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8 months post SRT and going backwards.

User
Posted 25 Jul 2025 at 16:28

Hi All, 

My RALP was November 2021. It was nerve sparing and my cancer was rated T3a G4+3 with negative margins. Possibly due to a TURP in 2017, my op included a bladder neck reconstruction. All progressed well, if not at great pace and I was almost totally continent after 12 months in fact most days at home I was padless and if I went out for an evening, I wore a Tena level zero, mostly for confidence. In mid 2024 the beast returned and I completed 33 sessions of SRT to my prostate bed (and pelvic lymph nodes as a precaution) on 29 November. Continence remained fine until about 1 month ago and I am now using one Tena level 1 pad every day. I have also begun to suffer from the occasional wet fart and have to be very much aware if I need to pass wind. I am surprised that this problem started 7 months after my SRT completed. Is this normal? is it an indicator of possible permant damage? Should I ecpect it to resolve itself? I would appreciate learning if anyone else has had similar experience. 

Thanks. Peter

 

 

 

 

 

 

Edited by member 30 Jul 2025 at 22:24  | Reason: Corrected number of RT sessions from 20 to 33

User
Posted 26 Jul 2025 at 00:07

For the continence part, have you been keeping up with pelvic floor exercises?

For the solid, liquid, or gas question, you have nerves in your rectum to detect this, although they're not brilliant at detecting the difference even without having had any prostate treatment. The radiotherapy temporarily wipes those out, and it takes months for them to start working again. The radiotherapy does cause an excess of rectal mucus - the rectum assumes it is being irritated by an infection, given it has no knowledge about radiation, and this is its reaction to flush out the infection (which probably doesn't exist). I think it's quite common that the occasional bout of this continues for many months afterwards out to a year or more, but does eventually stop.

User
Posted 26 Jul 2025 at 06:01

Thanks Andy. Yes, pelvic floor exercises have been part of my morning routine for the past four years. Ref the back passage side of things, I appreciate your detailed explanation as to why this happens. No medical resource has described it to me at that level. But I am still wondering why, in my case, it took seven months post RT to rear it's ugly head. Are you aware of a reason for that delayed start? 

BTW, I am on Decapeptyl if that has any influence on things. 

Peter

 

 

User
Posted 26 Jul 2025 at 08:50

Hi Peter.

I know nothing about radiotherapy or salvage treatment but just wanted to show my sympathy. I'm two and a half years post surgery, and although I'm currently clear, I still dread BCR.

I feel the disappointment and frustration you must be going through in (a) discovering surgery had failed, after almost three years of thinking it had done the job, and (b) then having to have radiotherapy, and being left with these very delayed side effects of that salvage treatment. I'd struggle to cope with that.

I hope they manage to get things sorted for you, mate. 👍

Edited by member 26 Jul 2025 at 09:02  | Reason: Typo

User
Posted 26 Jul 2025 at 08:54

Thank you Adrian

User
Posted 26 Jul 2025 at 09:19

Peter, my salvage RT did considerable but rare damage to my bladder, but I had been fitted with a suprapubic catheter before the 33 sessions in case it closed up an existing stricture. I did suffer with the wet fart, loose motions and anal cramps. It did take some time for the bowel to settle down,a long time ago now so can't really remember how long, perhaps 18 months before my bowel habits were better than before SRT. The rare bladder issues continued and I now have a permanent suprapubic catheter. Mry surgery was 2014 and SRT 2017. 

Also been on decapeptyl since March this year along with apalutamide but can't say they have affected my toilet habits.

Thanks Chris 

 

User
Posted 26 Jul 2025 at 09:32

My sympathy Chris 

No, I don't think the decapeptyl is the bad guy for this particular problem. But it does make me fatigued with aching bones to the point that going for even a short walk is hard on my hips. 12 months of it will do me and the Radicals HD trial results seem to show there is marginal net benefit in prolonging it given my age and entry PSA of 0.2

Peter

User
Posted 26 Jul 2025 at 17:21

Hi Peter, I had SRT in 2017 and unfortunately continue to have urinary and bowel symptoms. I can leak from my bowel without being aware and go through phases of never trusting a fart! I had a colonoscopy in January and the doctor mentioned a lot of damage in terms of raised veins etc. I was diagnosing see with radiation proctitis years ago. I really hope your symptoms are temporary and resolve. 

Ido4

User
Posted 26 Jul 2025 at 17:52
My primary treatment was3 yrs Zoladex with 32 sessions of RT to prostate and pelvis, as slight spread to seminal vesicles (included was 2 yrs abiraterone, enzalutimide, prednisolone on trial. Treatment finished summer 2018. I had the RT end of 2016.

Afraid I cannot recall timespan but the bowel problems though RT cerainly took a bit of time to start up. They lasted a fair time and despite best efforts I did soil myself handful of times whilst out trying to keep a bit active.

Bowel wise (& bladder)all things good now.

Peter

User
Posted 26 Jul 2025 at 22:11

You've been through the mill Ido4 and I wish you all the best. Thanks for your response; I will just have to wait and see how I go from here. Sometimes, when I read posts like yours and Chris's I realise, in the circumstances, how fortunate I am.

Peter

User
Posted 27 Jul 2025 at 13:44

Thanks Peter. It hasn’t been straightforward. I chose to throw everything at it. Chris has taken a different approach but still here too. Many in our circumstances are no longer with us sadly, 

Ido4

User
Posted 27 Jul 2025 at 20:03

Originally Posted by: Online Community Member

But I am still wondering why, in my case, it took seven months post RT to rear it's ugly head. Are you aware of a reason for that delayed start? 

Peter

I think the reason is that problems arise well down the road when an irradiated cell tries to divide. The radiation scrambles the DNA and it fails to divide and dies. That is basically what happens to the cancer cells but there can also be the same damage with some of the surrounding good cells when they try to divide. I believe it takes about two years before you are free of any post therapy radiation effects but that doesn't necessarily mean you are going suffer radiation effects for two years. My bowels had a mind of there own for a period after SRT but it gradually sorted itself out.

User
Posted 27 Jul 2025 at 20:07

Thank you Chris. 

All the best, Peter

 
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