the future regarding PSA testing or whatever. 

I can't imagine how I and my wife would have coped with the results if it had have been cancer, I know we would have, but it would have been a completely different life to the one we can now look forward to. My thoughts are with all those who have not been fortunate enough to get the same outcome as me. And for those who will get the bad news in future. 

I will remain a member of the forum and hopefully provide the kind of sage advice to men and their partners who are forced to board the Prostate roller coaster ride that was given freely to me by this wonderful group of people.

Let's hope testing becomes better and treatment can be improved to make all forms of cancer a thing of history. 

Happy Christmas to one and all and thank you again for the kind support and patience you show to everyone who visits this site.

Best regards always,  Mick. 

User
Posted 10 Dec 2024 at 11:34

Just a quick question about my being discharged back to.my GP. 

The nurse said that my GP would be given a new baseline for my PSA level based on the results of my MRI.  My prostate volume was 65ml apparently,  whatever that indicates.

But the letter from the urology consultant simply said no sign of cancer,  if the patient still has concerns about his prostate he can ask for a repeat PSA test in a year. No mention of any new PSA threshold or anything. 

It just seems a little bit vague to say I fully expected to be told I had cancer based on the Lickert score of 4 on the two areas of concern on my prostate. 

When I rang to ask if someone could explain I was told the nurses were busy ringing all the people who really did have cancer. 

If I'm honest it's left me feeling like a bit of a fraud and that I was the one whining about prostate symptoms,  when it was just their protocols that put me here. 

The whole scoring system looks wrong to me; expressing PSA to two decimal places but then not considering jumpsto be significant,  having a 1 to 5 scoring system for the lickert scale with the top two just separated by the single word VERY, and no explanation afterwards.

I'm very happy to have got the fantastic news that I'm cancer free, but as it says here, they cannot tell you that you don't have cancer, just that they didn't find it in the biopsy samples. They only took three from each area so six samples seems quite minimal?

Any thoughts gratefully received. 

Mick

User
Posted 10 Dec 2024 at 11:49

Hi Mick.

I'm not medically qualified, but I believe a 65 ml prostate is almost double the norm. I think a larger prostate can cause a higher PSA.

As your biopsy was negative I can only assume that the suspicious areas detected by the MRI were inflammation or similar.

User
Posted 10 Dec 2024 at 11:53

Thanks Adrian,   I thought the volume was a bit big, that's why the nurse said they would give me a new baseline PSA level.

I'll see what my GP recommends for the future, hopefully just a yearly PSA test will be enough. 

Mick 

 
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