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I just received a PSA result and i'm so worried

User
Posted 24 Nov 2024 at 16:04

As the title says, I just received (Friday) an abnormal PSA result:

  • PSA: 5.3
  • Free PSA: 0.9
  • PSA Ratio: 17

I'm 54 years old and my PSA was normal (2.1) 2 years ago.

The results came after seeing my doctor for increased and sometime urgent urination; I was more fearful of a possible diabetes onset and this took me by surprise.

I will need to see a urologist, but right now I can't even sleep, thinking of what could happen.

I know it could be other things than cancer (bph, prostatitis, etc.) but I'm so worried.

Edited by member 24 Nov 2024 at 21:21  | Reason: correction and added information

User
Posted 14 Dec 2024 at 19:30
An update:

I got my second PSA test result: still a bit high (4.6) but lower than the first (5.3). I will discuss the results with my urologist and see what he wants to do next, but right now I feel a bit less anxious.

User
Posted 24 Nov 2024 at 22:42

I wouldn't be too worried about that result. There are so many things other than cancer which could cause elevated PSA. Please now read to the end of this post before opening a bottle of wine.

Obviously any article on any disease should finish: "... and if you have x,y,z symptoms see your doctor" . The truth is 99% of prostate cancer has no symptoms, so the journalist is left with an article which can't have the standard ending, and no editor is going to let an article get published which doesn't follow the narrative, he certainly doesn't want readers phoning up and saying "well what are the symptoms?". The journalist thus clutches at straws and pesters a urologist and forces her to come up with a symptom, so she reluctantly says "in advanced cases the symptoms are poor urine flow, etc..." the editor then dumps the 'advanced cases' because readers 'get confused' by science.

So your urine problems are almost certainly to do with your prostate (probably inflammation) and if it is inflammation, then that is almost certainly the cause of your elevated PSA.

If prostate cancer were causing your urine problems, it would be so advanced that your PSA would be in the hundreds, or thousands.

A lot of men including myself are diagnosed with cancer after having problems peeing. You might think that proves that it is a genuine early symptom of prostate cancer. Well it isn't. Nearly ever man's prostate once over 60 will have a little bit of cancer. The only time any doctor does any examination of a prostate is when a man comes in with peeing problems, which generally start in his 50s. As peeing problems is the only reason to examine a prostate, and most of them have (insignificant) cancer. It is no wonder that people think there is a connection. Every time I look out the window the sky is blue, but the sky isn't blue cause I'm looking out of windows. Much more succinctly "correlation is not causation".

Now back to your case. Yes we have had cases of people with PSA of about 5 who had cancer, and plenty who didn't, we have had people in the early 50s with cancer. (I was 53 years old, PSA 25, and about 95% cancer in prostate). We have had men with urine problems with cancer and men without urine problems with cancer.

You definitely need to see a urologist and sort out your urine problems. They may find cancer as well, but it is not likely to be serious yet, and it is very treatable when caught early.

You may as well open the wine now, not to celebrate, just because everything seems better after a bottle or two of wine.

 

Edited by member 24 Nov 2024 at 22:43  | Reason: Not specified

Dave

User
Posted 24 Nov 2024 at 22:53

Hold your horses! Just take things one step, one test at a time.

I am in the same boat as you, raised PSA picked up by routine blood test. You will need a second blood test to check the first one wasn't a fluke.

Wait until that's been do enough to think about what cones next. 

Looking at all the possible outcomes will blow a fuse. Especially looking at treatments and side effects. You are nowhere near that yet. 

I was advised here to take things just one test at a time and it's good advice.

I had to have an MRI which came back requiring a biopsy.

That was done last Tuesday so I am awaiting the result in the next week or so. Only then will I hope to have some concrete news about what I might or might not be dealing with. 

Expending energy worrying before then is futile.

Stop jumping ahead and seeing only the worst outcome. I know we are all different and deal with things in our own way. But you will make yourself believe you have cancer before the tests are even done. 

Trust the people on here, they have been through it or, like me and you, are currently going through the mill.

