I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Had surgery today what next

User
Posted 18 Mar 2025 at 23:16

Hello folks been a few weeks since I decided to go the surgery route. I’ve had surgery this morning at 9am. Received full nerve sparing on both sides and the surgeon says as far as he can see it was a success. I’m feeling relatively good quite a bit upper body pain but managing with pain meds. Can’t thank the staff in the hospital and surgeon for how good they’ve been. 
my next set questions are what lies next for me? Fully prepared for edf and for possibly being inlcontanent.
my main worries are managing my catheter and trying to get comfortable at home in the short term. Is there anything any one can recommend that will make life easier. 
in long term will I ever be as I was before I’m a very sociable person and enjoy the odd day out on the drink. I’m more than happy to abstain from alcohol for next 6/8 weeks while I heal. I’m also wondering what I do about the gym and exercise when can I begin this again? 
what sort of pads do I need or is better to have full male nappies. Anything you’d can recommend in terms of medication and just general advice. Not expecting much sleep tonight as on a very loud ward. 😂. Sorry for rambling my heads just a bit fuzzy.
thanks Gary 

User
Posted 19 Mar 2025 at 02:03

Hi Gary. Congrats on giving your pca a grand eviction. So long, see ya!! I had my RARP exactly 7 months ago tomorrow. Biggest thing right now is take it very easy for the next 3 - 4 weeks. I was feeling surprisingly well the morning after my surgery and asked to get out of bed so I could walk around a bit. I did a lap around the hospital and felt really well, energized and was joking around with some of the nurses. I decided to keep walking and did another lap or two and then suddenly out of nowhere I got really dizzy, hot, was sweating profusely. Next thing I know I'm flat on the floor with an emergency response team scrambling around me. I had passed out cold for a few minutes. Thankfully I ended up being ok. I just did a little too much, too soon. For the next 2 weeks I found that if I got up to quickly or moved around too much I would get a little winded. Somewhere around week 3 or 4 I started going for short walks outside. At week 6 I started doing short jogs and gradually got myself back up to full speed (exercise wise) within a few  weeks of that.

As for the catheter, have the nurses show you how to keep the area around the tube at the tip of your penis clean. They have special wipes for that, that you must use to avoid getting a UTI. Also, always make sure you have the bag and tubing positioned in a way to keep the urine flowing properly to the bag. The tube on mine was very long and had a tendency to drape on the floor below the bag. When this happens, the flow stops and creates a little pressure inside the bladder giving you the feeling that you have to urinate. It won't hurt you, but can be a little annoying. My first night I didn't realize what was happening and laid awake for about three hours with a strong feeling that I had to pee. I wasn't sure how I was supposed to feel with a catheter in so I just suffered needlessly for a while. I finally called a nurse who quickly manipulated the tube and voila, no more discomfort. 

As for incontinence, don't stress too much about this at this point. Sounds like your surgery went well and you most likely will have better control than you think. When my catheter was removed they gave me some diapers and pads to take home to get started. Having no idea what degree of control / leakage I would have, as a precaution I did wear a diaper for the car ride home and for the first few hours afterwards. But I ended up having near perfect control so by that first evening I switched to a pad which was plenty fine. I found I had just the occasional surprise drip here and there for maybe the first 2 months which gradually went away. By somewhere around month 3 I was completely dry and ditched the pads altogether. You might want to start with the heavier pads and then downsize to the lighter ones if it's overkill. Do kegel exercises 3 times daily after the catheter is removed. This will aid in regaining full control.

You mentioned alcohol. For me, alcohol gave me the most trouble (even more than caffeine) for probably the first 4 months. Not so much as far as leaking is concerned, but more with frequency and urgency having to go. Even just 1 pint would irritate my bladder and make have to urinate urgently every 30 minutes or so for maybe 2 hours. Thankfully this too is no longer the case, but just be aware, you body has been through a lot and will need some time to get fully back to normal. But you'll get there. The worst part is now behind you. Again, congrats and feel better!

 

Mike

User
Posted 19 Mar 2025 at 11:19

Great news on the surgery… Onwards and upwards.

Just take it easy. I suspect you’ll be up and about today ….the shoulder pain can be intense and being an ex scuba diver I called it the Bends ðŸĪŠ But it’s just gas bubbles dissolving and eases over 24/36 hours. 

