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Clips and the after effects

User
Posted 17 Feb 2025 at 09:12

In September last year I had my prostrate removed by robotic surgery. The new joint at the base of the bladder took 3 months to heal. During this time I had three CT scans checking for leaks.

After three months of catheter use the joint was deemed to be healed and the Cather removed. For three days I was able pass urine normally and then it stopped. I had to have a catheter reinstalled urgently. A month later it was removed and once again normality only lasted 3 days before a catheter had to be inserted.

I then had a camera inserted and two nylon clips used in the original surgery were spotted in the bladder. I was told this had occurred before and they had migrated into the bladder after surgery. In January this year I had a operation using a camera with retrieval attachments inserted up my urethra to retrieve the clips, which turned out to be 4?
This was done under anaesthetic and the bladder opening dilated, but the aftermath was extremely painful and a Cather reinstated. After two weeks the catheter was removed and I was very relieved to find I could urinate naturally, however I am instructed to insert a self catheter with a larger than normal bulb end 3 times a week to ensure the joint between my bladder and urethra remains open. This is obviously an unpleasant and painful process. Distressingly I am told that I will have to continue this for the rest of my life!

Can I ask if anyone else has experienced this problem. I have seen reports of a small pipe being inserted at the neck of the bladder to maintain flow. Is this possible?

Clearly I am very happy Cancer has been removed, but I didn’t expect such a long term after effect. I am surprised that the nylon clips are not counted on and counted out, how can they be left in after surgery?

 

 

 

 

 

 

 

User
Posted 17 Feb 2025 at 11:51

Littlec, I am one of handful in this site who experienced similar issues. It is supposed to be a 1 in 500 event ,but I suspect it is more frequent. My first one was found in the bladder the next lodged in the urethra joint. I have seen where one guy actually passed one while urinating.

They are called hem o lok clips and made of a polymer that is not easily spotted by imaging methods. I seem to recall a CT scan on a particular setting may see them. Once they calcify I believe they can be seen 

Not heard of the stent in the bladder neck ,sounds a good idea but I believe the bladder neck muscle help control our urine.

I formed a scar tissue stricture and went back into theatre 13 times to try and sort it ,I also did some self dilatation with various size catheters.

A search in this site or Google will bring up lots of clip info, try  hem o lok, or hem-o-lok , or hem-o-lock

 

Thanks Chris

Edited by member 17 Feb 2025 at 11:55  | Reason: Not specified

User
Posted 17 Feb 2025 at 16:17
Many thanks Chris,

It’s good to hear from someone who has experienced the same issue. 13 attempts to rectify sounds horrific. In my case it’s the casual way I was told by a nurse that the consultant has given instructions to continue with catheter dilation 3 times a week and that it would be a lifetime task. Is this really a solution.

Sounds like I have a similar problem with the continual healing causing a restriction at the neck of the bladder.

I just wish the doctors would have an honest discussion with you and get you involved in reaching a long term solution.

The junior doctor who had a first look at my bladder by camera, told me in one case they had a patient with 10 clips inside him. Evidently this problem with Hem Lock Clips goes back to the beginning of Robotic surgery, so why is it still happening.

Chris,I hope you problems have now been resolved

User
Posted 17 Feb 2025 at 16:50

Littlec , my surgeon was a bit vague but mentioned there were probably around 8 clips left in during surgery. They did introduce some directive about the clip use in kidney surgery. For anyone not familiar with RARP, the clips are deliberately left in,it's not negligence.

Unfortunately further treatments damaged my bladder and I was fitted with a suprapubic catheter, so that stricture never got sorted. Fortunately I loved the whole general anesthetic experience. 

Just a word of advice on the self dilatation / catheterisation,be very very gentle.

Thanks Chris

User
Posted 17 Feb 2025 at 18:03
I didn't have a problem with hem o lok clips but I did develop a stricture post RARP and now have to self catheterise every three days. At first I really struggled to get it in, relaxation is key to making it easier. Each time I pass firstly a size 16f followed by a 18f. While I'd rather not have to do it I find it more uncomfortable than painful.

I recently heard of a fairly new treatment called Optilume, which is a dilation but a kind of stent covered in a chemical that stops the stricture reforming is inserted. I intend to ask about it at my next review.

Self catheters have various tips but I've never heard of one with a bulb on the end. I can't understand why they don't make them slightly tapered rather than trying to force a blunt tube in.

Good luck

Cheers

Bill

User
Posted 17 Feb 2025 at 19:08

Bill, I used the coude tip catheters which where curved and slightly tapered. I also used another type that had a balled end , I wonder if the original poster was refering to those. The stent sounds interesting. 

Thanks Chris

User
Posted 17 Feb 2025 at 19:33

Yes very interesting. A few uk hospitals have used it. If anyone's interested here's a link

https://uuaurology.com/treatments-and-procedures/optilume-for-urethral-strictures/#:~:text=The%20Optilume%20drug%2Dcoated%20balloon,minimally%2Dinvasive%2C%20immediate%20relief.

If it doesnt work just goolgle optilume nhs

Cheers

Bill

User
Posted 18 Feb 2025 at 08:30
That’s an interesting article regarding the stent like insertion, My worry would be how do they assess the size and flow needs.