It's not an easy journey but you can make it far better by managing your worry.

User
Posted 09 Dec 2024 at 21:15

Hi Again

Just for some further info for you My husband was virtually continent  straight away only needing a pad for leakage coughing sneezing, he had a few minor dribbles early just because he wasn’t near a toilet, he wore a pad until this month I think for piece of mind in case of an accident! He now dosnt have any problems coughing etc. He did have one accident the week of his surgery. That’s been his experience. 

With regard to pain he did have some discomfort for the first week not terrible but enough to want painkillers but it was short lived. 

With regard to erections his back story is that he had the prosectomy and one side of the nerve bundles taken. The surgeon said he thought he would start to get natural erections again after time and indeed he has but he also had the aid of a device that he has used with I think has helped in that direction! A friend of his also had prostectomy at similar time but no nerves taken and he has had little or no change to his sex life. 


It is true that a DRE dosnt always pick up as my husbands was also found to be u remarkable but others do have cancer picked up this way. 

I know it’s hard to not worry when you suffer from anxiety but reading forums you do normally hear the worse end of scenarios as people who either find they don’t have cancer or get over it we’ll tend not to be posting much about their experiences. 

take care 

 

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User
Posted 24 Nov 2024 at 21:52

As you stated it could be several non cancerous reasons for the increase including an outlier test that was not accurate. Likely a repeat test will be first. It could be cancer but you have several more tests ahead of you before that could be diagnosed including the MpMRI and then if necessary a biopsy. Even if cancer is detected from the biopsy depending on the pathology Gleason score the cancer could still be considered a low, intermediate or advanced grade. I have seen high PIRADS score from an MpMRI come back benign so even MRI results that might concern you are not what they turn out at Biopsy. Regardless the diagnosis of prostate cancer is a long journey with years and years typically. I feel blessed it was the cancer I was diagnosed with as you can read over and over of all the patients diagnosed with pancreatic cancer, or stomach, esophageal, brain, colon, etc. and pass very quickly. You would be here a long time, many years even with the diagnosis. I know it is easy to say don’t worry, but keep any diagnosis in perspective as what many others have knowing that current patients getting diagnosis of prostate cancers are getting treatments not even around not that long ago that someone only received in a clinical trial. 

User
Posted 24 Nov 2024 at 22:08

Thank you for your reply

Originally Posted by: Online Community Member
As you stated it could be several non cancerous reasons for the increase including an outlier test that was not accurate.

True but the value more than doubled in just 2 years (it was normal in 2015, 2018, 2022) and it's accompanied by some urinary symptoms.

Originally Posted by: Online Community Member
I feel blessed it was the cancer I was diagnosed with as you can read over and over of all the patients diagnosed with pancreatic cancer, or stomach, esophageal, brain, colon, etc. and pass very quickly. You would be here a long time, many years even with the diagnosis. I know it is easy to say don’t worry, but keep any diagnosis in perspective as what many others have knowing that current patients getting diagnosis of prostate cancers are getting treatments not even around not that long ago that someone only received in a clinical trial.

You're way more optimistic than I am!

From what I read, all treatments can cause a lot of side-effects (short and long term).

 

 

Edited by member 24 Nov 2024 at 22:09  | Reason: Not specified

User
Posted 24 Nov 2024 at 22:42

I wouldn't be too worried about that result. There are so many things other than cancer which could cause elevated PSA. Please now read to the end of this post before opening a bottle of wine.

Obviously any article on any disease should finish: "... and if you have x,y,z symptoms see your doctor" . The truth is 99% of prostate cancer has no symptoms, so the journalist is left with an article which can't have the standard ending, and no editor is going to let an article get published which doesn't follow the narrative, he certainly doesn't want readers phoning up and saying "well what are the symptoms?". The journalist thus clutches at straws and pesters a urologist and forces her to come up with a symptom, so she reluctantly says "in advanced cases the symptoms are poor urine flow, etc..." the editor then dumps the 'advanced cases' because readers 'get confused' by science.

