I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Treatment options - all experiences and nanoknife

Email this conversation Print this conversation
User
Posted 18 Dec 2024 at 16:23

I was diagnosed about 5 years ago and following, MRI and biopsies have lived with this condition on a Watchful Wait with 6 monthly check-ups.

My PSA is now climbing but the most recent MRI indicates nothing new, hence in January I will undergo further biopsies with an anticipation on taking the next step to commence a treatment.

Obviously, my urology consultant is all for irreversible complete prostectomy but I am really put off by the prospect of a longer recovery and living with incontinence. Hence I am keen to hear/read of experiences by those who have been through this.

I have explored other forms of treatment and am a c andidate for brachyotherapy pending biopsy results. Again, any feedback on actual experience is welcomed.

The treatment that appeals to me most is that of nanoknife or electrocoporation (did I spell that right?). There seems little data on this treatment but if anyone has experience or can shed more light on this I would love to know. I know it is offered on the NHS through UCL London and may ask to be put forward bu any further information beyong that on the UCL website would be really welcome. I realise as a relatively recent form of treatment data may be limited but am really keen to learn more.

Thanks in advance for taking time to reply.

 

 

User
Posted 18 Dec 2024 at 16:58

Hello and welcome to the forum.

If you don't mind, could you please give us your current PSA level and what it's risen from, and your cancer staging and Gleason score. These are important factors when considering having radical treatment.

Your PSA may have risen for other reasons  than cancer progression. The biopsy results will give a clearer picture. It is possible that you may not require any further treatment.

There are lads on here that have had brachytherapy and some with knowledge of nanoknife procedure.

You can use the search box to find conversations on these treatments.

Best of luck.👍

Edited by member 18 Dec 2024 at 17:12  | Reason: Typo

User
Posted 18 Dec 2024 at 19:36

I have been asked if I can provide technical details. Of course I do not mind but until next week I am out of the country without access to my hospital letters, so this is from memory:

When diagnosed psa was abot 7.2 but dropped to about 6.8 and held reasonably steady until just over a year ago when ir rose from about 7.8 to around 10 at the last psa, hence the next biopsies on 8th Jan.

The last biopsies 2 years ago indixated 10% pre cancerous in 1 coew sample but I cannot remember the location.

I think the combined score was 7.

As I said, all this ia from memory so it may be updated on my return to the UK.

User
Posted 18 Dec 2024 at 20:13

Hi again.

Thanks for the additional information. I'm not medically trained, but a PSA rise from 7 to 10, over 5 years doesn't appear too concerning, especially as you are 74 years old. Your latest MRI didn't detect any disease progression.

It seems your cancer staging is T2a and I assume, as you were deemed suitable for active surveillance, that your last biopsy showed Gleason 7 (3+4) and not (4+3)

As I said, your next biopsy will shed more light on your current condition.

I am slightly mystified why now, your consultant is suggesting you need radical treatment. Perhaps it's because your PSA has reached double figures, but I suspect he/she'll base further treatment on your next biopsy results.

Please keep us updated.

 

Edited by member 18 Dec 2024 at 20:58  | Reason: Additional text

 
Forum Jump  
Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2024 Prostate Cancer UK