Catheter management was a concern for me, but it was a lot easier than anticipated. Just be careful not to over touch things and keep the area super Clean. Primary goal is to avoid infection ideally. I was advised by the CNSnot to touch the end of my urethra at all and not to apply ointment. I balanced the soreness by placing a catheter tube retainer clip on each leg and I would alternate which leg the bag was attached to every 12 hours or so  that one side of the urethra didn’t get too much abrasion.

I followed instructions accurately had lots of disinfectant wipes. A builders bucket to support the bag night stand is super useful for the night catheter bag as it keeps it stable.

in terms of the gym fairly simple… Nothing for 12 weeks. Then ease yourself back into it but there’s no limits on what you can do but listen to your body.

I created a slightly laying back seating position on the sofa which helped take the pressure off the pelvic floor for a few weeks after surgery.

Best of luck as that’s the hard bit over hopefully

Edited by member 19 Mar 2025 at 23:08  | Reason: Not specified

User
Posted 19 Mar 2025 at 17:18
 

 

I wore snug but not tight elasticated short type underwear, it stopped the catheter from moving around to much, I also had a pad in my underwear to pick up any bypassing of urine.

 

Just in case the catheter makes the eye of the penis sore ask the nurse for some instilagel, optilube or hydrocaine. They also are available from a pharmacist without prescription at most chemists except Boots, who require a prescription. The above gels are designed for catheter insertion and maintenance they contain , anesthetic, antiseptic and lubrication. The hospital may give you some, it is a couple of pounds a syringe, you may not need it. Slight leaking of urine and blood from the penis can happen even with a catheter in, particularly when passing a motion.

 

A bucket is often suggested, but medical advice is that the catheter should be supported not just left in the bottom of the bucket. I have never had a night bag leak, but did once disconnect the night bag before turning the leg bag tap off. Get an extra thigh strap from the hospital, attach the night bag tube to the leg bag outlet then attach the night bag tube to your ankle with the strap, it helps reduce the risk of pulling on the joints. PJ bottoms also help save any tangles. 

The extra thigh straps are also useful for showering. Drain the bag, make sure the thigh strap is secure, remove the leg bag straps. Have a shower ,dry yourself put the spare thigh strap on the other leg, transfer the catheter to the dry strap. Refit the leg bag straps.  Remove the wet strap and leave to dry for the next time.

 

Try to avoid constipation.

Thanks Chris 

 

User
Posted 19 Mar 2025 at 19:22

Take it easy. I was a fit guy pre-op, could only manage walking to the corner for a week. Once the catheter is removed remember your pelvic floor exercises.

User
Posted 21 Mar 2025 at 12:01
Hi Gary.

I found the elasticated bandages excellent I got the thigh ones & tucked the bag in them. I had surgery in oct so still short weather & the bag sat nicely out of sight oh upper thigh. As our friends on this site have said previously everyone is different but I was lucky, went to hospital for twoc ( catheter removal) 7 days post surgery.& was in & out within the hour, walked the mile & a half home & only used a light pad for the next few weeks as I had a odd drip on exertion ie going from sitting to standing sneezing etc. Regarding the gym & exercise I waited the full 6 weeks before steady jogging & started back at the gym using just light weights at the same time. Just remember you have had major surgery listen to your body & build up steady.

Hope you have a quick recovery as well, I always thought that the gym work I have always done over he years helped me in my recovery, the incline sit ups I have always done on my routine I think helped my pelvic floor immensely.

Best of luck. Jeff.

User
Posted 21 Mar 2025 at 12:04
Gary the elasticated bandages I referred to are the thigh strap ones you would use for a muscle or thigh strain.

All the best.

Show Most Thanked Posts
User
Posted 19 Mar 2025 at 02:03

Hi Gary. Congrats on giving your pca a grand eviction. So long, see ya!! I had my RARP exactly 7 months ago tomorrow. Biggest thing right now is take it very easy for the next 3 - 4 weeks. I was feeling surprisingly well the morning after my surgery and asked to get out of bed so I could walk around a bit. I did a lap around the hospital and felt really well, energized and was joking around with some of the nurses. I decided to keep walking and did another lap or two and then suddenly out of nowhere I got really dizzy, hot, was sweating profusely. Next thing I know I'm flat on the floor with an emergency response team scrambling around me. I had passed out cold for a few minutes. Thankfully I ended up being ok. I just did a little too much, too soon. For the next 2 weeks I found that if I got up to quickly or moved around too much I would get a little winded. Somewhere around week 3 or 4 I started going for short walks outside. At week 6 I started doing short jogs and gradually got myself back up to full speed (exercise wise) within a few  weeks of that.

