I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Prostate cancer survivor. Here to answer anyone's questions based on my experiences.

Email this conversation Print this conversation
User
Posted 31 Mar 2025 at 21:23

I have survived prostate cancer for 8 yrs now. I had surgery in 2017 to remove my prostate and I remember having tons of questions along the way, and nobody to talk to, except the doctors, who I trusted, but their answers were always so sterile, if you will. Please feel free to ask anything, whether you are recently diagnosed, or you just want to compare your experience with someone on the same journey. I might add that I also had penile implant surgery, and I am not imbarrassed to discuss that as well, if interested. I just remember that I had no forum to ask questions along the way, and it would have helped me tremendously, to have discussed these issues with someone who had been there already. 

User
Posted 31 Mar 2025 at 21:23

I have survived prostate cancer for 8 yrs now. I had surgery in 2017 to remove my prostate and I remember having tons of questions along the way, and nobody to talk to, except the doctors, who I trusted, but their answers were always so sterile, if you will. Please feel free to ask anything, whether you are recently diagnosed, or you just want to compare your experience with someone on the same journey. I might add that I also had penile implant surgery, and I am not imbarrassed to discuss that as well, if interested. I just remember that I had no forum to ask questions along the way, and it would have helped me tremendously, to have discussed these issues with someone who had been there already. 

User
Posted 01 May 2025 at 19:09

Well done you.

I, too, am a survivor having been diagnosed as Stage 4 in June 2012 with a PSA of 660. Only ever been on hormone therapy (still have my prostate) now with an undetectable PSA plus both body scans (bone and soft tissue) from middle of last year show no evidence of cancer (whereas previously widespread).

Yes, it is a traumatic diagnosis but hope always persists.

User
Posted 05 May 2025 at 22:04

Hi Dave,

Possibly I am but it has never been raised by my Onco and I may discuss at next appointment and see what they say.

Show Most Thanked Posts
User
Posted 31 Mar 2025 at 22:10

Welcome to the forum Jerry!

User
Posted 01 Apr 2025 at 00:29

Hi Jerry.

Welcome to the forum mate.

It's a pity that you didn't find us eight years ago when you were diagnosed and going through your treatment. It's always been full of people like you who've dealt with prostate cancer and who are willing to help and support others who are going through it.

I think there are only a couple of the lads that have had the implant operation on here, so your experiences will be helpful to others who may be considering having the operation.

Edited by member 01 Apr 2025 at 00:32  | Reason: Typo

User
Posted 01 Apr 2025 at 04:22

Jerry, just wondering if your PSA has remained undetectable for 8yrs and also if your surgery was nerve sparring?

Thanks

User
Posted 01 May 2025 at 19:09

Well done you.

I, too, am a survivor having been diagnosed as Stage 4 in June 2012 with a PSA of 660. Only ever been on hormone therapy (still have my prostate) now with an undetectable PSA plus both body scans (bone and soft tissue) from middle of last year show no evidence of cancer (whereas previously widespread).

Yes, it is a traumatic diagnosis but hope always persists.

User
Posted 01 May 2025 at 21:37
Hi Boroboy, you're a walking miracle. Great results pal, can you advise how your body has coped with 12 years of HT?

Weight gain, fatigue, blood pressure wise?

User
Posted 03 May 2025 at 06:34

Boroboy, are you a candidate for intermittent hormone therapy? I know there is an argument for not rocking the boat, but it sounds like you might be able to go some time without HT, of course if the HT ain't bothering you no point in changing.

Edited by member 06 May 2025 at 02:29  | Reason: Not specified

Dave

User
Posted 04 May 2025 at 19:41

Originally Posted by: Online Community Member
Hi Boroboy, you're a walking miracle. Great results pal, can you advise how your body has coped with 12 years of HT?
Weight gain, fatigue, blood pressure wise?

Absolutely, it always amazes me how some men don’t seem to get side effects, yet others suffer intolerably, and nobody seems to know why? We’ve got an 80+ gent in our Maggies Group, stage 4, been on HT for years, and everything else….and never really had any side effects🤷🏼‍♂️

User
Posted 05 May 2025 at 22:00

Hi, 

Reasonably well. Weight gain and fatigue are probably the main factors. Weight gain was fairly quick in coming and I put on about two stone. That, obviously impacts pressure on knees/hips and I am on BP pills (after about 4 or 5 years in and may not be PC related).

Fatigue is now much more of an issue but I am 78 - it was not so bad in the early years.

Yes, I agree with you - I am very lucky.

 

User
Posted 05 May 2025 at 22:04

Hi Dave,

Possibly I am but it has never been raised by my Onco and I may discuss at next appointment and see what they say.

 
Forum Jump  
Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2025 Prostate Cancer UK