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G8 T3b N0 M1, stable prostate cancer, huh?

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User

Posted 31 Jul 2025 at 11:11

Hi PCa Fam,

I have just seen a document on my NHS App that says, 'Stable Prostate Cancer', Zoladex for 1 year? How can they know this? No mention of RT, or any input from onco, this doesn't seem right to me for someone very recently diagnosed with locally advanced G8 and a met? I am 56 yrs of age and very active currently.

Thoughts/advice please!

All the best, hawks.

User

Posted 31 Jul 2025 at 14:51

Hi Hawks,

I think info on these apps can be so condensed as to be misleading. You have been diagnosed and should have been given a treatment plan. You have been put on HT to help shrink and reduce your tumours and to restrain it. It seems to me that you are likely to give blood for a PSA test before very long so it can be assessed how you are doing. I will not speculate what will follow because it could depend on how you are responding to HT. You have not lost the chance of RT, HT often being given six or so months prior to RT

Barry

User

Posted 31 Jul 2025 at 15:00

Thanks Barry,

That's just it, I haven't been given a treatment plan other than CNS saying RT will treat 'eveything' as met is in pelvis area and asked the onco to see me 'in due course'. After a month on zoladex I appear to be tolerating it too well, which worries me in itself that it's not working, and things could be worse by the time they get around to checking my PSA. What a polava!

Edited by member 31 Jul 2025 at 15:22 | Reason: Typos

User

Posted 31 Jul 2025 at 17:50

Originally Posted by: Online Community Member

Thanks Barry,

It does seem what your CNS said is your treatment plan then, ie HT and then radiation. Back in the time I had my HT/RT, 'they' wanted a man to be at castrate level before having RT but 'they' seem to be more relaxed on this now. Some people have a Zoladex injection which distributes a monthly dose of HT (28 days actually) oralternatively one that lasts a few days short of three months. Some men experience very little side effects of HT but more could build up over time. Don't know whether you will have PSA taken at hospital or by a nurse trained in giving Zoladex injections, (which deposits a capsule in your tummy), at your GP's Surgery. When this is done ask them to check your Testosterone which like PSA should fall. denoting HT is working.

Edited by member 31 Jul 2025 at 17:56 | Reason: Not specified

Barry

User

Posted 01 Aug 2025 at 08:52

Hi Hawkz,

I'm on Zoladex, I wondered at first if it was working. I think it was a couple of months before I noticed any kind of side effects, but they do kick in! At three months I had my first PSA/TESTO test, both undetectable, starting PSA was 7.6, don't know what my testosterone was as was never tested before starting HT.

I started RT about 4.5 months after my first injection.

all the best

John

Edited by member 01 Aug 2025 at 08:54 | Reason: Not specified

User

Posted 01 Aug 2025 at 09:17

Thanks John that's good to know. Sounds like our treatment plans will be similar. I'm keen to discuss SBRT with onco though when given the chance. I'm hoping SE's from Zoladex don't all come at once, only things that have bothered me so far is an ache in my butt same side as injection, which I'm paranoid is the bone met getting bigger, and takes me longer to get off to sleep.

All the best mate.

User

Posted 01 Aug 2025 at 11:48

I found the side effects were quite gradual and luckily not too bad all things considered, be glad when I'm off the stuff though!!

SBRT does sound like a good plan if it's an option, though again I was lucky as not too far from the hospital and the majority of my appointments were in the evening so after work.

Supposedly it only takes two to four weeks for your testosterone to hit rock bottom so should stop cancer progress in its tracks so I wouldn't worry (easier said than done I know). Did you get the injection in your butt!? Mine have been in the tummy.

Cheers mate

User

Posted 01 Aug 2025 at 13:09

No mate it was just above the waistline, in the fatty bit the nurse said, how rude! 😂 I read the injection can cause random muscle aches afterwards, so hope that's all it is regards the butt ache as I never noticed it before.

I had 2 weeks of bicaltumide before and after the Zoladex so let's hope that and the ZD is putting the brakes on things for now 🙏

Atb mate.

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