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2 days until catheter removal

User
Posted 02 Jun 2025 at 20:43

Hello! 

I’m Nick, I’m 51 and have been enjoying reading the conversations in this forum (and in particular laughing at Adrian56’s comments).  I am relatively new to the site having being diagnosed in April and had RALP towards the end of May.  

I am having my catheter removed on Weds and am a bit apprehensive about it given some of the stories about leakage but I will be pleased to say goodbye to the bag and pipe for sure.  I did my pelvic squeezes for a couple of weeks - do people think that made much of a difference?

What were the helpful trial and errors that people did that helped with the transition?

Cheers

Nick

 

User
Posted 03 Jun 2025 at 09:08

Originally Posted by: Online Community Member
I’m Nick, I’m 51 and have been enjoying reading the conversations in this forum (and in particular laughing at Adrian56’s comments).  

Cheers Nick, your cheque is in the post.🙂

At 51 you're one of our younger members. Welcome to the forum mate.

My catheter removal was a self induced disaster. The removal itself went well, especially as the poor nurse had very little to grab onto as she pulled the tube out.

I was anxious to leave but had to provide a urine sample before they'd let me out. They provided a litre jug jug of water, thinking it would hasten my exit,  I downed the lot. Another half hour went by and I still couldn't provide a sample. So like a fool, instead of waiting, I had another litre of water. It was only then then I managed to squeeze out a sample.

However, only 5 minutes later, whilst in the middle of a huge queue at the hospital car park pay station, the flood gates opened! It was like someone had thrown a bucket of water over my jogging bottoms. I've never felt so embarrassed.

When we got to the car the deluge continued. I had to get some shopping bags out of the boot to protect the upholstery. The wife was driving, but despite my protestations, refused to put her foot down, and tootled along as normal.

I was peeing continually and had to pull into a chemist for some adult incontinence pants. The lady assistant was very understanding. She saw that the puddle I was standing in getting deeper and let me use their staff room to put on the pee pants.

What a journey that was!

Anyway, when we got  home I rang the hospital and told them what had happened. They politely told me that I was an idiot and that the water they'd supplied was meant to be sipped and not gulped down in a oner. They became even more exasperated when I told them that I downed another jug.

Surprisingly my stupidity hadn't caused any permanent damage. I was okay in a couple of days. 

Edited by member 03 Jun 2025 at 10:05  | Reason: Typo

User
Posted 06 Jun 2025 at 15:56

Two days on and doing well.  The be hydrated tip was good as I had my first wee only and hour or so after the catheter was removed.  Since then reasonable control until 8pm and then I get a lot more leaky.  Happy with my progress though so thanks for the help!

User
Posted 02 Jun 2025 at 20:43

Hello! 

I’m Nick, I’m 51 and have been enjoying reading the conversations in this forum (and in particular laughing at Adrian56’s comments).  I am relatively new to the site having being diagnosed in April and had RALP towards the end of May.  

I am having my catheter removed on Weds and am a bit apprehensive about it given some of the stories about leakage but I will be pleased to say goodbye to the bag and pipe for sure.  I did my pelvic squeezes for a couple of weeks - do people think that made much of a difference?

What were the helpful trial and errors that people did that helped with the transition?

Cheers

Nick

 

User
Posted 02 Jun 2025 at 23:03

Yes Pelvic floor did make a difference to me. The uro-oncology Nurse advised 6 times a day during my early stages of recovery. I used the squeeze app to guide me.

User
Posted 03 Jun 2025 at 00:22

Jim

 

I have had around 12 trial without catheter and never failed. Mine usually took around three hours. I usually drank plenty of water before getting to the hospital, I found  that if i was well hydrated before getting to the hospital the water they give me to drink at the trial without catheter (TWOC) passes through me far quicker. It is better to leak a bit than have a catheter put back in because you failed the TWOC. The removal is frequently described as weird, it should be pain free. If it gets stuck on the way out ask for a urologist to attend, my surgeon is convinced a swift removal after getting stuck caused my post op stricture issues.

Make sure you have some pads, the hospital will normally give you some, but as a work colleague used to say better to be looking at some than looking for some. I took a towel and cover for the car seat in case of a "major" leak but it never happened. I also had a urine bottle in the car in case of an emergency. The towel is useful if stuck in a traffic jam with a coachload of people at the side of you😀. You could take a spare pair of trousers and pants, again i never needed them. Elasticated waist trousers make it very easy to change the pad in a hurry. 

Once the catheter is removed remember to contract those pelvic muscles as you are going from sitting to standing up, this is when lots of us experienced a leak.

