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45years and waiting on biopsy

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User
Posted 02 Feb 2025 at 22:58

Hi All, 

Good to read all of the stories here. Currently waiting on my biopsy results. Recorded a PSA of 3.5 then 4 and then 5. MRI showing up a PIRADS Lesion 3.

The consultant seems to think it's nothing to worry about. Just waiting on the results! Anxious!

User
Posted 28 Feb 2025 at 07:30

Hi,

I am sorry to hear your news.

Please see my profile which is really similar to you and I got diagnosed at 42 so similar age.

I had my prostate removed, and whilst I don't regret that, I have had to have follow up Radiotherapy.

An important question to ask is whether you can have nerve sparing.

Younger men often have better than average recoveries so don't be too afraid of the ED statistics mine is 90% normal just a bit weaker.

Best of luck and lots of us are very happy to DM if you want to hear more detailed experiences.

Diagnosis and deciding on a treatment plan are by far the worst bit, way worse than the treatment for most of us so just know this is the worst bit.

Also remind yourself how lucky you are to catch this early.

Good luck 

User
Posted 03 Feb 2025 at 11:27
Thanks Adrian and good to meet you!

The doctor seems to think that with my age, history etc, it will all be fine. But he suggested the biopsy as a way to know definitely why PSA was rising.

Like you said, it's just the waiting time. But glad I found this forum and will keep this thread updated with my experience.

User
Posted 24 Feb 2025 at 16:24
Sorry to hear that, agree that the waiting is the worse. Now that I have been diagnosed and be given some treatment options it's a bit better. But still lots to think about! I think this resource is great though, I'm keen to talk to more people to understand their experience of treatments.

Good luck.

User
Posted 25 Feb 2025 at 11:23

Hi

I’m sorry that you’ve been diagnosed and had to join us. The waiting in between appointments and results is definitely the hardest, it consumes most of your thoughts. Try and get out as much as possible and do the things you enjoy to keep yourself active and positive. You have an early diagnosis and so you should be in a good treatable position. I was diagnosed last October at 43 and had a prostatectomy on 30 December, once you have decided on your treatment path your mind will be clearer. 

All the best 

User
Posted 28 Feb 2025 at 05:09

I was 46 when I was diagnosed.  I was pT3b and Gleason 9.  It's horrible having prostate cancer so young.  I'm now 54 with no signs of cancer and living a great life.  Don't lose hope.

User
Posted 28 Feb 2025 at 11:38

I am so surprised at how young some people on here are that are diagnosed with PC.  I'm still awaiting my biopsy results (low psa but suspect MRI) and at 57 I thought I was one of the young ones to go through this.  As far as I'm aware currently in the UK you can only get an NHS PSA IF you specifically request it and are over 50 and then it's not always granted.  Mine was done as part of a Bupa health checkup paid for by my employer in December as my dad died of PC in September at 86 years old.   Makes me think my son, who is nearly 29 needs to get checked when he hits 40 not 50.

User
Posted 02 Mar 2025 at 11:34

I requested a PSA test at 42 when having my first over-40s health check at the GP’s, this was because my father was diagnosed at 71  and his consultant advised that me and my brother should start PSA testing when we reach 40. I had to have a telephone call with the GP for him to authorise this, at the time I had a minor symptom of some urgency and so he agreed. First PSA was borderline, second (4 weeks later) was increased above age range and so after the DRE he referred me to the urologists. Like Rob I have two young boys and am now mindful that this could be an issue for them in the future. 

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User
Posted 03 Feb 2025 at 11:11

Hello mate.

I'm sorry that your prostate concerns have led you here, but welcome to the forum.

At 45 years old, you're younger than most of us old codgers and you're bound to be anxious. Is there any suggestion that your rise in PSA could be caused by any other prostate problems? Your Pi-Rads 3 score means they are unsure of any anomalies found, that coupled with the gradual PSA rise, is why they are doing a biopsy. The biopsy results will give a much clearer picture of your condition.

I'm sure most on here would agree, the initial investigative procedures and waiting for results, are the most worrying time. All I can advise is take one step at at a time and don't get ahead of yourself.

Please keep us updated, they'll always be someone here to help and support you.

Good luck mate. 👍

 

User
Posted 03 Feb 2025 at 11:27
Thanks Adrian and good to meet you!

The doctor seems to think that with my age, history etc, it will all be fine. But he suggested the biopsy as a way to know definitely why PSA was rising.

Like you said, it's just the waiting time. But glad I found this forum and will keep this thread updated with my experience.

User
Posted 04 Feb 2025 at 15:39

Hi mate, sorry to hear you are going through this.

I was diagnosed last year at 46 and had a Prostatectomy in September. I found the waiting and investigations really challenging mentally, it actually got easier once I knew what I was facing and had a treatment plan, which is something I’ve read others feel to.

With your PSA and PI-Rads even if you get bad news every chance you will have multiple options for treatment and a good outcome.

 

User
Posted 18 Feb 2025 at 08:25

So got the diagnosis... cancer.

Diagnosis: PSA 5, PIRADS3 on MRI, Gleeson 3+4 95:5 5/11 cores, 3mm max length, 5-10% of tissue, grade group 2

Waiting to hear back on next steps and treatment options.

User
Posted 18 Feb 2025 at 08:58

Hello again mate.

