Hello!
My wife told me to post this thread to gain a little in-site as to what others afflicted with PC think.
I am on Prostap, Apalutamide, Cyproterone Acetate, Adcal D3, Lansoprazole and have been for 15 months. The fatigue side effects are proving debilitating having to sleep up to twice during the day and still going to bed at 8:45 (1/2 time during the football). Nights are not particularly productive as I suffer from nocturia due to a reduced size bladder (to the size of a plumb!), visiting the toilet 4 to 5 times every night.
My oncologist described my fatigue as 'multi factoral', but suggested I come off the apalutamide (120mg - 4 tablets every morning) for 2 weeks, look for improvements in my energy levels, then go back on 3 tablets a day if there were marginal improvements. If no improvement detected over the 2 weeks, then just go back on to 4 tablets.
My oncologist was clear that I will still be on the apalutamide whatever the out come of my experiment, but not sure as to at what level of dose.
When you are told that you need to take this medication for the rest of your life..... and then 15 months later told that the dose could be changed. It is just a 'mindset' on my behalf. What if.... in 6 or 9 months time I get a concerning PSA blood test. Will I blame myself for coming off the apalutamide, if only for 2 weeks, or a reduced dose.
Question:
Has anybody tried coming off apalutamide for any length of time if only temporarily? And did that have any significant impact on your quality of life?
Thank you