Hi,
I had radiotherapy and 2 years ADT (Goserelin) between Nov 22 and Nov 24. My PSA at diagnosis was 38, but fell to 1.5 within 6 weeks of starting ADT, and has been between 0.01 and 0.03 since. My testosterone was not tested prior to ADT so I have no baseline, but I was in a relatively new relationship (I am 60 now) so the lack of erectile function, on top of all the other side effects of zero testosterone, has been a major factor.
In May 25, i.e. 6 months after finishing ADT, my PSA was measured at 0.03. but testosterone at just 0.6. This worries me a little. I have a friend who had the exact same timelines and treatment plan (although he also had chemotherapy and more RT than me, 37 days to my 20), and his testosterone level is 10.
The urology nurse told me I just need to be patient. There is nothing I can do to influence testosterone recovery. I had originally been told it could take up to 2 years to recover, but when I ask ChatGPT it says there is a 20-25% chance it will never recover, which I would find devastating. I'm not sure why this outcome risk wasn't explained prior to my choosing ADT over surgery.
Can anyone shed any light on this? What was their testosterone recovery level like after ADT? Am I getting anxious over nothing, and should I just follow the nurses's advice and be patient?
Thanks in advance!