Back in 2013 I started getting abdominal pains. The clearest ones were sharp pains in the perineum when sitting and pain in the rectal area after a bowel movement. My GP put me through a series of tests including an MRI, sigmoidoscopy (poor mans colonoscopy). PSA etc. PSA was very low and all other tests were negative. The pains remained and none of the medics were able to give a diagnosis but I was given regular PSA test until 2021 when it reached a value of 10.
After some persuasion I was given a biopsy and diagnosed with stage 3 locally advanced PC (Gleeson 9) and had 2 years of ADT and in August '22 20 sessions of EBR RT which did the trick but resulted in chronic radiation proctitis.
I am now classed a stable with a PSA of 0.12, but I sill have the pains in my perineum and after a bowel movement. I'm now pretty sure that these symptoms indicate pudendal nerve entrapment (PNE) which could be due to an enlarged prostate pushing on the pudendal nerve
If so was this PNE a life saver in that it it started regular PSA testing and eventual diagnosis of PC or could the PC diagnosis have been wrong and PNE was the villain all along? As we all know, PSAs are highly unreliable and even biopsies can be wrong.