PSA SIGNIFICANT INCREASE POST ERT

Better than hoped for....

PSA down 80% from 4.5 to 0.95 after just 4 weeks of decapeptyl. Such a rapid decline an excellent indicator. Testosterone down from 25.4 to 0.7. 

Other bloods fine.

Bone density mainly normal except for some weakness in lower back  -  have left decision on 1 infusion of Zometa per year until next appointment in 3 months time.

Adding NUBEQA/Darolutamide rather than Erleada to the decapeptyl because seems to have less adverse effect on thyroid and seizures.

Have to say more optimistic. Best I now read the stats is 82% probability of survival at 2 years. I do think having kept active into my old age can only have helped.

Junior Consultant said my having a good knowledge of the (and my) situation made his job easier! How nice.

Onward on the level for now....

Good luck all, Dave 

Thanks Adrian. Median decrease in initial 4 weeks is 62% so 80% probably about as good as it gets. 

Also secured agreement to having 12-weekly decapeptyl at hospital rather than GPs.

Next Consultant appointment confirmed for early March. 

Good luck all.

Dave.

^ "Also secured agreement to having 12-weekly decapeptyl at hospital rather than GPs."

Unsurprisingly, agreement rescinded by phone a couple of hours later! Will have to face bother of making appointments at GPs.

More generally, I checked the costs of my meds to the NHS. Mistake. Now I just feel guilty that such sums being spent on 77 y.o. me while NHS overall so strapped for cash that my peers stacked in corridors in squalor and children not getting e.g. the mental health care they desperately need. 

Surely not right in the wider picture?

Dave.

Dave , the repeat appointments for the injections are not as bad as making normal appointments, the only issue is that after the injection the nurse cannot book the next appointment because it is a day over 12 weeks. I got a reminder for my next injection a week after the injection. Your request for injections was probably rescinded when the consultant saw who your GP was.

I know what you mean about the cost of drugs mine cost a fortune. 

Thanks Chris 

Thanks Chris. Does the surgery source the injection or do you have to request a prescription, collect from pharmacy and take to appointment with you?

Regards, Dave.

Thanks Chris. Guess I'll confirm this when I try to make an appointment! Last time around, but pre-take over, my surgery also got it in ready.

Regards, Dave.

Thanks again Chris. I assume the pharmacy then delivered direct to surgery.

Dave.