Hi Anthony,
I've been in the same boat. They kept telling me it would be psa 0.2 before anything happened. Then last psa test in August it was unchanged at 0.11 but the nurse said I'd been asking to go to Oncology and there'd been a change and I could be referred to Oncology. I got an appointment a month later with a Consultant.
She said a lot that was quite different than I'd been told before. She offered to do Radiotherapy at 0.11 without a scan and gave her logic. She also said I could have a psma test at another hospital at some point a bit later and before the 0.5 I'd been told before. She also said that at the rate it's increasing it could carry on as is until I was 90 and they'd then put me on hormones. She said the rate of change doesn't usually change that much. I chose to wait until it got to around 0.2 and see if the rate of change was still slow as it could be 3yrs away and I very much prefer to have a scan first. 0.2 is a bit low for a scan but it depends what's there.
So the questions are more in your own court. Is your rate of psa change stable, would you tolerate waiting, would you want a scan before the RT. Do you want to take a chance and get rid of it now without a scan. Those options might not be offered but you can ask.
The good thing is I'm now on Oncology's books and the Consultant has her own set of notes. I now have my 4 month telephone appointments with Oncology Macmillan Nurses.
Good luck with it, let me know if you've any queries, Regards Peter
p.s. your profile says psa = 1.0 not 0.1.
p.p.s. I was told that RT without a scan has I think it was 53% success although the Consultant said her record was nearer 60%, I think it was 57%.
Edited by member 28 Nov 2024 at 15:43
| Reason: as in p.s. p.p.s.