Regarding the self catheterisation, I am prepared to continue as prescribed, but find it difficult to contemplate lifelong insertion bringing with it all the possible complications. So I have to admit if they came up with a less invasive alternative I would go for it.

Chris raised a point about the need to allow the muscle at the bottom of the bladder to work unrestricted. That’s interesting as I believed that muscle was no longer in place after a prostatectomy. Perhaps mistakenly I thought the only control left was via the pelvic floor muscle?

Regarding the catheter insertion I appreciate the advice about being relaxed and slow insertion. My urethra is still sore after the clip removals so I hope it will get better, however the painful bit is the entry into the bladder which does cause some pain, albeit short lived.

User
Posted 18 Feb 2025 at 19:31

Littlec. I have just started down the same path as you you with lifetime self self catheterisation, although my regime is once a week with a 16f catheter. I find it is uncomfortable but not painful. I asked about the Optilume procedure when I had my dilation but my NHS Trust don't offer it. NICE has now tentatively recommended it so there should be some NHS Trusts who offer it. The NICE reservations are about lack of any long term data on effectiveness and safety. I did read some research on long term self catheterisation and it appears a lot of patients tend to let it lapse after a while and then need further dilations.

User
Posted 18 Feb 2025 at 20:10
Quote:



Chris raised a point about the need to allow the muscle at the bottom of the bladder to work unrestricted. That’s interesting as I believed that muscle was no longer in place after a prostatectomy. Perhaps mistakenly I thought the only control left was via the pelvic floor 


I think i remember reading that the sphincter at the bladder neck is removed with the prostate and the one below the prostate is brought up and becomes the only sphincter. In normal anatomy you keep the upper one at the bladder shut subconsciously the lower squeezers shut when you consciously stop yourself peeing. That's why you need to train you pelvic muscles to keep it shut post prostatectomy. I stand to be corrected if wrong though.

Cheers

Bill

User
Posted 18 Feb 2025 at 21:41

Originally Posted by: Online Community Member
Can I ask if anyone else has experienced this problem. I have seen reports of a small pipe being inserted at the neck of the bladder to maintain flow. Is this possible?

Stents are sometimes used in ureters, but I haven't heard of them being used in the urethra (as distinct from a catheter).

The problem with anything artificial in the urinary system is it quickly becomes encrusted with solids, blocking flow, and forms a site for infection recurrence. Ureter stents and catheters have to be regularly changed.

Also, the bladder neck is a sphincter, and any stent there would leave you incontinent.

User
Posted 18 Feb 2025 at 22:49

Originally Posted by: Online Community Member


Chris raised a point about the need to allow the muscle at the bottom of the bladder to work unrestricted. That’s interesting as I believed that muscle was no longer in place after a prostatectomy. Perhaps mistakenly I thought the only control left was via the pelvic floor muscle?


Littlec,  My reference to bladder neck muscles is as described below. The sphincter or sphincter muscle is removed along with the prostate, the terminology can be confusing.🙂 It is my understanding that the bladder neck muscles may or may not remain in place depending on spread and individual anatomy. I could of course be wrong.😃😃😗

 

  • Bladder neck muscle:

    This is a group of muscles at the bladder outlet where the bladder connects to the urethra, playing a role in maintaining urinary continence by providing structural support and resisting pressure from a full bladder.

     

    Urethral sphincter:

    This is a specialized muscle located at the bladder neck and the beginning of the urethra, actively contracting to close the urethral opening and prevent urine leakage. 

     

    Thanks Chris

Edited by member 18 Feb 2025 at 22:51  | Reason: Not specified

User
Posted 19 Feb 2025 at 05:32

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member
Can I ask if anyone else has experienced this problem. I have seen reports of a small pipe being inserted at the neck of the bladder to maintain flow. Is this possible?

Stents are sometimes used in ureters, but I haven't heard of them being used in the urethra (as distinct from a catheter).

The problem with anything artificial in the urinary system is it quickly becomes encrusted with solids, blocking flow, and forms a site for infection recurrence. Ureter stents and catheters have to be regularly changed.

Also, the bladder neck is a sphincter, and any stent there would leave you incontinent.

Just found this from NICE website:

"Optilume (Urotronic) is a drug-coated balloon indicated for treating anterior urethral strictures. The technology combines balloon dilation, to expand or widen the strictured area, with delivering an anti-proliferative drug (paclitaxel) to reduce stricture recurrence. Optilume is inserted under direct endoscopic vision (with or without fluoroscopy) and inflated under pressure. It stays inflated in position for up to 10 minutes. The balloon's inflation can be measured with a manometer, using radiography and inflation media, or with direct visualisation using cystoscopy. After the treatment has been delivered, the balloon is deflated, removed and safely disposed of."

https://www.nice.org.uk/advice/mib241/chapter/The-technology#:~:text=The%20technology%20combines%20balloon%20dilation,fluoroscopy)%20and%20inflated%20under%20pressure.

The article is from 2021 and says Optilume is not yet used by NHS. It has now been used by several NHS Hospitals.

Cheers

Bill

Edited by member 19 Feb 2025 at 06:08  | Reason: Info and link added

User
Posted 19 Feb 2025 at 10:26
Many thanks everyone, some great information which provides food for thought. This site provides a very valuable service and there is nothing like having the thoughts of actual patients. Keep heathy.
 
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