So your urine problems are almost certainly to do with your prostate (probably inflammation) and if it is inflammation, then that is almost certainly the cause of your elevated PSA.

If prostate cancer were causing your urine problems, it would be so advanced that your PSA would be in the hundreds, or thousands.

A lot of men including myself are diagnosed with cancer after having problems peeing. You might think that proves that it is a genuine early symptom of prostate cancer. Well it isn't. Nearly ever man's prostate once over 60 will have a little bit of cancer. The only time any doctor does any examination of a prostate is when a man comes in with peeing problems, which generally start in his 50s. As peeing problems is the only reason to examine a prostate, and most of them have (insignificant) cancer. It is no wonder that people think there is a connection. Every time I look out the window the sky is blue, but the sky isn't blue cause I'm looking out of windows. Much more succinctly "correlation is not causation".

Now back to your case. Yes we have had cases of people with PSA of about 5 who had cancer, and plenty who didn't, we have had people in the early 50s with cancer. (I was 53 years old, PSA 25, and about 95% cancer in prostate). We have had men with urine problems with cancer and men without urine problems with cancer.

You definitely need to see a urologist and sort out your urine problems. They may find cancer as well, but it is not likely to be serious yet, and it is very treatable when caught early.

You may as well open the wine now, not to celebrate, just because everything seems better after a bottle or two of wine.

 

Edited by member 24 Nov 2024 at 22:43  | Reason: Not specified

Dave

User
Posted 24 Nov 2024 at 22:48

Originally Posted by: Online Community Member

...True but the value more than doubled in just 2 years...

And if it is inflammation and it is treated it will halve in about a month. A steady increase in PSA is much more indicative of cancer than one high test.

Dave

User
Posted 24 Nov 2024 at 22:53

Hold your horses! Just take things one step, one test at a time.

I am in the same boat as you, raised PSA picked up by routine blood test. You will need a second blood test to check the first one wasn't a fluke.

Wait until that's been do enough to think about what cones next. 

Looking at all the possible outcomes will blow a fuse. Especially looking at treatments and side effects. You are nowhere near that yet. 

I was advised here to take things just one test at a time and it's good advice.

I had to have an MRI which came back requiring a biopsy.

That was done last Tuesday so I am awaiting the result in the next week or so. Only then will I hope to have some concrete news about what I might or might not be dealing with. 

Expending energy worrying before then is futile.

Stop jumping ahead and seeing only the worst outcome. I know we are all different and deal with things in our own way. But you will make yourself believe you have cancer before the tests are even done. 

Trust the people on here, they have been through it or, like me and you, are currently going through the mill.

It's not an easy journey but you can make it far better by managing your worry.

User
Posted 25 Nov 2024 at 23:15

Hi for what it's worth  I found out in July my psa was 30, worried beyond belief,  I was put on the 2ww and also went private,  mri, ct, bone scan and within  4 weeks had by biopsy.  It came back as prostrate cancer, gleason  3 +4 

My world fell apart for a couple  of weeks  then I realised  that there was nothing  I could do about it so I had to get on with it.

I had private  health  care, but it didn't cover me for hormone  and radiotherapy but would cover the operation. I went from private  to nhs overnight,  2 days later I started my hormone therapy  which I've been on for 3 months. I'm still working,  but I do get tired but can't sleep.

I have a further  blood and psa test next week  then I go to hospital  again on 19th December for second  ct scan and hopefully  given a date for radiotherapy.

I was given the choice of removal, but in the end decided  on rt and ht ,why because  I'm over weight  and  didn't  fancy  the risk of incontinence. 

Then only real advice I can give is   trust your team, Dr's nurses etc they will always  support  you. It's a mind game stay positive, it's curable,  yes it's a pain  in the a!!e but stay positive. Hopefully  you have family  to support  you, at times it's frustrating   loss of strength  , insomnia,  etc but I'm sure the outcome will be a positive  one. Just don't expect everything to happen  overnight,  it's a slow process. Listen to your body, I'm in bed most days at 19.30 can't sleep  till about 02.00am hence this reply but other than that tske it easy. 

