Hi Gables17,
I was diagnosed in January, age 44, having been told for four years that I am too young.
there are so many different treatments and combinations and all of those will be specific to your needs if you are in fact diagnosed.
I am generally positive on the matter, have a number of fears about side effects of treatment, conflicted about age and the challenges that poses but also quite measured.
My wife and I discussed every step, we learnt about likely treatment options and side effects, we learnt about PCa. I have had conversations with strangers and family about intimate topics and I have all but surrendered my dignity in some areas.
You have a little way to go before a confirmed diagnosis and even then there is a wide range of outcomes and choices. There is also an amazing amount of support. The MacMillan nurses or CNS team are fecking awesome! I have a direct dial and email to ask anything and they have initiated referrals for specialist cancer treatment counselling as well as writing to my GP to ‘request’ assistance with ED matters. They have also had full, honest and frank conversations about many aspects of life, health, treatment, fears, concerns and matters of intimacy and support.
The coming weeks will be a roller coaster ride of emotions and questions. I found that being informed was really helpful. Going into my diagnosis appointment with an outline understanding of PIRAD, Gleason scores, TNM scores, and treatment options was really beneficial for us. We cut through the softly-softly chatter and were able to ‘get to business’ and could ask relevant questions. It helped us and I accept that this approach is not for all.
I sincerely wish you all the best and appreciate at least some of what you are experiencing as a fellow ‘young one’
feel free to DM me if you wish and good luck.