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Bicycle tour from Norway to Austria

User
Posted 08 Jan 2025 at 21:28

Hello, 


I have been a member here since I was diagnosed with a T3b N1 M0  gleason 8 in Feb of 2023.  I received my treatment in Germany, and it was recommended that I be treated quite aggressively.  I wrote about this and many things in my profile, but it is quite long winded.  In short, I had surgery to remove my prostate and pelvic lymph nodes, began 37 fractions of radiation five weeks after surgery, and was placed on 2 to 3 years of ADT that began when I started radiation.  I was also put on Bicalutamide for nearly 2 months prior to my surgery to shrink the tumor.  


The good news is my PSA has remained at 0.0 since the surgery, and I hope to be coming off my ADT,  Orgovyx (My pill form of ADT since the shots I began with gave me heart palpitations.) soon.  


Since my cancer, I have viewed the world differently.  There is still much uncertainty in my future, and I know this.  Still, 2024 was possible the best year of my life. I was fortunate this past year to get to climb to the bottom of the Grand Canyon, camp 2 nights, before climbing back out.  Then last summer, I flew to Tromsø Norway and rode my fully loaded bicycle back to my home in Austria.  I decided to make a video of it and tell a little about my cancer story.  Mosty, I wanted it to be about the beauty in this world.  I will post the link to the youtube video below if anyone is interested in watching it.  I hope that perhaps it can inspire others with similar situations.  


https://www.youtube.com/watch?v=cH8PKkYwNWM


Best wishes to everyone.


Robert


 


 

User
Posted 08 Jan 2025 at 21:28

Hello, 


I have been a member here since I was diagnosed with a T3b N1 M0  gleason 8 in Feb of 2023.  I received my treatment in Germany, and it was recommended that I be treated quite aggressively.  I wrote about this and many things in my profile, but it is quite long winded.  In short, I had surgery to remove my prostate and pelvic lymph nodes, began 37 fractions of radiation five weeks after surgery, and was placed on 2 to 3 years of ADT that began when I started radiation.  I was also put on Bicalutamide for nearly 2 months prior to my surgery to shrink the tumor.  


The good news is my PSA has remained at 0.0 since the surgery, and I hope to be coming off my ADT,  Orgovyx (My pill form of ADT since the shots I began with gave me heart palpitations.) soon.  


Since my cancer, I have viewed the world differently.  There is still much uncertainty in my future, and I know this.  Still, 2024 was possible the best year of my life. I was fortunate this past year to get to climb to the bottom of the Grand Canyon, camp 2 nights, before climbing back out.  Then last summer, I flew to Tromsø Norway and rode my fully loaded bicycle back to my home in Austria.  I decided to make a video of it and tell a little about my cancer story.  Mosty, I wanted it to be about the beauty in this world.  I will post the link to the youtube video below if anyone is interested in watching it.  I hope that perhaps it can inspire others with similar situations.  


https://www.youtube.com/watch?v=cH8PKkYwNWM


Best wishes to everyone.


Robert


 


 

User
Posted 09 Jan 2025 at 00:16
Great, inspiring story Robert thankyou...
User
Posted 09 Jan 2025 at 07:21

Hi Robert.


Marvellous mate.  Absolutely marvellous.👏


Thank you very much for sharing your story. 


Your physical fitness and mental fortitude have served you well. The fitter you are, the better equipped you are to deal with whatever life throws at you. I hope your  remarkable recovery continues.


Whether, like yourself, you were a super endurance athlete proir to diagnosis, or just someone who strolled to the shops, I believe that it is important to set yourself a challenge during revovery. Even if the challenge is just trying to get back to somewhere near where you were before prostate cancer entered your life. 


Mine was to walk to the railway station, get on the train, walk to the pub, and have a few pints with my mates. I did it on day four, after surgery.


I was interested to see that in Germany, you had ADT prior to surgery, l believe that rarely occurs over here. I also believe it is very rare to have surgery on stage 4 prostate cancer?

Edited by member 09 Jan 2025 at 10:14  | Reason: Additional text

User
Posted 09 Jan 2025 at 09:47

Hi Rob,


What an amazing video and an awesome ride through beautiful scenery. A huge achievement. 


I've added Norway and midnight Sun to my bucket list. 


Cheers, 


Kev.

User
Posted 09 Jan 2025 at 10:00

Well Done and all the best in your journey!