My work  has been supportive,  I tske extra breaks...I just carry on but now realise  that fir the time being  I can't do what I use to. I was hard telling  people but  the support  has been good.

In short if you have PC welcome  to the club, you will be fine I'm sure  just keep  your chin up.

Sorry there is not much medical  guff in this reply, some people  seem to know every  little thing, personally  a little  ignorance is better,  or thsts how I see it.

Take care

User
Posted 26 Nov 2024 at 04:01

Originally Posted by: Online Community Member
My world fell apart for a couple  of weeks  then I realised  that there was nothing  I could do about it so I had to get on with it.

I feel you're all way more courageous and optimistic than I am. So far I have only an elevated PSA result and I'm panicking :(

Originally Posted by: Online Community Member
Hopefully  you have family  to support  you, at times it's frustrating   loss of strength  , insomnia,  etc but I'm sure the outcome will be a positive  one.

Sadly, I have no family or close friends to help me through this.

User
Posted 26 Nov 2024 at 04:14

Let's hope it's not PC, but if it is, then yours psa is low, and it's definitely  treatable and curable .I'm sorry  you are on your own. Use this website,  and post all your questions,  someone will respond.  It's this site and people's responses that gave me positivity 

Also don't google stuff it's always  gloomy and wrong. Just find a good support group. I joined one as well  as this site, and spoke in person to people who have gone through  PC  And can answer the questions.  Good look keep us all posted on your progress. 

User
Posted 26 Nov 2024 at 06:19

Sadly, I have no family or close friends to help me through this

I'm sorry to hear that.  With the news of a raised PSA level your stress levels can go through the roof.  Mine was 3.9 at the first test and 4.84 at the next one just six weeks later. Pretty low, but the rise had me worrying. Coming here reassured me that it was not something to worry about until other tests had been done. 

I'm lucky to have a very supportive wife, family and friends around me. Since the process started there has been a change in people I have told, even people I just meet while out dog walking. They have more empathy, a little more time, that bit of support. Not sympathy, genuinely well meant interest in you.

Even though you say you have no family or close friends,  no man is an island. There are people near to you who will come good if you need them. 

And you have a big circle if friends here, we all know the fear and worry that problems with this tiny gland can generate in a man. But we also know the great support that can come from people you never thought would be there for you.

It's early days, try not to get too ahead of the game, take things one step at a time and keep on talking to people, either here or real world. 

Mick 

Edited by member 26 Nov 2024 at 06:21  | Reason: Amended mistake

User
Posted 26 Nov 2024 at 10:11

Originally Posted by: Online Community Member

Sadly, I have no family or close friends to help me through this.

Hello mate. 

You might not have any 'real' close friends to help you through this, but you've got an army of cyber friends on here, who'll support you all the way. 👍

User
Posted 29 Nov 2024 at 00:04

Some good news (after a stressful week):

I'm back from my first appointment with the urologist: prostate is a bit big, but DRE is normal.

Next step will be another PSA test in a few weeks and if still high an MRI.

User
Posted 29 Nov 2024 at 06:15

Great  news, fingers crossed 

User
Posted 29 Nov 2024 at 07:41

Originally Posted by: Online Community Member

Great  news, fingers crossed 

But not during a DRE. 😲

Joking apart. Good luck with your next test, psainfo. 

User
Posted 01 Dec 2024 at 06:17
My anxiety is creeping back up.

I thought that a normal DRE would be good news, but now I see some articles on this website, among others, that show that it misses a lot of cancers and that PSA is a better indicator.

My urologist didn't seem worried, but I guess this next PSA test will determine what 2025 will be like for me.

User
Posted 01 Dec 2024 at 08:36

It's a roller coaster ride we are all on, some days it's up, others its down.

The next PSA test is your focus for now, waiting for the result will be an anxious time.  For my part the initial test was just part of a routine health check. So there was no worry. The follow up blood test was just to show the first was a blip, so again I wasn't even waiting for the result. In that respect I've been lucky, very little anxiety.

