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Newly diagnosed with incurable PC

User
Posted 03 Jul 2025 at 08:22

Hello, yesterday we found out that my partner has advanced metastatic PC, he is 56 and had very little symptoms. 

Initial PSA of 134 prompted a bone scan and from that he has been diagnosed and started on Degarelix.

We are now waiting to meet with Oncology and he is still to have MRI and biopsies to confirm staging etc. 

I did ask if we needed all the other tests to confirm, however, the Urologist promptly said no, based on PSA, bone scan and DRE, there is no doubting his diagnosis, we are just unclear on spread to lymph glands etc. 

Prognosis is 5-10 years, maybe more, quite vague but I understand treatments are changing all the time. 

I feel really numb, I don't know what to expect, I just want to make sure I support Paul as best as I can.....this is all still sinking in. Is there anyone here in similar situation who can offer advice? It's really helpful reading some of the posts on this forum. 

Wishing everyone who unfortunately find themselves here the very best❤️

 

User
Posted 03 Jul 2025 at 09:43

Hi Polly.

I'm so sorry to here that your husband has been diagnosed with metastatic disease. I send you both a big hug.

There are folk on here dealing with a similar diagnosis. I'm sure that they'll help and support you. The specialist nurses may also be able to to advise and guide you.

 

User
Posted 03 Jul 2025 at 23:39
Best advice I can offer is do your own research targeting similar cases to your partner and what the most effective treatment is NOW.

Double check everything your medical team recommend and don't assume they know best, they are often out of date and stuck in "treatment ruts".

 
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