Thanks Chris 

User
Posted 04 Jun 2025 at 09:28

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member
I’m Nick, I’m 51 and have been enjoying reading the conversations in this forum (and in particular laughing at Adrian56’s comments).  

Cheers Nick, your cheque is in the post.🙂

At 51 you're one of our younger members. Welcome to the forum mate.

My catheter removal was a self induced disaster. The removal itself went well, especially as the poor nurse had very little to grab onto as she pulled the tube out.

I was anxious to leave but had to provide a urine sample before they'd let me out. They provided a litre jug jug of water, thinking it would hasten my exit,  I downed the lot. Another half hour went by and I still couldn't provide a sample. So like a fool, instead of waiting, I had another litre of water. It was only then then I managed to squeeze out a sample.

However, only 5 minutes later, whilst in the middle of a huge queue at the hospital car park pay station, the flood gates opened! It was like someone had thrown a bucket of water over my jogging bottoms. I've never felt so embarrassed.

When we got to the car the deluge continued. I had to get some shopping bags out of the boot to protect the upholstery. The wife was driving, but despite my protestations, refused to put her foot down, and tootled along as normal.

I was peeing continually and had to pull into a chemist for some adult incontinence pants. The lady assistant was very understanding. She saw that the puddle I was standing in getting deeper and let me use their staff room to put on the pee pants.

What a journey that was!

Anyway, when we got  home I rang the hospital and told them what had happened. They politely told me that I was an idiot and that the water they'd supplied was meant to be sipped and not gulped down in a oner. They became even more exasperated when I told them that I downed another jug.

Surprisingly my stupidity hadn't caused any permanent damage. I was okay in a couple of days. 

Thank you for sharing your honest and humorous experience—it was both heartwarming and heartwarming to read, and a life lesson in “drinking slowly”!

Edited by member Agario  06 June 2025 at 14:18  | Reason: Not specified

Show Most Thanked Posts
User
Posted 02 Jun 2025 at 23:03

Yes Pelvic floor did make a difference to me. The uro-oncology Nurse advised 6 times a day during my early stages of recovery. I used the squeeze app to guide me.

User
Posted 03 Jun 2025 at 00:22

Jim

 

I have had around 12 trial without catheter and never failed. Mine usually took around three hours. I usually drank plenty of water before getting to the hospital, I found  that if i was well hydrated before getting to the hospital the water they give me to drink at the trial without catheter (TWOC) passes through me far quicker. It is better to leak a bit than have a catheter put back in because you failed the TWOC. The removal is frequently described as weird, it should be pain free. If it gets stuck on the way out ask for a urologist to attend, my surgeon is convinced a swift removal after getting stuck caused my post op stricture issues.

Make sure you have some pads, the hospital will normally give you some, but as a work colleague used to say better to be looking at some than looking for some. I took a towel and cover for the car seat in case of a "major" leak but it never happened. I also had a urine bottle in the car in case of an emergency. The towel is useful if stuck in a traffic jam with a coachload of people at the side of you😀. You could take a spare pair of trousers and pants, again i never needed them. Elasticated waist trousers make it very easy to change the pad in a hurry. 

Once the catheter is removed remember to contract those pelvic muscles as you are going from sitting to standing up, this is when lots of us experienced a leak.

Thanks Chris 

User
Posted 03 Jun 2025 at 09:08

Originally Posted by: Online Community Member
I’m Nick, I’m 51 and have been enjoying reading the conversations in this forum (and in particular laughing at Adrian56’s comments).  

Cheers Nick, your cheque is in the post.🙂

At 51 you're one of our younger members. Welcome to the forum mate.

My catheter removal was a self induced disaster. The removal itself went well, especially as the poor nurse had very little to grab onto as she pulled the tube out.

I was anxious to leave but had to provide a urine sample before they'd let me out. They provided a litre jug jug of water, thinking it would hasten my exit,  I downed the lot. Another half hour went by and I still couldn't provide a sample. So like a fool, instead of waiting, I had another litre of water. It was only then then I managed to squeeze out a sample.

However, only 5 minutes later, whilst in the middle of a huge queue at the hospital car park pay station, the flood gates opened! It was like someone had thrown a bucket of water over my jogging bottoms. I've never felt so embarrassed.

When we got to the car the deluge continued. I had to get some shopping bags out of the boot to protect the upholstery. The wife was driving, but despite my protestations, refused to put her foot down, and tootled along as normal.

I was peeing continually and had to pull into a chemist for some adult incontinence pants. The lady assistant was very understanding. She saw that the puddle I was standing in getting deeper and let me use their staff room to put on the pee pants.

What a journey that was!