I think there are a few things that can elevate your PSA on the day of the test, I was certainly told not to masturbate or do heavy exercise before the blood test but others here might know more.

Just take it one test at a time, no need to set your hair on fire before you need to. 

Mick 

 

User
Posted 07 Dec 2024 at 09:19

The more I read about:

- normal vs abnormal values of PSA and Free PSA ,

- probabilities of cancer or bph or prostatitis,

- side-effects of biopsies,

- consequences of treatments,

the more I'm panicking instead of finding some hope.

And since I have no one to talk to, I keep ranting here.

The only positive part is that the urinary symptoms seems to have more or less resolved themselves.

User
Posted 08 Dec 2024 at 00:25

Use this site, it what we all do, share stories,  give advice, everyone has different  experiences. 

Once you have a biopsy,  you will know and you can take it from there. 

I found  my biopsy painless, 17 cores, drove my self home..

Results were not what  I wanted ,gleason  (3+4) but onto the next stage. 

I'm not being flippant,  but there is bugger all you can do about if it is PC  it's treatable , yes you get side effects,  for me it's insomnia, 2-3hours sleep  aday, but I'm still working,  and getting  out and about . As I said one step at a time, my experience  is nothing  moves fast, but somehow it does get done.

As I said just post your questions,  someone will have had similar  experiences,  and can advice you what worked  for them.

Chin up, just hang in their.

User
Posted 08 Dec 2024 at 07:42

Hi there 

it’s a stressful time and having no one to discuss it with makes it even harder I understand that! 

You have several positives to think about firstly your PSA is low in the scheme of things and the urologist could not feel a cancer, so all that is good! 

Even if it is cancer then the likelihood of treating  to cure is on your side odds wise with your PSA being so low. 

My husband was told that spread is very unLikely with low level PSA such as yours. 

My husband had a PSA of 5.6 and was diagnosed with Gleason 9 PC he had his prostate removed this June aged 58 he is now pretty much continent all the time! He recovered well and is back to living life to the full! His consultant is very optimistic for his future and that is even with Gleason 9 disease which is not really the norm to have this high grade disease at an earlier age, so what I’m saying is it’s quite possible you have not got PC BUT if you have then things look promising for you! 

I hope you soon get some peace of mind and your anxiety eases 

User
Posted 08 Dec 2024 at 23:39

Hi,

Originally Posted by: Online Community Member
You have several positives to think about firstly your PSA is low in the scheme of things and the urologist could not feel a cancer, so all that is good! 

It is true that DRE was normal and, that day, I thought it was really good news (more likely BPH than cancer). But reading more (https://prostatecanceruk.org/about-us/news-and-views/2023/03/dre-aren-t-good-at-catching-prostate-cancer-early), it seems that DRE can miss a lot of cancers.

Originally Posted by: Online Community Member
Even if it is cancer then the likelihood of treating  to cure is on your side odds wise with your PSA being so low.

I know that the treatments are effective in curing the person, especially if caught early. I'm more afraid about what will happen afterwards: What will I still be able to do? What will I no longer be able to do? What about pain? Permanently? For how long? (you say it yourself, it took your husband from June to December to be continent again).

Originally Posted by: Online Community Member
I hope you soon get some peace of mind and your anxiety eases

I hope so too, but as I am already an anxious person in everyday life, this is pushing me to the edge. 

Thank you for your reply and please say Hi to your husband for me.

Edited by member 09 Dec 2024 at 00:50  | Reason: Not specified

User
Posted 09 Dec 2024 at 21:15

Hi Again

Just for some further info for you My husband was virtually continent  straight away only needing a pad for leakage coughing sneezing, he had a few minor dribbles early just because he wasn’t near a toilet, he wore a pad until this month I think for piece of mind in case of an accident! He now dosnt have any problems coughing etc. He did have one accident the week of his surgery. That’s been his experience. 

With regard to pain he did have some discomfort for the first week not terrible but enough to want painkillers but it was short lived. 

