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Recently Assessed by Specialist Nurses

User
Posted 16 Nov 2024 at 10:50

Hello!


I have been told that I have a swollen prostate,  with evidence of a large tumour.


Recent PSA tests 18.2 and 19.6 over 10 days. Specialists reckon that it is Pc and I have MRI soon.


I find the waiting is tough, especially with worsening symptoms such as ED, difficulty in peeing, fatigue etc.


Seems to me that different areas of NHS have varying ways of diagnosing and treating.


Questions:


If MRI confirms suspicions, is biopsy mandatory?


Does age dictate whether a radical prostatectomy is offered?


Is there an average time interval between MRI and start of treatment?


Thank you


Mike


 


 


 

User
Posted 16 Nov 2024 at 12:41

Hi Mike, sorry to hear about your story so far.


There is a lot to learn in a short space of time whenever problems like this come up.


Some places do a biopsy first and then an MRI scan, which seems like putting the cart before the horse to me. But that's the way the NHS works.


It's by no means mandatory to have a biopsy after your scan, I am having my biopsy on Tuesday after MRI revealed anomalies in my prostate. They asked if I wanted to proceed with a biopsy and I said yes. It's not a risk free procedure,  but then nothing is 100% safe. So I can't imagine why I would have said no.


But it is down to your choice, and knowing as much as you can will help in making these decisions.  No one can do that for you, just advise you.


I'm in very early days and it still feels surreal and daunting to consider things I never thought I would have to. 


I hope the MRI goes well and that if you need a biopsy you will think about it carefully. 


This is a great site, but it does give you so much information and experience that it can overwhelm you at times.  Ignorance is bliss they say, but in this instance I think it's more a case of knowledge is power. 


Take care and stay strong.


Mick 

User
Posted 16 Nov 2024 at 20:14

I am sorry to hear you are in the position of waiting to find out what your situation is and if a diagnosis of cancer made your treatment options.


I think in England now following a raised PSA or concerns following a DRE the next step is usually a MPMRI. This scan identifies any lesions, their location, size, whether they have breached the capsule wall and may also show if nearby lymph nodes are affected. If concerns are raised following the MPMRI the next step is normally a biopsy. A biopsy can more accurately determine the aggressiveness of any cancer and you are normally then given a Gleason score. Sometimes a biopsy will determine other issues such as PNI.


If significant cancer is diagnosed and this is often a Gleason score of 3:4 or greater treatment is offered. Sometimes individuals with a Gleason score of 3:4 will be offered active surveillance. There are a number of different treatment options. Surgery is normally offered for cancer that is contained or where there is not significant spread. It tends to be offered to younger men but older men do have surgery. If you find yourself in need of treatment you should be advised of your options or told why certain treatments are not recommended.


Good luck.


 

User
Posted 16 Nov 2024 at 21:27

Hi Mike,


Be aware that MRI scans do not always show tumors or their extent, The same is true of Biopsies where the cores taken can miss a tumor(s) The advantage of having an MRI first is that it can help the Urologist to take cores from suspicious areas or use a template to cover the Prostate, This is best done through the Perenium which is more accurate and less likely to cause infection than the Truss alternative wheer cores are taken through the Rectum. The Transperineal version may be doner under a General Anesthetic or a combination of local Anesthetic and sedation. I have had both and neither was bad.


Should you have a PCa diagnosis you wlll likely be offered one of the forms of radiation or surgery.if your cancer is considered significant At your sort of age surgery becomes less likely though not impossible. The reason for this is because the majority of Prostatectomies these days are dome using a robot and the way the patient is suspended puts a lot of sstrain on his body.


Unfortunately, there can be quite a wait between tests and scans and even when a patient is diagnosed he may well have to decide between options and particularly in the case of surgery have quite a wait depending how long the Surgeons waiting list is. With EBRT you can usually start with HT pretty well at once as this usually precedes RT. There are plenty of posts from members here on the Pros and Cons of various treatments. A useful place to look if the 'Tool Kit' published by this Charity, https://shop.prostatecanceruk.org//our-publications/all-publications/tool-kit?limit=100


 

Edited by member 16 Nov 2024 at 21:34  | Reason: to highlight link and to correct some of my spelling

Barry
User
Posted 16 Nov 2024 at 22:58

Hi Mick


Good luck for Tuesday!


I don't think that you will get the result for a few days, but do let me know how it goes for you.


My MRI is on Tuesday evening, and I too will be waiting a few days for my result. 


Good luck!


Mike Liverton

Show Most Thanked Posts
User
Posted 16 Nov 2024 at 12:41

Hi Mike, sorry to hear about your story so far.


There is a lot to learn in a short space of time whenever problems like this come up.


Some places do a biopsy first and then an MRI scan, which seems like putting the cart before the horse to me. But that's the way the NHS works.


It's by no means mandatory to have a biopsy after your scan, I am having my biopsy on Tuesday after MRI revealed anomalies in my prostate. They asked if I wanted to proceed with a biopsy and I said yes. It's not a risk free procedure,  but then nothing is 100% safe. So I can't imagine why I would have said no.


