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1 week after Catheter removal

User
Posted 08 Feb 2025 at 23:49

Hello

I am 68 after robotic prostatectomy 3 weeks ago and catheter removed 9 days ago. Using the squeeezy app 3 times a day without fail and drinking 1500mls each day (no tea alcohol or fizzy drinks)

Looking for advice.

1. I do not drink after 7pm. At night I have to get up 3 or 4 times to pee. Is this normal, will it change in the weeks ahead? (My night time incontinence pants have been nearly dry - very minor dribbles every night since catheter removal).

2. I now go out for a walk each day and do 5000 to 9000 steps and I am concerned that I am maybe doing too much and it might affect healing/incontinence. Prior to surgery I was very fit and would always do 12000+ steps a day (walking, tennis, golf).

3. I have not had any "accidents with a big flow " but every time I get up I leak so changing pads 3 times a day. Any suggestions that help improve this apart from kegels?

4. Should I be going to to pee every 2 or 3 hours even if no big urge or always wait for urge to pee. I am wondering if I don't pee am I creating a problem as my bladder gets too full?

Many Thanks

 

Edited by member 09 Feb 2025 at 09:03  | Reason: Not specified

User
Posted 09 Feb 2025 at 00:50

It's really early days yet.

With reference to leaking when you get up, do a single pelvic floor contraction to cover this, and any other times you know you leak. It will in time become automatic/subconscious.

 

User
Posted 09 Feb 2025 at 07:32

Hello photonow. Welcome to the forum, mate.

I've had robotic surgery. As Andy says, "It's really early days yet." 

To me, you seem to be making a great recovery, but be careful not to overdo things. Over exercising could impede progress rather than helping it.

I'm two years post op, and still usually have to get up for a pee at least once or twice a night. Like you, I'm 68 years old, so I'm not sure if this slight nocturia, is solely down to the op or whether it's more an age related problem. Likewise, I try and comfort myself, by using the same reasoning to my  ED  issues.

I found, early days, using a bed protector and a urine jug helped me. I felt more relaxed using them, which aided better sleep and seemed to reduce the need to pee at night. It also obviously helps if you drink less on an evening. I rarely drink anything after 7pm.

I was told by my CNS that the 'average' time it took to recover full continence was about six months.

Best of luck.👍

 

 

 

User
Posted 09 Feb 2025 at 07:51

Photonow, we often use the 'its early days" and it is true. You are still healing inside. Many of us were still passing bits of blood scabs and possibly stitches up until 6-8 after surgery. You may also get a period where you progress and then go backwards for a short while. Good advice about contracting those pelvic floor muscles as you stand.

Thanks Chris

Edited by member 09 Feb 2025 at 07:51  | Reason: Not specified

User
Posted 09 Feb 2025 at 21:37

Photonow, was that one sudden release or had you already been leaking into the same pad, if you can slow the flow it may give the pad time to soak up the full amount of urine. Lots of little leaks eventually equals one big leak.

I got kitted up with my pad etc then when I got the urge to go I stood in the shower to see what I could control.

I used tena3 although I think the older ones were better than the newer ones. When I say older I am going back 6 years ago,perhaps even longer.

Thanks Chris

User
Posted 10 Feb 2025 at 08:52

Thanks Chris

It seemed like continually having small leaks. Thankfully i have not ever had a big flow since catheter out.

I was really tired all day so maybe that is the simple explanation!

 

Cheers

User
Posted 10 Feb 2025 at 20:55

Originally Posted by: Online Community Member

I was really tired all day so maybe that is the simple explanation!

It could be, because those sphincters tire along with you.

My experience is that my bladder holds pretty well in the morning, but leaks more easily as I go through the day. Various things exacerbate leaks, which may have been part of your lunch, like coffee or alcoholic drinks. And frustratingly walking, where pressure on the bladder is slight but rhythmic, seems more of a risk than other exercise where core muscles are used more constantly (like cycling or skiing).

Things will improve given how early you are in recovery, but there will be accidents because human nature is to try to push faster than the body actually responds.

(Tena3 is fine, I find it as bulky as I can stand for a pad once it starts to fill. My norm is Tena2, Tena3 is nowadays reserved for occasions when I know leakage is very possible and access to a toilet may be limited. Like a party I will be walking home from).

