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Overwhelming speed of entry to PC world!

User
Posted 01 Aug 2025 at 17:18

I'm not sure if I'm grateful or scared but my ostensibly fit and healthy 68 year old husband has been diagnosed with a 50mm tumor G9 T3b N1 M1b after going to the doctor for a urinary problem just 5 weeks ago.

It was a GP appointment one day, blood test the next, then results a week later from the GP which showed a PSA of 6.5. Then an MRI 3 days later which is when we found out the bad news. It was then a CT scan 2 days after that and a biopsy and bone scan a week later! The MDT met and my husband had his first oncology consult 4.5 weeks after this all started as an ordinary GP's appointment.

The speed has been overwhelming and I'm not sure whether to be grateful or concerned. He has been started on bicalutamide with further hormone treatment to follow.  In the meantime, he had his PSMA PET last Tuesday. He has mets in his lymphs but only in the pelvic region so far but they've found bone mets in his spine, ribs and pelvis. He's been told if the soft tissues remain clear after the scan they'll start him PSMA-Lutetium radiotherapy and, if not, chemotherapy. He'll find out at his second appointment which is on Wednesday.

From what I've read on these pages, very useful thank you, it seems the oncologist is going in hard and I just wanted to know if any of you had followed a similar path. Any or all information in this newly bewildering world would be gratefully received.

Edited by member 02 Aug 2025 at 17:17  | Reason: typo

User
Posted 01 Aug 2025 at 20:42

Hi LeftField.

I'm sorry to hear that your husband has prostate cancer but welcome to the forum.

The NHS has certainly served you well. Its fanstastic that you've so much treatment so quickly.

It's obviously not good news when the cancer has become metastatic and spread to the bones. Unfortunately, it usually means that the disease is not curable, but it can be treated and controlled. There are several folk on here who are in the same position as your husband.

I'm sure that they'll come along soon and offer their support.

Please keep us updated.

I wish you both the best of luck. 

User
Posted 01 Aug 2025 at 22:21
Hello LeftField,

As Adrian says, NHS acted very quickly and in this situation with good reason as they want to restrain your husband's cancer, which if untreated, was likely to spread further. I am sure you realize it's fighting a retreating battle and some further treatments have strong aftereffects. Much now will depend on how he responds to the treatment and we hope that that is well. Men who are in a similar position are best able to answer more detailed questions you may wish answered. Just remember that anyone who relates what seem like similar situations, may experience different outcomes.

Barry
User
Posted 02 Aug 2025 at 22:19

Sorry what you're going through.

I presume the PSMA-Lutetium is a trial on having it up-front, as this isn't normally available on the NHS.

Wishing you good luck, and keep us informed.

User
Posted 03 Aug 2025 at 10:41

Thank you, yes, I believe it is part of the Stampede2 trial but we'll find out more this week so it may not happen.

User
Posted 03 Aug 2025 at 10:43

Yes, we understand it's not cureable but is treatable but what that actually means we've still to find out but thank you for your kind response.

User
Posted 03 Aug 2025 at 10:46

Dear Barry,

Your mention of different outcomes is what is on our minds at the moment because until he gets into his treatment we don't know how he'll respond so deep breath and fingers crossed!

User
Posted 15 Aug 2025 at 22:08

Hello 👋🏻 

Firstly, sorry to see you here, this new normal will take awhile to process and adjust to. My partner has advanced metastatic PC, full details on my profile. He was started straight away on hormone injections and he has just had his 2nd jab, tolerating well, hot flushes is only side effect so far and his bone pain from several mets have gone completely. Next for us, likely add in another hormone medication, tablet form. Chemo has been discussed but taken off the table at the moment, this is due to more than 4 bone mets present and my partner currently being relatively well, I guess the chemo could bring about additional issues but it is in the tool kit for later if needed. Every journey is unique to the individual, trust your care team but ask lots of questions! All the very best to you both♥️

 
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