Supporting husband with metastatic prostate cancer

Hi Rose

I'm sorry to hear about your husband's diagnosis. I'm not sure if there is a separate page/thread for partners, but there are certainly plenty on here who post regularly. I am sure you will hear from some of them in due course. In the meantime, if there are any questions you want to ask, please fire away. The level of support on this site is fantastic.

All the best.

Ian. 

Thanks very much. Currently, he has back pain and the booklet we received from our hospital states we should inform the oncology nurses if it gets worse. My husband thinks I am nagging and he says his back pain is nothing unusual. However, I disagree, it seems worse than before. And also i am finding it hard to concentrate on work when he is unwell!

Hi Rose ,another wife here . I was 52 and Gary was 55 at diagnosis,like your husband he had early chemo (6 sessions) with 4+5 diagnosis . It’s hard ! Luckily Gary seemed to do well on chemo but would often complain of aches and pains ,especially it seemed to target old wound's.Either you or he should speak to his team ,I’m sure someone will be there to listen . I think Gary was given strong painkillers to ease it .
Keep strong ,we are over 9 years into our journey and still here .
Lots of advice on this site ,the members are amazing.
Best wishes
Debby .

Edited by member 21 Feb 2025 at 19:09  | Reason: Not specified

Thanks Derek, I feel so much better already posting here and with the replies I feel less alone. I  think when I’m in my darkest days I forget doing nice things is important. We love walking and we are being careful to keep social distance so I’ll plan more of this with friends. (We caught covid and chemo was delayed so being more careful now). We enjoy watching movies on our new large TV. What other ideas does anything have for doing nice things together at the weekends please? Many thanks Rose

Edited by member 21 Feb 2025 at 21:37  | Reason: Wrong name spelling

Hi Debby

thanks for your message. That’s encouraging to hear. Is Gary on many meds and how is his quality of life. Best, Rose 

Hi Jules, thanks for your message, he was actually very well before starting chemo. He was overweight and still trying to shift same weight. We would go to the gym 3 times a week and walk most days. Since the chemo started, he has had a chest infection, developed small blood clots and now struggles to do much at the gym and feels faint after long walks. We will keep trying to do what we can. I like the idea of visiting national parks and forests. We live in North Somerset so easy access to this. But we are avoiding over night stays in hotels or holiday homes because we are trying to limit contact with others to prevent catching any infections that may delay chemo. Not sure if we are being too cautious? He caught Covid after second chemo but luckily he was negative  before the next round so we didn’t need to delay 3rd round. 

Hope you have a lovely holiday. Would love to continue this conversation when you are back. 

Hi Rose, my husband was diagnosed 2021 age 59, he stated on Degralix injections every month but has changed prostap 3 monthly, he has had chemo and at the minute he is on enzalutamide but last 3 months his psa has been going up he has just had more scans done and we see the oncologist on the 5th of March for results and see what’s next, things do get easier but it’s hard not too worry when waiting for results to come back 

best wishes

ann

Hi Rose as others have said, sorry you find yourself on here. We are in a similar situation. I’m 50, husband 51 and told in Jan that he was incurable. Came out of nowhere. G9 after biopsy and PSA back in Sept, 14. Offered hormone therapy and now on Abiraterone with Prednisolone. We are still getting our heads round the whole situation and it’s difficult. Totally understand your feelings of loneliness and anxiety. I’ve found this forum to be helpful, kind and such a good source of info from people who really know what they are talking about. I suppose I just wanted to let you know that you’re not alone. Keep posting and again like others have said make use of any supports around you, Maggies, etc. Sending you strength and support X

Hi Rose sorry to hear about your husband.  My hubby was diagnosed as incurable sep 22 aged 51, completely out of the blue.  His PSA was 210 G9 & spread to lymph nodes & bones - small deposits not wide spread.  He had 6 x chemo and has prostap injections every 3 months .  He managed chemo ok I did some research on things  to take whilst on chemo to support him( manuka honey & polybalm).  He takes a number of well researched supplements and is active everyday- he still works a physical job doing around 22 thousand steps a day.  We eat a  Mediterranean diet and cook fresh every day and regularly take a weekend break ( just back from Whitby for the weekend & managed the 199 steps up to the abbey)  we walk and do what we enjoy - being together.    His PSA has crept up a little to 0.3 from 0.01 & he has put some weight on but otherwise he is ok and mentally very strong .  It was and sometimes is still hard but people on here helped, I remember debby (merrivale) replying to my first post. any questions you have the very knowledgeable community on here can help 

Sending you love x

Thanks for replying. I will look into Maggies. Feeling less alone too.

D3& k2 

berberine

quercetin

Resveratrol

pomegrante juice

turmeric

omega3

ursolic acid

& home made tomato soup every day for lunch 

Thank you for such positive news. My husband is 78. Started degarelix in Oct. We have a 1st oncology appt next wk Until now we have been able push the cloud away as he is feeling well,other than tiredness. The appt next wk is making us feel afraid again. 

Thank you again,gives me hope.

Sue

Hi Tracey 

I have my partner on a load of supplements as well but was recently thinking about lycopene but now I am thinking maybe I should more make tomato soup .Do you follow a specific recipe .

He had originally psa 674 5 years ago and no mets as yet but know we have a fight on our hands so trying to beat it every which way we can .Is currently on a hormone therapy break again  so I always get him back on a more full on regime when on a break lol 
thanks

Kind regards

Carolyn