I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

R.A.R.P

User
Posted 12 Jun 2025 at 10:01

HI

Today Marks Day 9 post op

I lost my dad to P.C over 10 years ago, so over a number of years I have been on active surveillance

The last meeting I had with my consultant ( Feb 25) ,his comment was " I should start thinking about what to do about it". I knew the day would come . So within 2-3 weeks I had a meeting with a oncologist and the surgeon .

I made the decision to have the R.A.R.P . On the day of the "op" I was asleep at around 10/10.30 and woke up at 4/4.30 .At that time the only discomfort was my throat,this was due to the tube they place down there.

The next day in the morning I was asked to get up and have a walk,so I took a little walk with a member of staff.

When I got back I just sat in the chair and all of a sudden I felt really unwell, hot,sweaty and in some pain.

I was pre warned about the shoulder pain,but this and the pain in my stomach was something else.The nurse got me a fan as I was so hot ,I gladly excepted the morphine when offered, this discomfort all due to trapped wind.

Later that  day I was again asked  to take a walk , went for a walk got back and sat in chair and again the same thing happened,they kept me in overnight.

Day 2 post op.

The next day tried another walk got back sat in chair and all was good, what ever happened it went over night.

went home later after several more walks.At this point no bowl movement or passing wind.

Day 5 post op

Bowl movement. Was given Laxido  to take to help

I have now stopped taking,unless it becomes a problem

I had no issues having surgery ,it was the concern of having the Catheter fitted and the long term effects.

I do Catheter maintenance min x2 a day .

I wash the tip of entry ,cotton wool pads , the tube with alcohol wipes.When I empty the leg or night bag the exit I also clean with wipes.

Its going to be removed on day 19 post op, so about another 9 days.

I had to adjust my sitting position when on the loo, at night mindful I dont  make any "fast"/quick movements

What has  Happened to me the rubber tube of the catheter that exists my penis has caused some discomfort to my "testi sack" so i now put some vaseline on the area.

I think so far all is good .Main stitch feels tight but getting better day by day

Things that I got to get ready:

Jogger bottoms ( sports direct) not cotton +1x size  with zippers at the bottom, make it much easier with the catheter

Big Bucket for night bag.( can always do with an extra bucket)

Alcohol/sterile wipes. Cotton wool pads, Vaseline , Sanex  shower gel,(Boots)

I stocked up with Tena Pads level 3 and level 2 along with their protective underwear (Boots) 

I got a ring / doughnut seat  have not  had to use

Stocked up with pain killers , apart from the first couple of days not used

I find sitting down and getting up from my sofa a bit uncomfortable so have been using my sun lounger slightly reclined.

I also got a few high protein meal drinks , really like the Huel brand ,chocolate flavour (Holland and Barrett)

Not seen the surgeon so I dont know what was saved etc. 

The Prostate cancer nurse has called a couple of time to check on me 

Over the years it has been the Urology Dept at Kettering Hospital that I have been dealing with

The Operation was carried out at Northampton Hospital .

Next big event the removal of Catheter,not too sure if its something I am  looking forward to?

Leg/overnight bags. A stock of these ( 10x of each) along with some other bits were delivered to me pre -op 

by a 3rd party called Nightingale 

I hope maybe x1 person may find the above useful 

My Journey my experience ..........so far

Edited by member 12 Jun 2025 at 19:12  | Reason: spelling

User
Posted 12 Jun 2025 at 21:15
Pat1956, it sounds as if you are managing as well as anyone could the stressful time around operation and recovery.

Good luck when it comes to catheter removal, I found the event a bit of an anticlimax but it is the point at which you will discover how much urinary control you have. Some people here have reported being nearly dry immediately, but it is more common for continence to improve slowly over the succeeding weeks.

It doesn't sound as if you are overdoing things, but it is a difficult balance. Your body has undergone a serious challenge (not obvious with the small scars) which needs quite a time to recover - but at the same time losing your fitness isn't good either. Take things easy and listen to your body, taking your time to get back to normal levels of full activity.

The one thing you don't mention is erectile function. In due course the surgeon will no doubt tell you the degree to which the crucial nerves were preserved - but even if everything is optimal most men take many months for anything close to previous function to return.

Good luck!

 
Forum Jump  
©2025 Prostate Cancer UK