Anyway, when we got  home I rang the hospital and told them what had happened. They politely told me that I was an idiot and that the water they'd supplied was meant to be sipped and not gulped down in a oner. They became even more exasperated when I told them that I downed another jug.

Surprisingly my stupidity hadn't caused any permanent damage. I was okay in a couple of days. 

Edited by member 03 Jun 2025 at 10:05  | Reason: Typo

User
Posted 03 Jun 2025 at 09:54

Yep I’ve got the app so will carry on with those thanks!

User
Posted 03 Jun 2025 at 09:55

Thanks Adrian - your experience sounds a nightmare - good you can laugh about it now.  Sips it is then!

User
Posted 03 Jun 2025 at 09:55

Thanks Chris - good idea to be hydrated before it comes out to get the system going.

User
Posted 04 Jun 2025 at 09:28

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member
I’m Nick, I’m 51 and have been enjoying reading the conversations in this forum (and in particular laughing at Adrian56’s comments).  

Cheers Nick, your cheque is in the post.🙂

At 51 you're one of our younger members. Welcome to the forum mate.

My catheter removal was a self induced disaster. The removal itself went well, especially as the poor nurse had very little to grab onto as she pulled the tube out.

I was anxious to leave but had to provide a urine sample before they'd let me out. They provided a litre jug jug of water, thinking it would hasten my exit,  I downed the lot. Another half hour went by and I still couldn't provide a sample. So like a fool, instead of waiting, I had another litre of water. It was only then then I managed to squeeze out a sample.

However, only 5 minutes later, whilst in the middle of a huge queue at the hospital car park pay station, the flood gates opened! It was like someone had thrown a bucket of water over my jogging bottoms. I've never felt so embarrassed.

When we got to the car the deluge continued. I had to get some shopping bags out of the boot to protect the upholstery. The wife was driving, but despite my protestations, refused to put her foot down, and tootled along as normal.

I was peeing continually and had to pull into a chemist for some adult incontinence pants. The lady assistant was very understanding. She saw that the puddle I was standing in getting deeper and let me use their staff room to put on the pee pants.

What a journey that was!

Anyway, when we got  home I rang the hospital and told them what had happened. They politely told me that I was an idiot and that the water they'd supplied was meant to be sipped and not gulped down in a oner. They became even more exasperated when I told them that I downed another jug.

Surprisingly my stupidity hadn't caused any permanent damage. I was okay in a couple of days. 

Thank you for sharing your honest and humorous experience—it was both heartwarming and heartwarming to read, and a life lesson in “drinking slowly”!

Edited by member Agario  06 June 2025 at 14:18  | Reason: Not specified

User
Posted 06 Jun 2025 at 15:56

Two days on and doing well.  The be hydrated tip was good as I had my first wee only and hour or so after the catheter was removed.  Since then reasonable control until 8pm and then I get a lot more leaky.  Happy with my progress though so thanks for the help!

User
Posted 13 Jun 2025 at 20:00

hi Nick I to had a catheter for 14 days after my operation.well its an experience when that nurse starts to remove as im sure by now you are aware.That funny feeling when they pull it down your drainpipe.My experience was I imagine like most guys the thought of wearing a nappy for the first time in 65 years didn't thrill me.i leaked right away and the first few weeks were leak after leak, keep up the pelvic floor exercises they do help.and I noticed over a few weeks the flow started to slow down.any straining of any sort will set you off and its quite easy to leak.coughing especially, to even passing a motion can cause leaks as they say, never force a fart.good exercise helped me no end and these days I am pressing in the gym 5/6 days a week biking 10 miles every other day ,and decided health and fitness is a must and I am not the way to 68.To be honest I have never felt better, my failure if that's the right word is holding a good erection I do get them.so I have resorted to caverject when its available and sometimes viagra works but the key is to remain open minded and not stress.Now that's easy to say but that's the key to a quick recovery ,plus diet is important .Ihave followed the Zoe app since covid Dr Tim Spector.i am also now totally plant based were food is concerned.The key positive thoughts keep active and never give up.i have pics of my operation id like to post, plus one year before my cancer I lost two fingers in a severe accident at work.3 years of healing it was a battle ,my mood went up and down ,.Good family and friends are a must, my wife was amazing in every way and today we have no problem making out and getting it on.Feel free to ask anything and I mean anything.its time to put this cancer on the map.And I hope my book and project will help that to.I have a letter of backing from the prostrate cancer uk as most of the eventual sales and funds raised with go to them.

all the best in your recovery keep us posted 

William

User
Posted 13 Jun 2025 at 20:06

hey mate great thread what stops me now is good beer is to expensive to pi down the drain.got to keep it in at least for a night lol.

 
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