With regard to erections his back story is that he had the prosectomy and one side of the nerve bundles taken. The surgeon said he thought he would start to get natural erections again after time and indeed he has but he also had the aid of a device that he has used with I think has helped in that direction! A friend of his also had prostectomy at similar time but no nerves taken and he has had little or no change to his sex life. 


It is true that a DRE dosnt always pick up as my husbands was also found to be u remarkable but others do have cancer picked up this way. 

I know it’s hard to not worry when you suffer from anxiety but reading forums you do normally hear the worse end of scenarios as people who either find they don’t have cancer or get over it we’ll tend not to be posting much about their experiences. 

take care 

 

User
Posted 09 Dec 2024 at 23:28

Just to add to the above post about people having positive experiences not posting.

I had a PSA of 3.9 completely out of the blue on a routine health check. The second test six weeks later was 4.8.

That triggered an MRI scan which found two lesions the lickert score being 4 out of 5.

That led to a transrectal biopsy a couple of weeks ago.

I managed not to get too scared about what might come next if the results of the biopsy were bad. I did try to prepare myself for bad news because things did look quite bleak from my point of view; significantly worse than your single raised PSA result.

But I didn't dwell on how a cancer diagnosis and treatment would affect my life. There simply is no point in doing so until you have confirmation of cancer being present. 

I understand you saying you are a worrier but you really are not doing yourself any favours by looking too far into the future, to things that may never happen. Your second PSA test may be below the threshold, an MRI scan may show no issues with your prostate,  a biopsy may find no cancer, even if it does the cancer may be one that can be treated or even not require treatment at all.

When my letter arrived this morning with the results of my biopsy it simply said no sign of cancer had been found and that I was being discharged. 

I was obviously relieved, but can you imagine how I would have felt if I had expended so much emotional energy on worrying needlessly.

Many people have advised you to try and take a step back, see what has happened and deal with it rationally. Please try to take on board what they are saying, you really do not need to torture yourself at this stage of the game. Stop looking at the nasty experiences of others and reading too much into your psa score. 

There's a way to go yet before things get really stressful, so do yourself a big favour and save your energy for if things develop. But there is more of a chance that this will be nothing, really the numbers are on your side.

 

 

 

User
Posted 14 Dec 2024 at 19:30
An update:

I got my second PSA test result: still a bit high (4.6) but lower than the first (5.3). I will discuss the results with my urologist and see what he wants to do next, but right now I feel a bit less anxious.

User
Posted 18 Dec 2024 at 01:40

The urologist find that the PSA is still too high for my age (especially relative to the normal value 2 years ago), so:

- a new PSA test at the end of January

- an MRI in February-March

 which means 3 months to keep worrying...

User
Posted 18 Dec 2024 at 03:14

Hi, yes your psa is a little  high,  but relatively low, if they were really  concerned they would  bring it forward, and you would be having  a biopsy I imagine they are giving  it a few months to get an accurate  reading  etc.

Even having an mri is not conclusive they are all indicators,  unfortunately a biopsy is the only definitive answer. I'm nor sure if you have  medical insurance? If so then a psa and mri would  be done in days.

Keep the faith. 

User
Posted 18 Dec 2024 at 03:30

Thank you for your reply,

Originally Posted by: Online Community Member

Even having an mri is not conclusive they are all indicators,  unfortunately a biopsy is the only definitive answer.

The urologist feels the PSA is not high enough to do a biopsy right away.

Originally Posted by: Online Community Member

I'm nor sure if you have  medical insurance? If so then a psa and mri would  be done in days.

He wants to wait 6 weeks before doing another PSA test (3rd one); as for the MRI, I could decide to pay (about 1000$) and do it in a private clinic or wait until February-March and do it at the hospital.

User
Posted 18 Dec 2024 at 06:38

You could spend alot of money on a MRI but I'd be following your consultants advice.

Join the rest of us at this time of year, and waste your hard earned cash on unwanted Xmas gifts.🙂

Joking apart. 

You obviously suffer from anxiety issues but try to remember that:

“Worry never robs tomorrow of its sorrow, it only saps today of its joy.” 

 
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