User
Posted 10 Feb 2025 at 23:06

I’m now 6 weeks post op and still leaking/dribbling when out for a walk, I’m using Tena 2 and they seem to be holding ok. Before I go anywhere now I go to the loo 1-2 times to try and minimise the leaking. It’s definitely getting better, I was about the same as you at week 3, changing pads 2-3 times in the day and I was using some level 3, now I’m down to 1 per day. I have also used Abena 2 & 3 which were ok, not sure if they would hold out on a bigger flow. We’re still in the early period and with continuing the exercises we will hopefully regain full control at some point down the line 🙏🏻 

User
Posted 11 Feb 2025 at 10:47

Hi Photonow

I had prostatectomy 14 years ago so I know how you feel. You seem to be doing very well. I get the impression that you are in too much of a hurry to get back to normal. Your body has a natural ability to heal. Give it time let your body decide how it wants to heal - help it rather than force it.

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate

 

 

User
Posted 11 Feb 2025 at 20:55

Everyone is different with their recovery. I’m nearly 2 years post op and still need a tena2 pad a day for security. I could probably go to a level 1 but I’ve loads left plus my local trust supplies them free but not level 1! Anyway I would say less is more and the more you try you risk issues. Immediately post catheter removal I could not hold water and it was 5-6 weeks before I regained some control and gradually reduced to 1 pad after 9 months. Keep squeezing and as others have said take it easy. Good luck.

User
Posted 11 Feb 2025 at 21:50
Hi Photonow

Im 11 weeks post RARP.

As I understand it the stitches in your bladder neck take about 8 weeks to fully dissolve, and are still pretty rigid for 3-4 weeks post surgery. They start to lose tensile strength after about 4 weeks, and my surgeon said once they fully dissolve people often see an improvement in bladder control as the neck can start to open and close properly again without the restriction and irritation of the stitches.

As others have said its still early days.

Good luck with your recovery.

All the best

Gus

Show Most Thanked Posts
User
Posted 09 Feb 2025 at 00:50

It's really early days yet.

With reference to leaking when you get up, do a single pelvic floor contraction to cover this, and any other times you know you leak. It will in time become automatic/subconscious.

 

User
Posted 09 Feb 2025 at 07:32

Hello photonow. Welcome to the forum, mate.

I've had robotic surgery. As Andy says, "It's really early days yet." 

To me, you seem to be making a great recovery, but be careful not to overdo things. Over exercising could impede progress rather than helping it.

I'm two years post op, and still usually have to get up for a pee at least once or twice a night. Like you, I'm 68 years old, so I'm not sure if this slight nocturia, is solely down to the op or whether it's more an age related problem. Likewise, I try and comfort myself, by using the same reasoning to my  ED  issues.

I found, early days, using a bed protector and a urine jug helped me. I felt more relaxed using them, which aided better sleep and seemed to reduce the need to pee at night. It also obviously helps if you drink less on an evening. I rarely drink anything after 7pm.

I was told by my CNS that the 'average' time it took to recover full continence was about six months.

Best of luck.👍

 

 

 

User
Posted 09 Feb 2025 at 07:43

Thank you guys.

User
Posted 09 Feb 2025 at 07:51

Photonow, we often use the 'its early days" and it is true. You are still healing inside. Many of us were still passing bits of blood scabs and possibly stitches up until 6-8 after surgery. You may also get a period where you progress and then go backwards for a short while. Good advice about contracting those pelvic floor muscles as you stand.

Thanks Chris

Edited by member 09 Feb 2025 at 07:51  | Reason: Not specified

User
Posted 09 Feb 2025 at 21:11
You seem to be doing really well.

I wouldn't worry about several pees in the night, your bladder has been knocked around quite a bit during the surgery and will stay sensitive for a while. The fact you are dry lying in bed is encouraging.

Given the amount of exercise you are already doing, 3 pads a day is great. I think I was on 5 at the same stage. As Adrian says, you can expect things to improve up to around 6 months from surgery.

From what I understand, you are better waiting till you have the urge rather than peeing more frequently. You want your bladder to relearn its ability to hold a reasonable volume (around 500 ml is ideal) without leaking. However in practice it is always sensible to have a pee before going out knowing it might be a while before you next have access to a toilet.

User
Posted 09 Feb 2025 at 21:22

Thanks that is all very sound advice.

