Hello
I feel this is a complicated situation for me but may make sense to someone here who experienced similar situation.
The first problem started when I was 16 years old in 2011 that I thought I found lump on or near to testicle, I saw 4 different doctors over 6 months period who all disagreed with me until I had ultrasound done in hospital to confirm that I did have epididymis cyst that was on tube connecting to testicle but symptoms I had were minor pain and aches.
Throughout10 years later, nothing has been done about this because symptoms were not having impact on my every day life, while I did have good and bad days with pain and aches which could be solved with painkillers but not always was the case. During 2021, there was one occasion where I found blood in semen but it did not happen again and I was told this can happen and there was no cause for concern unless it happens regularly. However since then, for next 2 years, pain and aches I feel coming from testicles and in surrounding areas was still ongoing from 2011 but intensity of symptoms has progressed slightly more.
In November 2023, at this point I had new symptoms showing that I did not know at time was connected, the pain and aches has worsen to point where it was affecting my everyday life and had a lot of discomfort that bath and painkillers helped to relieve pain for short while. I had few occasions where blood was showing up in semen too. I had many appointments to see my GP during this time before I was referred to see specialists at hospital. I had internal examination of prostrate that was normal, I had urine test that came back normal, I had ultrasound that was normal and nothing to worry about but no sign of cyst I had in 2011 and a full blood check which came back normal too. I also had sexual health check up which was negative for everything.
This became very frustrating process because from November 2023, I finally saw specialist at hospital in September 2024 to tell me that I have all symptoms of Prostatitis and gave me a course of 6 weeks ciprofloxacin antibiotics that did not make any difference and symptoms since have progressed worse. I then had follow up appointment last month (January 2025) where doctor told me he has diagnosed that I am suffering from Chronic Prostatitis. Next steps are to have Cystoscopy procedure to have a look inside and take samples and also a massage to attempt to relieve symptoms. It has been 4 weeks and I still do not have a date for appointment yet.
I mentioned earlier "new symptoms" that I did not realise was connected to my current problem was more frequent trips to toilet, start and stop urination, feeling finished but only to go to toilet again mins later and this happens far too many times during days and night. The feeling of shooting pain coming from groin going down the leg, having pain in lower abdomen, feeling tired a lot more than normal and changes to my bowel movements that my normal routine has never been same again since 2024.
I am only 30 years old with this problem having a huge impact on my life in last 2 years and still waiting for answers for this ongoing problem - it is frustrating and uncomfortable. I am here today because I have come across this community website after spending hours on google to educate myself about these symptoms, to find out what I can do to relieve these symptoms and to know what to expect from tests/procedures I had to do. The purpose of posting here is to share my story with you and curiosity to see what responses I will get. Will keep you informed whatever happens from here onwards but if you know anything that could help my situation - please get in touch. I would be very grateful and appreciate the support. Thank you