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Thoughts on MRI result

User
Posted 07 Feb 2025 at 22:08

Still worrying as I’m waiting for my biopsy.
wondering what thoughts people may have with the summary wording of the letter from my Urologist.

it says Prostate size 90cc with a legion 4.3cm in the left transition zone. (Lesion size 4 years ago 2.3cm in same zone) PIRADS 5. no lymphadenopathy and seminal vesicles normal.

Do you think this summary sounds like if its cancer that it’s likely to be contained?  Theres no mention of bony elements being unremarkable that was mentioned 4 yrs ago. Mind you theres no mention about the diverticulitis either so maybe its the summary I’m reading.

i’m also interested to know what things they look at to come to the PIRADS score. I’m guessing in my case it could be the size of the legion and that my PSA with Finasteride not taken into account rising from 3 to 6 in 12 months.

i know i’ve got to wait for biopsy to be sure…..it’s a neuro divergent need to be informed 🤷🏼‍♂️

User
Posted 08 Feb 2025 at 18:38

B, I can't answer you question but a reply will push you back up to the top. Its too technical for me, pirads didn't exist when I was diagnosed and you only knew the extent of the cancer when it was sliced up after removal. You could ring the prostate cancer nurses on Monday, they will be able to answer your questions. 

I like data and information, that has lead to disagreements with my oncologist.

Thanks Chris

User
Posted 08 Feb 2025 at 19:41

Hello again.

There are sites that will tell you all the factors involved in determining pirads scores. They are harder to digest than my wife's homemade lasagna. 🙂

I'm not medically trained but suggest that your MRI results and pirads 5 means that you have a very high likelihood of PCa but that it is contained. I've had two MRIs both gave radiological cancer staging. Did yours? We've recently had two blokes on here who had pirads 5 scores with large lesions. Fortunately, their suspected areas were found to be benign. 

As you say, the biopsy will shed more light on your exact condition.

Best of luck with those results👍

Edited by member 08 Feb 2025 at 20:41  | Reason: Delete link

User
Posted 08 Feb 2025 at 21:25

Originally Posted by: Online Community Member

Hi.

There are sites that will tell you all the factors involved in determining pirads scores. They are harder to digest than my wife's homemade lasagna.

I'm not medically trained but would guess that you have a very high likelihood of PCa but that it is contained. I've had two MRIs both gave radiological cancer staging. Did yours? We've recently had two blokes on here who had pirads 5 scores with large lesions. The suspected areas were found to be benign. 

There are quite a lot of things to worry about when dealing with prostate cancer results but to me pirads scores would be near the bottom of the list. 

As you say, the biopsy will shed more light on your exact condition.

Best of luck with those results👍

Thanks for replying Adrian.

i havent received a full report. I saw one after my last MRI 4 yrs ago which confirmed  things such as no sign of local or side wall lymphadenopathy and the bony elements remain unremarkable.

Everytime the urologist writes a letter he sumarises my tests and findings to date and sumarises this old mri as  ‘85 cc gland, PIRAD 3 lesion left transition zone, no lymphadenopathy’

Now for my new mri the summary he’s written

‘90cc gland, 4.3cm PIRADs 5 lesion left transition zone, normal seminal vesicles, no lymphadenopathy’. 

my brain thats trying to keep positive says the summary suggests by their ommission, that the situation is the same with no lymphadenopathy in the side walls as before and the bony elements still remain unremarkable. My positive brain also says the lesions grown making it a PIRADS 5 and therefore very likely to be cancer and the seminal vesicles have been mentioned this time because the size of the gland puts this area at risk. 

However my negative brain keeps jumping in saying……why havent i seen a fuller report (they sent me the summary letter this time 9 days ago, 2 days after the MRI. Why havent i been told about how the bony elements and sidewsll lymphadonapathy are. But Maybe full test results take longer than this.

User
Posted 09 Feb 2025 at 08:17

Hello again mate.

I understand your apprehension regarding the differing extent of MRI details given in summary letters by your urologist.

I was diagnosed during covid lockdown. The communications and accuracy of results given by clinicians between themselves and to me, was woeful.

I was initially given a T1c staging that turned out to be a typo and was actually T2c. I also should have been given a six month follow up MRI which was never booked.  When I was eventually scanned,  fourteen months later than I should have been, it showed significant disease progression requiring immediate further treatment. This is why I now recommend that all patients should request full copies of their consultation summaries, and scan and biopsy reports.

To put your mind at rest, you could always ask for copies of your two previous MRIs and compare them yourself. I'd certainly be requesting a copy of your forthcoming biopsy results.

The mistakes and omissions made during my treatment have now made me double check everything.

Good luck mate.👍

 

 

User
Posted 09 Feb 2025 at 09:43

Thanks for the tip Adrian

I’ll ring tomorrow to see if they can send me the MRI’s through. Biopsy is Thursday so I guess what I learn from that makes the MRI results less of an issue. But it could help me get through the next week a bit better.

User
Posted 10 Feb 2025 at 14:15

Asked for my recent MRI report but was told the release date is 13/3. That’s about six weeks after the scan was done. I was told they’re not released when they’re uncertain and need further specialist input (in my case Thursdays biopsy I suppose), sending it out when there are concerns on it can make the patient worry needlessly.

Makes sense I suppose. I received the MRI report after only a week last time along with covering letter. But it was relatively good news then ie PIRADS 3 that didn’t require any other tests other than regular PSA.

 
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