As for the catheter, have the nurses show you how to keep the area around the tube at the tip of your penis clean. They have special wipes for that, that you must use to avoid getting a UTI. Also, always make sure you have the bag and tubing positioned in a way to keep the urine flowing properly to the bag. The tube on mine was very long and had a tendency to drape on the floor below the bag. When this happens, the flow stops and creates a little pressure inside the bladder giving you the feeling that you have to urinate. It won't hurt you, but can be a little annoying. My first night I didn't realize what was happening and laid awake for about three hours with a strong feeling that I had to pee. I wasn't sure how I was supposed to feel with a catheter in so I just suffered needlessly for a while. I finally called a nurse who quickly manipulated the tube and voila, no more discomfort. 

As for incontinence, don't stress too much about this at this point. Sounds like your surgery went well and you most likely will have better control than you think. When my catheter was removed they gave me some diapers and pads to take home to get started. Having no idea what degree of control / leakage I would have, as a precaution I did wear a diaper for the car ride home and for the first few hours afterwards. But I ended up having near perfect control so by that first evening I switched to a pad which was plenty fine. I found I had just the occasional surprise drip here and there for maybe the first 2 months which gradually went away. By somewhere around month 3 I was completely dry and ditched the pads altogether. You might want to start with the heavier pads and then downsize to the lighter ones if it's overkill. Do kegel exercises 3 times daily after the catheter is removed. This will aid in regaining full control.

You mentioned alcohol. For me, alcohol gave me the most trouble (even more than caffeine) for probably the first 4 months. Not so much as far as leaking is concerned, but more with frequency and urgency having to go. Even just 1 pint would irritate my bladder and make have to urinate urgently every 30 minutes or so for maybe 2 hours. Thankfully this too is no longer the case, but just be aware, you body has been through a lot and will need some time to get fully back to normal. But you'll get there. The worst part is now behind you. Again, congrats and feel better!

 

Mike

User
Posted 19 Mar 2025 at 11:19

Great news on the surgery… Onwards and upwards.

Just take it easy. I suspect you’ll be up and about today ….the shoulder pain can be intense and being an ex scuba diver I called it the Bends ðŸĪŠ But it’s just gas bubbles dissolving and eases over 24/36 hours. 

Catheter management was a concern for me, but it was a lot easier than anticipated. Just be careful not to over touch things and keep the area super Clean. Primary goal is to avoid infection ideally. I was advised by the CNSnot to touch the end of my urethra at all and not to apply ointment. I balanced the soreness by placing a catheter tube retainer clip on each leg and I would alternate which leg the bag was attached to every 12 hours or so  that one side of the urethra didn’t get too much abrasion.

I followed instructions accurately had lots of disinfectant wipes. A builders bucket to support the bag night stand is super useful for the night catheter bag as it keeps it stable.

in terms of the gym fairly simple… Nothing for 12 weeks. Then ease yourself back into it but there’s no limits on what you can do but listen to your body.

I created a slightly laying back seating position on the sofa which helped take the pressure off the pelvic floor for a few weeks after surgery.

Best of luck as that’s the hard bit over hopefully

Edited by member 19 Mar 2025 at 23:08  | Reason: Not specified

User
Posted 19 Mar 2025 at 17:18
 

 

I wore snug but not tight elasticated short type underwear, it stopped the catheter from moving around to much, I also had a pad in my underwear to pick up any bypassing of urine.

 

Just in case the catheter makes the eye of the penis sore ask the nurse for some instilagel, optilube or hydrocaine. They also are available from a pharmacist without prescription at most chemists except Boots, who require a prescription. The above gels are designed for catheter insertion and maintenance they contain , anesthetic, antiseptic and lubrication. The hospital may give you some, it is a couple of pounds a syringe, you may not need it. Slight leaking of urine and blood from the penis can happen even with a catheter in, particularly when passing a motion.