Thanks for the update.

Obviously it would have been better if they'd found nowt, but it's good that it's low grade and low volume. Did you get a cancer staging? You may find that you'll be offered all treatment options.

Good luck with what ever treatment you have and please repost if you have any questions. 👍

Edited by member 18 Feb 2025 at 09:09  | Reason: Typo

User
Posted 18 Feb 2025 at 09:16

From what I know, they are having a meeting on Thursday to 'rubber stamp' the findings and following that they will let me know treatment options. My consultant was saying that nearly all treatment options will be available, but they'd probably recommend a couple given my age and stage. Which seems like complete removal or some focussed therapy.

User
Posted 24 Feb 2025 at 16:11

I'm in a very similar position, I'm 57, had my TP biopsy on the 13th Feb and now an anxious wait for the results.  No symptoms whatsoever, PSA is 1.47, but due to a suspicious DRE, had an MRI which identified a potential pirads 4 lesion.  I was told they meet every Tuesday to discuss so tomorrow (Feb 25th) will be the 2nd Tuesday since my biopsy.  Like you, my consultant said the MRI had confirmed that the lesion is fully contained and in the case the biopsy is positive, treatment options are curative, but it's the not knowing that is the difficult part... 

User
Posted 24 Feb 2025 at 16:24
Sorry to hear that, agree that the waiting is the worse. Now that I have been diagnosed and be given some treatment options it's a bit better. But still lots to think about! I think this resource is great though, I'm keen to talk to more people to understand their experience of treatments.

Good luck.

User
Posted 25 Feb 2025 at 11:23

Hi

I’m sorry that you’ve been diagnosed and had to join us. The waiting in between appointments and results is definitely the hardest, it consumes most of your thoughts. Try and get out as much as possible and do the things you enjoy to keep yourself active and positive. You have an early diagnosis and so you should be in a good treatable position. I was diagnosed last October at 43 and had a prostatectomy on 30 December, once you have decided on your treatment path your mind will be clearer. 

All the best 

User
Posted 28 Feb 2025 at 05:09

I was 46 when I was diagnosed.  I was pT3b and Gleason 9.  It's horrible having prostate cancer so young.  I'm now 54 with no signs of cancer and living a great life.  Don't lose hope.

User
Posted 28 Feb 2025 at 07:30

Hi,

I am sorry to hear your news.

Please see my profile which is really similar to you and I got diagnosed at 42 so similar age.

I had my prostate removed, and whilst I don't regret that, I have had to have follow up Radiotherapy.

An important question to ask is whether you can have nerve sparing.

Younger men often have better than average recoveries so don't be too afraid of the ED statistics mine is 90% normal just a bit weaker.

Best of luck and lots of us are very happy to DM if you want to hear more detailed experiences.

Diagnosis and deciding on a treatment plan are by far the worst bit, way worse than the treatment for most of us so just know this is the worst bit.

Also remind yourself how lucky you are to catch this early.

Good luck 

User
Posted 28 Feb 2025 at 11:38

I am so surprised at how young some people on here are that are diagnosed with PC.  I'm still awaiting my biopsy results (low psa but suspect MRI) and at 57 I thought I was one of the young ones to go through this.  As far as I'm aware currently in the UK you can only get an NHS PSA IF you specifically request it and are over 50 and then it's not always granted.  Mine was done as part of a Bupa health checkup paid for by my employer in December as my dad died of PC in September at 86 years old.   Makes me think my son, who is nearly 29 needs to get checked when he hits 40 not 50.

User
Posted 28 Feb 2025 at 11:58

This is something I think about for my two sons as well, they have a full house with me diagnosed at 46 and both Grandads also diagnosed (at 61 and 73).

There do seem to be several men diagnosed in their 40s on this forum. My cancer was also picked up through a work health screening. 

As I understand it you can currently request an NHS PSA test at 45 with family history. I actually asked my surgeon/urologist when my sons should start testing and it was suggested getting a baseline and possibly even MRI at 35 was a good idea. As things stand this would have to be done privately, which isn’t an option for all, although who knows how guidance will have developed by the time they are old enough.

Edited by member 28 Feb 2025 at 12:04  | Reason: Spelling

User
Posted 28 Feb 2025 at 12:07

You're in good company on this site, lots of men with words of advice and just the fact that there are others going through similar ordeals and the paths they took and why really helped focus my decision on treatment. Your cancer is very similar to mine, the big difference is that you're almost 20 years younger and that's a big consideration. For me I'm heading down the RARP route (having been suggested I go on AS). I'll deal with the consequences of the op and hopefully be able to move on. 

Good luck with your decision - take your time, 3-6 months won't make a difference so settle your mind and do your research. This forum is invaluable and I found ChatGPT very useful as well.

Cheers

Adam

User
Posted 02 Mar 2025 at 11:34

I requested a PSA test at 42 when having my first over-40s health check at the GP’s, this was because my father was diagnosed at 71  and his consultant advised that me and my brother should start PSA testing when we reach 40. I had to have a telephone call with the GP for him to authorise this, at the time I had a minor symptom of some urgency and so he agreed. First PSA was borderline, second (4 weeks later) was increased above age range and so after the DRE he referred me to the urologists. Like Rob I have two young boys and am now mindful that this could be an issue for them in the future. 

 
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