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life after prostrate cancer

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User
Posted 28 Mar 2025 at 16:32

Dear everyone

                        its been now nearly 3 years since my prostrate removal, life in general is almost back to normal, except in the bedroom department.First I tried the pump, that worked ok ,but the bands I found not very comfortable, this put me off also with the fiddling around before any sex. Dont get me wrong it works and for some this will be perfectly fine.I have tried viagra and this tends to have a delayed action, normally after taking the 50mg dose I tend to get a delayed reception and it can really take hours.I normally wake up with an erection rather than get one in an hour.Maybe this needs a bigger dose.What has worked the best for me is caverject.  Now its like gold trying to get the normal 20mg injections, in fact its now been 4 months since my last supply of the drug.Is anyone else having this problem.I think it effecting me more than my partner getting quite anxious over the whole situation. The doctors keep saying wait and see, but how long is a piece of string.Does anyone know of a suitable alternative as I am getting no feed back of my GP, its bad enough trying to get past the receptionist never mind see a doctor.Just wondering if this is normal amongst you guys .

William

User
Posted 28 Mar 2025 at 16:53

Hi William.

Caverject didn't work for me but Invicorp does. Unfortunately, there are ocassionally supply issues with this drug. Here's a conversation on Invicorp.

https://community.prostatecanceruk.org/posts/t29845-Hooray-for-Invicorp

 

User
Posted 03 Jun 2025 at 20:49

Shortage of Invicorp in  N.Lincs. May be Putin's behind it, trying to soften us up?

User
Posted 14 Jun 2025 at 08:44
Generic caverject sounds like good news. My wife has just had some generic HRT hope that is as good as the "real" stuff! Adrian56 you might want to suggest it!
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User
Posted 28 Mar 2025 at 16:53

Hi William.

Caverject didn't work for me but Invicorp does. Unfortunately, there are ocassionally supply issues with this drug. Here's a conversation on Invicorp.

https://community.prostatecanceruk.org/posts/t29845-Hooray-for-Invicorp

 

User
Posted 28 Mar 2025 at 21:12

Hi William,

I am almost 3 years post-op and still have great difficulty getting an erection without chemical assistance.  I use 5mg. of Tadalafil ('Cialis') daily just for maintenance of blood flow to penis, but I rarely get any erection with this dosage.  If you are using Sildenafil ('Viagra') then I would suspect that you need a full 100mg. dose.  Even then, you will probably still need direct stimulation of the penis for any meaningful response, rather than waiting for a spontaneous erection.

 I also use the 40mcg. dose of Caverject to get a useable erection.  (The 20mcg. dose was insufficient for me).  I am only prescribed enough for one injection per week, so I have to ration it :-).  I have also sometimes had interruptions to supply, but currently there doesn't seem to be a problem.  (I'm in Manchester and use Boots Pharmacy).

Best wishes,

JedSee.

User
Posted 03 Jun 2025 at 20:34
hi again its been a few weeks since I raised the subject of caverject.Still supplies are very hard to find and fast o yet I have not received any for the last 4 months.How are you guys now finding supplies.Is this a postcode lottery or are supplies scarce across the UK.

User
Posted 03 Jun 2025 at 20:49

Shortage of Invicorp in  N.Lincs. May be Putin's behind it, trying to soften us up?

User
Posted 03 Jun 2025 at 21:14
its getting quite ridiculous its been 4 months since I last had any at all.And its going to be August/September before the hospital will see me to try and change to anything else that maybe available.
User
Posted 13 Jun 2025 at 20:14

a couple of days ago my chemist pharmacy sent me a message saying they have a generic replacement for caverject until supplies get back to normal.He said ill send you a months supply 4 injections . I started to titter he asked what's up .hmm I said after waiting almost 5 months since my last caverject and the fact this could also run out , can you sent me 6 months supply .Thats a lot for you he said . nope that's just to keep the wife happy.

User
Posted 14 Jun 2025 at 08:18

Originally Posted by: Online Community Member
Thats a lot for you he said . nope that's just to keep the wife happy.

Still no Invicorp in N.Lincs. My wife is ecstatic.  😁

User
Posted 14 Jun 2025 at 08:44
Generic caverject sounds like good news. My wife has just had some generic HRT hope that is as good as the "real" stuff! Adrian56 you might want to suggest it!
User
Posted 14 Jun 2025 at 09:30

Originally Posted by: Online Community Member
Generic caverject sounds like good news. My wife has just had some generic HRT hope that is as good as the "real" stuff! Adrian56 you might want to suggest it!

No mate, I'll just have to dust off my George Clooney face mask and buy her yet another new handbag.

Edited by member 14 Jun 2025 at 10:03  | Reason: Not specified

 
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