 

A bucket is often suggested, but medical advice is that the catheter should be supported not just left in the bottom of the bucket. I have never had a night bag leak, but did once disconnect the night bag before turning the leg bag tap off. Get an extra thigh strap from the hospital, attach the night bag tube to the leg bag outlet then attach the night bag tube to your ankle with the strap, it helps reduce the risk of pulling on the joints. PJ bottoms also help save any tangles. 

The extra thigh straps are also useful for showering. Drain the bag, make sure the thigh strap is secure, remove the leg bag straps. Have a shower ,dry yourself put the spare thigh strap on the other leg, transfer the catheter to the dry strap. Refit the leg bag straps.  Remove the wet strap and leave to dry for the next time.

 

Try to avoid constipation.

Thanks Chris 

 

User
Posted 19 Mar 2025 at 19:22

Take it easy. I was a fit guy pre-op, could only manage walking to the corner for a week. Once the catheter is removed remember your pelvic floor exercises.

User
Posted 20 Mar 2025 at 03:45

Hi Gary

I am 66 and had surgery on 25th Jan 2025.

I found the catheter a bit awkward but you do get used to it ,the main thing is to make sure the pipe isn’t kinked and the bag is filling up ,I was amazed at how full the bag gets .Make sure you drink plenty of water to keep flushing you out (leave the alcohol until later).

I had it removed after 1 week ,amazed at how simple and painless the process was .Take all the freebies that the Hospital provides (I live in Birmingham and got lots of pads plus a very nice ED pump)

The incontinence was the main thing that hit me once the catheter was removed ,initially it is a relief to pee again without the catheter,but that soon wears off when you don’t have full control of your bladder .I initially wore incontinence pads from Lidl (£5 for 14 medium strength) ,I kept these on at night ,most people find that we leak a lot less when we sleep ,during the day when we move around we leak more ,I used to put another pad inside the pants and change when it got wet .I find that I have used between 4 to 6 pads per day.

It is important to drink plenty of water ,despite the fact that what goes in will inevitably come out !

I find it better to drink less and often ,but not too late in the evening .

At week 6 post operation I changed to snug y front pants with a Tenna type pad works best for me,change my pad every 3 to 4 hours .I had a consult with my surgeon at 6 weeks ,he told me I should be using about 3 pads per day at this stage .I had downloaded the Squeezy app to help with my Pelvic floor exercises .I was doing 3 sets of 10 ,long and short reps per day but the surgeon suggested I do 5 sets per day .

On the subject of pads I tried the different varieties supplied by my Hospital and a few other varieties off Amazon.

i have for now settled on the v shaped variety (Tenna style),but found some on amazon that we £20 for 100.

There are lots of threads on here about incontinence,it is something we have to manage and will take some months usually before we regain control.

Do not overdo things ,don’t carry heavy shopping bags ,I let my wife carry the load for a while 😂

At 6 weeks my surgeon told me I could start to play golf again ,I played 9 holes that day and felt great ,we are all different so listen to your body and err on the cautious side.

My wound started to itch like mad after 4 weeks and so I had a Drs appointment and was prescribed antibiotics so keep an eye on these ,they seem to put a gauze on post op which is hard to see and should come off eventually.The nurse at the surgery removed the piece from my main wound which was the main source of infection ,I immediately felt better.

At 6 weeks post op I decided to start my Penile rehabilitation,up until then it had laid low in my pubes and was almost invisible.The vacuum pump does take some getting used to ,but I find the key is to put plenty of lubricant on the end of the tube that sits up against your skin.It is amazing how the vacuum increases your blood flow and your “Old Man” will grow in stature and you will look like a man again.It is important that you do this process regularly and correctly .There is stuff on  this site and you tube that will give you advice.I now look forward to doing the exercise and actually was so stimulated the other day I had my first dry orgasm ,which was just as good as the old ones ,without the mess 😂

I hope that you progress well ,my advice would be to use this site for information and advice from some great people who are or have gone through the same experience as you.Refer to your Urology team for any medical concerns and most of all stay Positive and listen to your Body 👍

User
Posted 20 Mar 2025 at 20:50

Hello folks I’m now a few days post op and been the hardest one yet struggling with the catheter just can’t get it comfortable on my leg with the straps provided by hospital I’ve order some stuff off Amazon that’s arriving tomorrow so touch wood that helps also the tip of my penis is so sore but been advised not to put anything on and just to wash it with warm water. I want to try and get out but the catheter is really hindering me. 
also I’ve not yet been to the toilet taken the laxatives provided by hospital but unsure weather or not to get back in touch with them as feel very bloated. Any advice on these would be appreciated. 
Thenks Gary

User
Posted 20 Mar 2025 at 21:24
Hi Gary

I was given Movicol when I left hospital, but I'd used this in the past and it had no effect. So I was already prepared with Lactulose at home which worked very well for me.

