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Questions about new diagnosis

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User
Posted 19 Dec 2024 at 18:32

Thanks both

Jon - I've already had a bone scan which they said was clear at the time.  I assumed this was standard practice during diagnosis. Or maybe it depends on your PSA levels.  The one with the 3 hour wait for an injection to take effect before the scan.

Or do you mean you got another one pre-op ?

Thanks

John

 

User
Posted 20 Dec 2024 at 09:02

Hi John,

I think you are right, a bone scan probably is standard practice and yes, the one where they put the dye in and you have to wait 3 hours. My health authority didn’t do one based on PSA as mine was down to 1.0 and then 0.85 but it seems the decision to do one was made once my grade went up from Gleason 6 to 7 and they recommended surgery. 

The shock for me and what caused increased anxiety that I feel could have been avoided, was that nobody mentioned a bone scan to me and why they were going to be doing one. I just got a letter through the post one day leaving me to draw my own, most likely incorrect, conclusions. Sounds like your medical team handled things better. 

It was just under 2 months from biopsy results to surgery for me and I had just the one bone scan.

Jon

User
Posted 28 Dec 2024 at 16:57

Hi

Hope everyone had a good Christmas, circumstances permitting.

Random question and don't know if it's possible to get, but is there anywhere to find out more information about particular surgeons (NHS Scotland) ?   The main big piece of advice for men going for surgery is to research and find the best surgeon possible, which obviously makes sense. 

Choosing a particular surgeon is not really going to be an option for me here but I would like to try to find out any information I can when I actually get a date and find out who is performing the surgery.

Thanks

John

 

 
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