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Utterly confused!! Limbo zone

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User
Posted 24 Feb 2025 at 12:01

Hi all,


So I’m joining you on this journey! 


I’m a 62 year old semi retired golf and travel fanatic who is currently reeling. 


Went to see Doctor November 24 with minor LUTS symptoms associated with enlarged prostate. Second clear DRE of the year done at the time but Doctor said “while we are here let’s do a PSA”.  Previous PSA score summer 22 was 2.99 and ultrasound showed no abnormality so very shocked when 4.5 was recorded. Had a massive anxiety attack!! Follow up PSA done 6 weeks later and slightly lower 4.4.  Doctor assured me she doubted I had Pca but 2ww for a MRI to rule it out.


MRI duly completed end January. Pi Rads 5. Clinically Significant Tumour 24mm. Right Mid Gland PZ. Prostate size 57 and PSA density 0.8. Radiologist score T2 N0 Mx


TP Biopsy duly completed last Monday with 24 cores taken and 4 extra of target area. Not a pleasant experience but little pain and fall out afterwards. No antibiotics or coffee afterwards though and waved on my way less than 30 minutes after. 


… but even with super support from Wife of 30+ years, family,  anxiety coach, plus super support from talking to PC UK Specialist nurse, I’m (we are) struggling massively with the uncertainty. 


I’m particularly concerned that with the tumour the size it is will turn out to be T3 as a minimum as appears to be the case many times on this forum and it will cause problems with subsequent potential treatment options. At the moment I’m favouring RP. 

Apologies for going on so long. Currently quite overwhelmed and trying to find the positive is hard. 

User
Posted 24 Feb 2025 at 14:06

I know this will not stop you worrying but until you get your biopsy results you do not know if you definitely have anything to worry about. Your PSA is low which is hopefully good news. Sometimes size reported by Radiologists reading MRI’s is the size of the area of interest not the tumour. Your tumour may not be 24mm long. PSAD is determined by PSA divided by prostate in cc. In your case rounded up that means .08 and not.8. Even a large tumour does not always equate to an aggressive tumour. There are so many variables. Low PSA does not rule out aggressive cancer always, small tumours can be aggressive so as you can see at this stage on the information you have you have no way of knowing what you are dealing with. Waiting is very hard but when you get your biopsy results you will be in a much better position to know if you are dealing with anything significant or not.

Edited by member 24 Feb 2025 at 14:07  | Reason: Not specified

User
Posted 24 Feb 2025 at 14:09

Sorry that you've had to join us, but welcome onboard.


It's always difficult until you know exactly what you're dealing with, and what your treatment plan is.  But the good news is that treatments today are so much better than they were even 5 years ago:  there's every reason to be optimistic that you can carry on doing the things you love for many years to come.  


You'll soon have the results from the biopsy, and a plan will be put in place quickly after that.  Wishing you all the best in the meantime.


 

User
Posted 24 Feb 2025 at 14:41

Thank you for your wise words. Much appreciated. 

User
Posted 24 Feb 2025 at 14:42

Thank you for your support. It is greatly appreciated. 

User
Posted 24 Feb 2025 at 14:55

Hi Golfnut.


I'm sorry that you've had to find us, but welcome to the forum mate.


As others have said, the biopsy will shed far more light on your exact condition. Your prostate is about twice as big as normal, this plus other non cancerous conditions could cause a rise in your PSA. You've just got to take one step at a time mate, and deal with each procedure and result as it comes.


I hope that you're as lucky as Brian Campbell was yesterday on the second play off hole of the Mexico Open. Bouncing back into play off a tree that that was 10 yards out of bounds.


Please keep us updated and good luck with your results.

User
Posted 24 Feb 2025 at 15:48

Thank you Adrian56,


wise words and we could all do with a bit of that kind of luck. 

 
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