I had an awful time with my catheter. Day 3 I had complete meltdown over it. The day it was removed was an immense sense of relief and a day for celebration. Once it is out, you will feel so much more comfortable.

Best wishes,

Seb

User
Posted 21 Mar 2025 at 06:41
Folks on here used to recommend a local anesthetic creme / gel for the "sore one eyed trouser snake" issue.

Can't remember what it was called though sorry.

Re getting about, stop trying so hard and try and relax for a bit at least until the catheter is out.

User
Posted 21 Mar 2025 at 06:58

Gary ,what have you ordered off Amazon and who told you not to use anything. Vaseline is definite no no. Creams tends to go crusty and can cause issues.

Franci, instilagel, hydrocaine or optilube, nurses always gave me squirt of instilagel.

Thanks Chris 

Edited by member 21 Mar 2025 at 07:28  | Reason: Wrong word

User
Posted 21 Mar 2025 at 07:25

Hi Gary, 

The catheter is pretty uncomfortable and I felt a whole lot better when it was removed on day ten.

It took three days before my bowels opened so hopefully it won't be long now. 

Take it easy, you'll feel better as the days pass.

Good luck, 

Kev.

User
Posted 21 Mar 2025 at 07:36

Have you tried alternating leg the bag is strapped to every 12hrs? For me that pretty much solved the discomfort issue.

User
Posted 21 Mar 2025 at 07:36

Nothing in terms of cream for the penis from Amazon just straps and holders to try and make the catheter a bit more comfortable so I can try and get out and about. 
The district nurse advised me not to put anything on the tip of the penis I asked for a gel or a creme she just said it was normal to have pain in that area. I’m considering contacting the hospital today if things don’t ease as I’ve not slept properly in 3 days so tiredness is taking its toll now as well. 

User
Posted 21 Mar 2025 at 07:37

Yeah I’ve swopped legs and moved from calf to thigh but with no real change thanks though 

User
Posted 21 Mar 2025 at 08:38

Originally Posted by: Online Community Member

Nothing in terms of cream for the penis from Amazon just straps and holders to try and make the catheter a bit more comfortable so I can try and get out and about. 
The district nurse advised me not to put anything on the tip of the penis I asked for a gel or a creme she just said it was normal to have pain in that area. I’m considering contacting the hospital today if things don’t ease as I’ve not slept properly in 3 days so tiredness is taking its toll now as well. 

The three gels I reminded Francis about are used for insertion and maintenance of catheters. If the penis cannot slide over the catheter it can cause issues in the eye of the penis. I would ring your urology nurse and get advice from them. I have had a catheter on thirteen separate occasions and always used one of the gels.

Thanks Chris 

 

 

User
Posted 21 Mar 2025 at 12:01
Hi Gary.

I found the elasticated bandages excellent I got the thigh ones & tucked the bag in them. I had surgery in oct so still short weather & the bag sat nicely out of sight oh upper thigh. As our friends on this site have said previously everyone is different but I was lucky, went to hospital for twoc ( catheter removal) 7 days post surgery.& was in & out within the hour, walked the mile & a half home & only used a light pad for the next few weeks as I had a odd drip on exertion ie going from sitting to standing sneezing etc. Regarding the gym & exercise I waited the full 6 weeks before steady jogging & started back at the gym using just light weights at the same time. Just remember you have had major surgery listen to your body & build up steady.

Hope you have a quick recovery as well, I always thought that the gym work I have always done over he years helped me in my recovery, the incline sit ups I have always done on my routine I think helped my pelvic floor immensely.

Best of luck. Jeff.

User
Posted 21 Mar 2025 at 12:04
Gary the elasticated bandages I referred to are the thigh strap ones you would use for a muscle or thigh strain.

All the best.

 
Forum Jump  
©2025 Prostate Cancer UK