All Good News

User

Posted 08 Jun 2025 at 06:58

If you read my profile you will know i was diagnosed with prostate cancer in 2016 along with bladder cancer .In 2020 i had a prostectomy after 4 years of active surveillance. Due to Covid I was prescribed Enzalutimide along with ADT as my PSA never fell below 17 after the prostectomy .My PSA dropped immediately to undetectable within a month and has remained there ever since .I had RT in Jan 2021 as part of the salvage treatment .Well.since then I have had 3 monthly consultations and psa checks and yearly scans bone and CT all have been stable no progression no.probems .The superficial bladder cancer is now considered cured and I was referred back to.my GP last July no more cystoscopys, horrray .Last week I had my 3 monthly consultation with my new consultant, the one I have been under left.In March I had my yearly scans and have been waiting 10 weeks for the results longest I have had to wait .My new consultant has changed my treatment as all is looking very good , scans all great ,PSA undetectable 5 years on so NO MORE SCANS unless PSA rises and PSA check every 4 months not 3 with a view to going to 6 month checks .The consultant said I am a very lucky man to have achieved this outcome for 5 years is relatively rare seeing my Gleason score of 4.3 tiertery 5 and N1 possibly M1 and also bladder cancer. To say I am relieved is an understatement I am so grateful for the wonderful treatment the NHS has given me .I remain on Enzalutimide and ADT but its a small price to pay for being able to live with my cancer well under control possibly cured .

User

Posted 08 Jun 2025 at 09:00

Hi Librajc.

Fantastic result, mate! Later I shall have a beer or two, to celebrate with you. 🍻

I've read your profile. When you were diagnosed in 2016 you say you were Gleason 7 (3+4) PSA 8.6 but didn't give a cancer staging. Do you know what it was at this stage?

You were on active surveillance for three years until your PSA level had risen to 21. You ended up having surgery. Your post op results gave you a T3b, N1 staging, can you clarify what your Gleason was post op was it 7(4+3) or 9(4+5)?

I'm interested, because if you read my profile you'll see that my disease seemed to progress alarmingly over the two years I was under active surveillance.

Whilst on AS apart from PSA checks, how were you monitored. Did you have any follow up MRIs?

Cheers.

Edited by member 08 Jun 2025 at 09:27 | Reason: Additional text

User

Posted 08 Jun 2025 at 09:53

Great to hear Librajc

It just shows that everybody's cancer is different and every treatment works differently on individuals,I live in hope that one treatment will suit me (maybe the one im currently on)and will hold the cancer back longer than expected.

Thanks for your post as success story's fill me hope 🙏 and fight 💪.

Phil

User

Posted 08 Jun 2025 at 10:54

That is truly excellent news, and it must be a huge relief to you. Keep on keeping on :-)

Craig

User

Posted 08 Jun 2025 at 13:39

Hello .Thank you for your kind comments .I will elucidate a little more my initial stage when first found was 2 gleason 3.4 but after prostatctomy I was 3b ,N1 possibly M1 Gleason 4.3 with tiertery 5 means some of the cells were mutated to a nasty level but not enough to.make me a 5 .I waited too long on Active Surveillance I like most men was frightened thst the operation would cause incontinance, the doctors always made a point of telling me all the horrible things thst could go wrong ,as it is I was completely dry after two weeks no problems that way at all .The doctors were all painting a much bleaker picture so that is why I had waited.My PSA started to rise quite rapidly to 21 then after the op.they told me it had risen to 28 ..I was only monitored by PSA checks on AS nothing else for 4 years my original PSA had started out at 7.6 and hung around that level for about 40 months but then started to rise rapidly.After the op my PSA only dropped to 17 so I was handed over to our wonderful oncology section ,urology had been dealing with me up until then Covid raised its ugly head but it worked in my favour as my consultant was able to give me Enzalutimide as a first line treatment along with ADT followed 6 months later by salvage RT .I am a bit wary of not gaving more yearly scans as Enzalutimide can in some cases turn the cancer into non endocrine small cell cancer so i will ask my new consultant what she thinks .However all is good at the moment i have put on weight and need to do something about it but being on ADT makes losing weight difficult.I wish you well and hope your treatment leads to a good result too .

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