Good news stories of people with low psa who survived

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User

Posted 15 May 2025 at 08:17

i have very low psa of around 0.5. Im 54

my gp has found a nodule and i have bone pains in my pelvis back and shoulder.

i stupidly read dr google and low psa means it could be an aggressive prostate cancer variant like small cell neuro endrocine prostate cancer which is resistant to most treatment.

i could really do with hearing some good news stories of people who had low psa but managed to survive for a good many years with this horrible nightmare.

thanks

User

Posted 15 May 2025 at 10:02

Don't start worrying until you have a clear diagnosis.

I spent years worrying about hip pain after my prostate was removed, turned out I just needed a hip replacement.

User

Posted 15 May 2025 at 15:45

Hello again mate.

The good news is that the vast majority of those with a low PSA, including those with nodules or not, and unexplained pains; do not have PCa. I hope that your results put you in that group.

Good luck and please keep us updated. 👍

User

Posted 15 May 2025 at 17:58

When I was diagnosed 9yrs ago I got a pain in my hip so intense I couldn't walk for a week. Googling came up with a report in a newspaper known for exaggeration that 3 surgeons in the UK who'd had similar discovered it was prostate cancer. In my case it went on for months but it didn't show up on scans. It eventually went away, my GP said it was probably arthritis. I thought it was over exercising at the gym.

When I was first diagnosed the nurse said don't Google, don't read extreme newspapers, and watch out for places touting for business. But Googling is what I did at every opportunity. Frightens you almost to death.

A nurse at Prostate Cancer UK said don't get ahead of yourself. Take each step as it comes. I liked that advice, I kept telling it to myself.

User

Posted 16 May 2025 at 01:03

Hi Adrian56

i hope you are right.
However i seem to have bone pains everywhere. I dont know if this is normal with aggressive pc but each week i seem to get a different additional bone pain.

Now my spine has started and it hurts to lay on it and even breathing in and out hurts my ribs. At night is worse.

The thing that doesnt make sense is with this much bone changing activity, you would think my calcium levels or ALP would elevate but they are all fine and have never budged in 3 years. Heres my latest blood test from 2 days ago.

calcium 2.5 mmol/L

calcium adusted level 2.28 mmol/L (range 2.2 -2,6)

ALP 53 u/L (range 30 - 150}

Serum total protein 68 g/l (range 57 - 76)

Serum inorganic phosphate 0.8mmol/l (range 0.8 - 1-5)

All within range or even quite low. Surely if all my bones are changing i would get some indication in my blood?

Edited by member 16 May 2025 at 01:39 | Reason: Spelling

User

Posted 16 May 2025 at 07:58

it is evident from your posts that you are extremely anxious and that your mind is in overdrive. The facts are you have a very low PSA, your GP has recently felt a nodule when undertaking a DRE, which may well be insignificant, you are experiencing pain that is likely to be unrelated to prostate cancer given your PSA result but not impossible and you have been referred to a urologist under the two week pathway as per NHS guidance. There is nothing you can do but wait for tests deemed appropriate by your urologist.

It seems from your posts that you believe you have aggressive prostate cancer and although I cannot say that is not the case as can no one on this site, the facts are that the odds are very much in your favour that this is not the case.

I am not sure though there is anything anyone can say that will reassure you at this point in time as no one can talk in certainties. It is entirely normal to feel extremely anxious when faced with these uncertainties but it appears that currently you are unable to rationalise things and acknowledge it is more likely that nothing sinister will be found.

I would suggest given your obvious distress that you speak to your GP about this as he/ she may be able to offer some counselling or medication. I think at this point in time that may provide you with the practical assistance that you may benefit from.

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