But it is down to your choice, and knowing as much as you can will help in making these decisions.  No one can do that for you, just advise you.


I'm in very early days and it still feels surreal and daunting to consider things I never thought I would have to. 


I hope the MRI goes well and that if you need a biopsy you will think about it carefully. 


This is a great site, but it does give you so much information and experience that it can overwhelm you at times.  Ignorance is bliss they say, but in this instance I think it's more a case of knowledge is power. 


Take care and stay strong.


Mick 

User
Posted 16 Nov 2024 at 12:52

Many thanks, Mick, for your message and the advice you gave.


I shall certainly check out my options.


I wish you all the very best on your path, and hope that we may discuss treatments etc as things progress.


Take care!


Mike Liverton


 

User
Posted 16 Nov 2024 at 19:21

Hi Mike.


Yes we can definitely keep in touch about how we are going on.


As I said I'm at the same kind of stage as you, perhaps a step in front as I'm booked in for my biopsy next Tuesday.


I wasn't given any results from my MRI scan, which is kind of a double edged sword. On the one hand knowing the details of what had been found would have let me make a more informed choice about the proposed biopsy. On the other it could have set all kinds of hares running if it had looked bad.


I guess I'll find out more on Tuesday. 


Good luck and keep posting/reading here, you will learn a lot and help others. 

User
Posted 16 Nov 2024 at 20:14

I am sorry to hear you are in the position of waiting to find out what your situation is and if a diagnosis of cancer made your treatment options.


I think in England now following a raised PSA or concerns following a DRE the next step is usually a MPMRI. This scan identifies any lesions, their location, size, whether they have breached the capsule wall and may also show if nearby lymph nodes are affected. If concerns are raised following the MPMRI the next step is normally a biopsy. A biopsy can more accurately determine the aggressiveness of any cancer and you are normally then given a Gleason score. Sometimes a biopsy will determine other issues such as PNI.


If significant cancer is diagnosed and this is often a Gleason score of 3:4 or greater treatment is offered. Sometimes individuals with a Gleason score of 3:4 will be offered active surveillance. There are a number of different treatment options. Surgery is normally offered for cancer that is contained or where there is not significant spread. It tends to be offered to younger men but older men do have surgery. If you find yourself in need of treatment you should be advised of your options or told why certain treatments are not recommended.


Good luck.


 

User
Posted 16 Nov 2024 at 21:27

Hi Mike,


Be aware that MRI scans do not always show tumors or their extent, The same is true of Biopsies where the cores taken can miss a tumor(s) The advantage of having an MRI first is that it can help the Urologist to take cores from suspicious areas or use a template to cover the Prostate, This is best done through the Perenium which is more accurate and less likely to cause infection than the Truss alternative wheer cores are taken through the Rectum. The Transperineal version may be doner under a General Anesthetic or a combination of local Anesthetic and sedation. I have had both and neither was bad.


Should you have a PCa diagnosis you wlll likely be offered one of the forms of radiation or surgery.if your cancer is considered significant At your sort of age surgery becomes less likely though not impossible. The reason for this is because the majority of Prostatectomies these days are dome using a robot and the way the patient is suspended puts a lot of sstrain on his body.


Unfortunately, there can be quite a wait between tests and scans and even when a patient is diagnosed he may well have to decide between options and particularly in the case of surgery have quite a wait depending how long the Surgeons waiting list is. With EBRT you can usually start with HT pretty well at once as this usually precedes RT. There are plenty of posts from members here on the Pros and Cons of various treatments. A useful place to look if the 'Tool Kit' published by this Charity, https://shop.prostatecanceruk.org//our-publications/all-publications/tool-kit?limit=100


 

Edited by member 16 Nov 2024 at 21:34  | Reason: to highlight link and to correct some of my spelling

Barry
User
Posted 16 Nov 2024 at 22:58

Hi Mick


Good luck for Tuesday!


I don't think that you will get the result for a few days, but do let me know how it goes for you.


My MRI is on Tuesday evening, and I too will be waiting a few days for my result. 


Good luck!


Mike Liverton

User
Posted 16 Nov 2024 at 23:12

Hello Barry!


Many thanks for taking the time to write such a detailed message.


You have had quite the journey, so far, and your experiences are really impressing upon me that I must cultivate some patience - as I am realising that nothing happens quickly on this path.


I am so grateful for your information, and will definitely check out the tool kit.


All the best -


Mike Liverton


 


 

User
Posted 16 Nov 2024 at 23:28

IDK2


So grateful for your detailed reply, which answered many concerns.


I am realising that nothing will happen overnight, and that I must resign myself to being patient in between appointments.  It is tough, as you must know only too well, that the brain plays tricks.


Anyway, my MRI is in two days and there will be an interval before any result comes through.


I shall keep in touch.


Thanks again.


All the best -


Mike Liverton


 


 


 


 

 
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