Sadly this is the state of affairs! My Husband is 16 months post RARP and at just over 12 months of PFE’s and a consultation with urologist, it was decided his continence would never improve without further surgical intervention (male sling or artificial urinary sphincter), apparently because his bladder sphincter was damaged during surgery (which does happen in 5% of prostatectomies with the difficulty of rejoining the urethra)
He was however put on a list to see incontinence nurse anyway (whilst we are waiting for appointments to see another surgeon specializing in the required surgeries)…. So that was in February and still no sign of an appointment (we were warned it was a long waiting list!).
It’s the same with getting help with ED; Steve was 75% nerve sparing so should regain some natural function although the timescales likely to be post 2years RARP; again he was referred to ED clinic in February and still waiting. Our GP has been helpful in the meantime prescribing Sildenafil and then Tadalafil but no success with either; we are just waiting for next GP appointment to discuss injections (as well as trying, not very successfully to use the pump, we need to persevere with this, but it’s difficult as the incontinence doesn’t help!)
I’m afraid it’s a long and frustrating process and we are just trying to be grateful through it all that the cancer is gone and psa readings have all been undetectable!
Stick in there, it is still early days for you and the time does pass quickly! I hope the incontinence does improve on its own, but if it doesn’t, you do learn to carry on with life and adjust.
Edited by member 20 May 2025 at 11:16
| Reason: Sp