Active surveillance or prostate removal.

Hi Steve.

I'm sorry that you've had to join the club but welcome to the forum, mate.

What is your cancer staging and how many lesions do you have? I presume that you are T2 and it is safely contained within the prostate.

You've had two medical opinions. You say that your Gleason 6 was a typo and should have been 7(3+4). Was this typo significant to the original opinion. Was it made on your biopsy report or made later?  Did the consultant who originally advised AS know your true Gleason score or did he/she base their advise on incorrect information?

I had typos in my intial diagnosis. My cancer staging was T2c, but a later typo recorded it as T1c. Fortunately, in my case, it didn't make a great deal of difference to the advice given to my treatment options.

Despite your family history of the disease, I'd have thought, with such a low PSA, whether you were Gleason 6 (3+3) or Gleason 7 (3+4), that AS, surgery or radiotherpy/HT were all options to you?

I'm not medically trained, but based on the details you've given, at this stage, I would question that surgery is the only option for you.

Best of luck to you.

As IDK2 says genetic testing would be very useful. With your current scores and age every treatment including AS should be available, but if you have a BRCA gene then it starts making surgery much more appealing. Treating you with RT will leave your prostate in place and if you are 49 and are genetically predisposed to prostate cancer then you have a high probability of developing a fresh cancer within a few decades.

Hi after the typo I have been informed that the multi discipline team did review it and said to stay on active surveillance. The mistake was found 7 months after the biopsy but having made a complaint to try and improve processes I was told that the original multi discipline team agreed on Gleason 3+4 but then I was told and my paperwork said 3+3.