Today I was out for lunch and in just walking to and from restaurant about 20 minutes total I ended up with wet clothes. First time this has happened, very discouraging and embarrassing.

I was using a level 3 tena mens pad. Does anyone recommend any other pads?

 

Thanks again.

User
Posted 09 Feb 2025 at 21:37

Photonow, was that one sudden release or had you already been leaking into the same pad, if you can slow the flow it may give the pad time to soak up the full amount of urine. Lots of little leaks eventually equals one big leak.

I got kitted up with my pad etc then when I got the urge to go I stood in the shower to see what I could control.

I used tena3 although I think the older ones were better than the newer ones. When I say older I am going back 6 years ago,perhaps even longer.

Thanks Chris

User
Posted 10 Feb 2025 at 08:52

Thanks Chris

It seemed like continually having small leaks. Thankfully i have not ever had a big flow since catheter out.

I was really tired all day so maybe that is the simple explanation!

 

Cheers

User
Posted 10 Feb 2025 at 20:55

Originally Posted by: Online Community Member

I was really tired all day so maybe that is the simple explanation!

It could be, because those sphincters tire along with you.

My experience is that my bladder holds pretty well in the morning, but leaks more easily as I go through the day. Various things exacerbate leaks, which may have been part of your lunch, like coffee or alcoholic drinks. And frustratingly walking, where pressure on the bladder is slight but rhythmic, seems more of a risk than other exercise where core muscles are used more constantly (like cycling or skiing).

Things will improve given how early you are in recovery, but there will be accidents because human nature is to try to push faster than the body actually responds.

(Tena3 is fine, I find it as bulky as I can stand for a pad once it starts to fill. My norm is Tena2, Tena3 is nowadays reserved for occasions when I know leakage is very possible and access to a toilet may be limited. Like a party I will be walking home from).

User
Posted 10 Feb 2025 at 22:34

Thank you for all that info. Much appreciated.

User
Posted 10 Feb 2025 at 23:06

I’m now 6 weeks post op and still leaking/dribbling when out for a walk, I’m using Tena 2 and they seem to be holding ok. Before I go anywhere now I go to the loo 1-2 times to try and minimise the leaking. It’s definitely getting better, I was about the same as you at week 3, changing pads 2-3 times in the day and I was using some level 3, now I’m down to 1 per day. I have also used Abena 2 & 3 which were ok, not sure if they would hold out on a bigger flow. We’re still in the early period and with continuing the exercises we will hopefully regain full control at some point down the line 🙏🏻 

User
Posted 10 Feb 2025 at 23:50

Thank you and I hope everything continues to improve for you.

I've tried going to toilet before a walk and perform then when I think I'm absolutely finished I stand up and proceed to leak more.....

Gravity discovered after prostate surgery.

Getting hit on the head by an apple is definitely the preferred option for such discoveries......

User
Posted 11 Feb 2025 at 10:47

Hi Photonow

I had prostatectomy 14 years ago so I know how you feel. You seem to be doing very well. I get the impression that you are in too much of a hurry to get back to normal. Your body has a natural ability to heal. Give it time let your body decide how it wants to heal - help it rather than force it.

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate

 

 

User
Posted 11 Feb 2025 at 20:55

Everyone is different with their recovery. I’m nearly 2 years post op and still need a tena2 pad a day for security. I could probably go to a level 1 but I’ve loads left plus my local trust supplies them free but not level 1! Anyway I would say less is more and the more you try you risk issues. Immediately post catheter removal I could not hold water and it was 5-6 weeks before I regained some control and gradually reduced to 1 pad after 9 months. Keep squeezing and as others have said take it easy. Good luck.

User
Posted 11 Feb 2025 at 21:50
Hi Photonow

Im 11 weeks post RARP.

As I understand it the stitches in your bladder neck take about 8 weeks to fully dissolve, and are still pretty rigid for 3-4 weeks post surgery. They start to lose tensile strength after about 4 weeks, and my surgeon said once they fully dissolve people often see an improvement in bladder control as the neck can start to open and close properly again without the restriction and irritation of the stitches.

As others have said its still early days.

Good luck with your recovery.

All the best

Gus

User
Posted 11 Feb 2025 at 22:16
Thanks Gus.

Thats interesting, never heard about that and it sounds something to look forward to as i am 4 weeks tomorrow.

 
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