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Possible prostatic lymphoma

User
Posted 28 Feb 2025 at 21:30

Does anyone have any knowedge of prostatic lymphoma?  i know it’s extremley rare. 
i had the outcome of my first biopsy on a 4cm legion in my 90cc prostate and it came back as a no for carcinoma buy because they found ‘some small lymphocytes’ they have sent the samples upto Bristol for molecular genetic testing for the lymphoma experts to come up with an answer. 
so 4 weeks since i found out i had a PIRADS 5 lesion I’m still waiting for an outcome and been told I may have to wait a few weeks more.

Going to have a CAT scan in the mean time to save time if it comes back as lymphoma.

User
Posted 02 Apr 2025 at 15:53

Just an up date

CT scan came back showing a 1 inch nodule on my adrenal gland so needs further scanning to rule out anything dodgy.

but

on 24/3 had a phone call to say its prostatic lymphoma. Very rare. From my bad maths I think about one bloke every three yrs is diagnosed with it.

Now need to see the haematology specialist but not until 28/4!!!! Thats around three and a half months from when my urologist said we need to rule out cancer and organise an MRI scan. 

it feels like I’m lost between urology and haematology with no one responsible for ensuring I’m being seen and treated in time!

Edited by member 02 Apr 2025 at 16:01  | Reason: Not specified

 
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