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49 feels a bit young for this!

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User
Posted 14 Mar 2025 at 16:43

Hi. I went to my GP after getting a positive on an Amazon home PSA test and came back with a PSA of 10.4. I was in Urology 2 days after that and I've already had an MRI with contrast (2 days after an MRI on my lumbar spine to see if I've aggravated an old injury there) and have now been called into the Urologist to "Discuss next steps". It's been about a week altogether. 

I don't really want to discuss anything, just tell me I'm fine! The Urologist specifically said that if there was nothing to worry about I'd just get a phonecall or a text. But now they want me in next working day, effectively.

I'm at risk because my dad had PCa a few years ago, and my grandad had Lymphoma. I'm not going to pretend to be a paragon of health. I have Fibromyalgia, Type 2 Diabetes (which I do not control at all well), ASD, ADHD, Depression, anxiety, a surgically repaired broken spine, 2 dodgy knees, a dodgy shoulder, Diverticular disease, IBS... If I was a horse, they'd shoot me, is what I'm saying. But this just feels like a kick very close to the proverbials that I just don't need. 

Stiff upper lip re-engaged, whine over. 

TL/DR I'm too young, I'm scared, I could really do with one part of my body working right. 

User
Posted 14 Mar 2025 at 16:43

Hi. I went to my GP after getting a positive on an Amazon home PSA test and came back with a PSA of 10.4. I was in Urology 2 days after that and I've already had an MRI with contrast (2 days after an MRI on my lumbar spine to see if I've aggravated an old injury there) and have now been called into the Urologist to "Discuss next steps". It's been about a week altogether. 

I don't really want to discuss anything, just tell me I'm fine! The Urologist specifically said that if there was nothing to worry about I'd just get a phonecall or a text. But now they want me in next working day, effectively.

I'm at risk because my dad had PCa a few years ago, and my grandad had Lymphoma. I'm not going to pretend to be a paragon of health. I have Fibromyalgia, Type 2 Diabetes (which I do not control at all well), ASD, ADHD, Depression, anxiety, a surgically repaired broken spine, 2 dodgy knees, a dodgy shoulder, Diverticular disease, IBS... If I was a horse, they'd shoot me, is what I'm saying. But this just feels like a kick very close to the proverbials that I just don't need. 

Stiff upper lip re-engaged, whine over. 

TL/DR I'm too young, I'm scared, I could really do with one part of my body working right. 

User
Posted 15 Mar 2025 at 02:44

Hi there Mrtwisty. Sorry to have to welcome you aboard. My psa was a tad higher than yours at 12.7. Like you, I'm relatively young (51), was diagnosed last May and had RARP in August. So far my psa is undetectable.  

Try to stay positive. First off, you don't have cancer until they biopsy you and tell you that you have cancer. And IF it does turn out to be cancer, at a psa of 10.4 it is very likely  contained locally and should be treatable with curative intent.

You are in the worst part of the journeyt right now having to go through the tests, waiting, worrying etc... If it does turn out to be pca, you will feel better once a treatment plan has been established. Trust me on that.

Hang in there. Things will get better.

Mike

 

User
Posted 15 Mar 2025 at 06:25

Thanks, Mike. I'm positive most of the time, I think it's just the combination of everything seeming to happen at the same time.

 

I have a lot of numbness in my left leg from my spinal injury and that is getting worse since a slip in the ice and snow earlier this year. I'd got my head around maybe needing more surgery on my spine, then this reared it's ugly head.

I've literally just been discharged from one department when I'm back at Orthopedics, then I'm suddenly at Urology at the same time. It just feels a bit much. And all while I'm trying to get my diabetes under control too, so I'm radically changing my diet and medication. 

I'm whining again, sorry. Thank you for your positivity, it's both needed and very welcome. 

User
Posted 18 Mar 2025 at 18:44

Thanks everybody. Saw the consultant yesterday and have an all clear? Kind of.

Small shadow on my MRI, we've chosen not to do a biopsy now due to my Hba1c levels meaning the risk of infection is very high. I'm down for monthly PSA tests and 3 monthly MRI's unless and until something changes.

I'm banking on the slow growth of this cancer giving me time to drop some weight and get my Hba1c levels down before we get to the "have to" stage. 

If anyone wants details of what the consultant said, I'll ask my wife. She was paying attention, I was not! I checked out pretty early in proceedings. My AuDHD kicked in with a vengeance. 

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User
Posted 15 Mar 2025 at 02:44

Hi there Mrtwisty. Sorry to have to welcome you aboard. My psa was a tad higher than yours at 12.7. Like you, I'm relatively young (51), was diagnosed last May and had RARP in August. So far my psa is undetectable.  

Try to stay positive. First off, you don't have cancer until they biopsy you and tell you that you have cancer. And IF it does turn out to be cancer, at a psa of 10.4 it is very likely  contained locally and should be treatable with curative intent.

You are in the worst part of the journeyt right now having to go through the tests, waiting, worrying etc... If it does turn out to be pca, you will feel better once a treatment plan has been established. Trust me on that.

Hang in there. Things will get better.

Mike

 

User
Posted 15 Mar 2025 at 06:25

Thanks, Mike. I'm positive most of the time, I think it's just the combination of everything seeming to happen at the same time.

 

I have a lot of numbness in my left leg from my spinal injury and that is getting worse since a slip in the ice and snow earlier this year. I'd got my head around maybe needing more surgery on my spine, then this reared it's ugly head.

I've literally just been discharged from one department when I'm back at Orthopedics, then I'm suddenly at Urology at the same time. It just feels a bit much. And all while I'm trying to get my diabetes under control too, so I'm radically changing my diet and medication. 

I'm whining again, sorry. Thank you for your positivity, it's both needed and very welcome. 

User
Posted 18 Mar 2025 at 16:34

Hi Twisty - welcome to the 'club' - I became a member/was diagnosed recently and just post biopsy stage so a little ahead of you. 

Totally understand your feelings and anxieties - remember 'you do you' and one of the worst parts of the journey is the 'is it/isnt it' game. Don't look too far ahead or go down too many Dr Google rabbit holes.

Sounds like you are a proactive person who is doing the right things, though you probably don't feel like it. 

Best wishes 

Justin

User
Posted 18 Mar 2025 at 17:02

Hi Mr Twisty,

I remember those times and can only say it’s normal to be scared. I’m 47 with a young family and naturally the mind jumps to worst case. The MRI is not definitive. If there is something on the MRI (>pirads 3)they may want to do a biopsy and again that doesn’t mean that will be positive. There are other reasons for PSA raises. As hard as it was I tried to look at it as ruling things out first and then after I was diagnosed was focused on what we do next. You’re in the right place here for support and information. I wish all the luck and hope good news comes your way.

 

Take care 

Stuart

User
Posted 18 Mar 2025 at 18:44

Thanks everybody. Saw the consultant yesterday and have an all clear? Kind of.

Small shadow on my MRI, we've chosen not to do a biopsy now due to my Hba1c levels meaning the risk of infection is very high. I'm down for monthly PSA tests and 3 monthly MRI's unless and until something changes.

I'm banking on the slow growth of this cancer giving me time to drop some weight and get my Hba1c levels down before we get to the "have to" stage. 

If anyone wants details of what the consultant said, I'll ask my wife. She was paying attention, I was not! I checked out pretty early in proceedings. My AuDHD kicked in with a vengeance. 

 
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