User
Posted 09 Jan 2025 at 21:56
Robert, it does look as if you have had a treatment that would be unusual in the UK. But we are all different, and whether it is "overtreatment" is never knowable, you can't tell what would have happened with a different choice.

But what I think is excellent, and exactly the right thing to do, is not to let cancer treatment stop you doing what you enjoy. I went on a family holiday (already booked) just six weeks after surgery and it did so much for my morale. It helped that one of the activities was dinghy sailing, wet patches from incontinence don't show when you are in and out of the water anyway. And then a couple of months after that a cycling holiday though not at the level of your impressive feat, that one was along the Canal du Midi in France.

Good luck with coming off ADT, and with your future adventures.
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User
Posted 09 Jan 2025 at 00:16
Great, inspiring story Robert thankyou...
User
Posted 09 Jan 2025 at 07:21

Hi Robert.


Marvellous mate.  Absolutely marvellous.👏


Thank you very much for sharing your story. 


Your physical fitness and mental fortitude have served you well. The fitter you are, the better equipped you are to deal with whatever life throws at you. I hope your  remarkable recovery continues.


Whether, like yourself, you were a super endurance athlete proir to diagnosis, or just someone who strolled to the shops, I believe that it is important to set yourself a challenge during revovery. Even if the challenge is just trying to get back to somewhere near where you were before prostate cancer entered your life. 


Mine was to walk to the railway station, get on the train, walk to the pub, and have a few pints with my mates. I did it on day four, after surgery.


I was interested to see that in Germany, you had ADT prior to surgery, l believe that rarely occurs over here. I also believe it is very rare to have surgery on stage 4 prostate cancer?

Edited by member 09 Jan 2025 at 10:14  | Reason: Additional text

User
Posted 09 Jan 2025 at 09:47

Hi Rob,


What an amazing video and an awesome ride through beautiful scenery. A huge achievement. 


I've added Norway and midnight Sun to my bucket list. 


Cheers, 


Kev.

User
Posted 09 Jan 2025 at 10:00

Well Done and all the best in your journey!

User
Posted 09 Jan 2025 at 10:54

Thank you for the compliments.  I fully understand what you mean when you talk about getting back to what you were before the cancer.  I too enjoyed a few pints with friends as soon as I could.  


From the time I found out my PSA was over 20, to the time I was officially diagnosed, I worked on getting my MD from Google U and Youtube institute of Technology on everything prostate cancer related.  I was quite surprised too, by the difference in treatment recommendations between the UK, Germany, and the USA.  


Prior to my surgery, I had a PSMA pet scan done. This had shown the possible spread of the cancer to my lymph nodes.  The lymph nodes were still localized in the prostate area.  I spoke with the head of the Urology department at the hospital where I had my surgery and he explained that, although it has metastasized and escaped the prostate, it is not considered metastatic due to its close proximity to the prostate .  I suppose this is why it was considered stage 4a, which is the last stage that can be treated with curative intent.  I was surprised when the board  recommended adjuvant radiation so quickly however.  They, as well as my local Urologist, all believed that in my case, that the chances of reoccurrence was very high.  Their philosophy was to hit it hard while the cancer is weak. 


After my initial consultation with the head of the Urology department, he explained that by me starting Bicalutamide immediately, it would likely reduce the chance of the cancer spreading further while awaiting surgery, but mostly, they wanted to give it time to shrink the tumor a bit, so they would have a better chance of achieving negative margins. The surgeon was able get the negative margins.


The downside to all of this, is there is a chance of overtreatment.  For me, I was ok with this risk.  There is also the risk that if it returns, I will have a somewhat limited choice of options going forward.  Still, with the advancements in the scans, which are much better at pinpointing where the cancer is, there is still a good chance they can use spot radiation.  Time will tell.


Cheers

User
Posted 09 Jan 2025 at 21:56
Robert, it does look as if you have had a treatment that would be unusual in the UK. But we are all different, and whether it is "overtreatment" is never knowable, you can't tell what would have happened with a different choice.

But what I think is excellent, and exactly the right thing to do, is not to let cancer treatment stop you doing what you enjoy. I went on a family holiday (already booked) just six weeks after surgery and it did so much for my morale. It helped that one of the activities was dinghy sailing, wet patches from incontinence don't show when you are in and out of the water anyway. And then a couple of months after that a cycling holiday though not at the level of your impressive feat, that one was along the Canal du Midi in France.

Good luck with coming off ADT, and with your future adventures.
 
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