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Right to meet the consultant surgeon?

User
Posted 02 Aug 2025 at 09:51

I am due to have RALP in September (probably first week of the month).  In the lead up to this (PSA tests, MRIs, biopsies etc) I've spoken to the consultant surgeon who will be doing my surgery a couple of times by phone but we have never met.  During my last time phone conversation with him, during which we agreed RALP was the right approach for me, he said next step would be that the two of us would meet face-to-face, and an appointment was duly scheduled.  However, on the day of my appointment, I was seen by a more junior member of his team (a "Fellow").  This doctor I saw was fine, but didn't fill me with confidence and I wasn't sure he was 100% certain about the answers to some of my questions.  The next time I visit the hospital will be for my pre-assessment with a nurse and few days later for the surgery itself (for which I still don't have a confirmed date).


My question is, do I have a right to a meeting with the consultant surgeon himself or is the meeting I had with a member of his team considered sufficient?  If so, how might I go about this, especially bearing in mind I don't want to delay my surgery date?  Should I wait until the day of my surgery, expecting the consultant surgeon will talk to me when it comes time to sign consent forms and use that as an opportunity to ask 1 or 2 last minute questions?


Also, how long in advance of the surgery itself should I reasonably expect to receive a letter confirming the surgery date?  I need to make plans for the care of my very elderly parents during my initial period of recovery, when I will be out of action.  I appreciate that the answer will vary a lot according to the hospital, but would be interested to know how this has been for others.

User
Posted 02 Aug 2025 at 16:08

I think so via NHS choices if specified. Might need to hang about a bit or maybe just book a private appointment for ~£250 for reassurance. If their track record is high volume and top notch should only be an incidental. I met mine for 10mins several weeks before surgery having gone to him for a second opinion. Put all my concerns and questions to bed.

Edited by member 02 Aug 2025 at 16:10  | Reason: Not specified

User
Posted 02 Aug 2025 at 16:22

I had RALP 4 years ago. Following MRI and biopsy, I attended a clinic where I met the consultant oncologist and consultant surgeon. These meetings were arranged on the same afternoon to help me decide the path I wanted to take. When I told the surgeon I favoured RALP, he took a notebook from his pocket and gave me a date, six weeks ahead there and then. 


Peter


 

User
Posted 02 Aug 2025 at 16:45

Hi PD123,


I'm sorry that you've had to join the Club, but welcome to the forum, mate.


If I remember correctly, I was given a date for RARP about a month prior to the op and I had my preassessment about 2 weeks before.


Whenever I've had any questions for my surgeon, pre op or post op, I've emailed them to his secretary. She's contacted him and emailed his replies back to me.


When I had my surgery, my wife and I were caring for my 93 year old mum. I mentioned this at the pre-assessment. They promised to try and get me first on the list, on the scheduled day, and kept to their word.


Best of luck and please keep us updated.


 

User
Posted 02 Aug 2025 at 23:31

Thank you to the guys who have replied so far. All your comments are really helpful. I had been thinking about booking a private appointment with the consultant, just to put my mind at rest. Having said that, I don’t have much to ask him so the appointment wouldn’t last long.  It’s mainly the psychological thing of wanting to have met in person the guy who is going to be in charge of taking bits out of my body.  I’ll think about it.


My main question would be about catheterisation.  Almost 10 years ago, after a long struggle with recurrent urethral structures over the previous 20 years, I had a urethroplasty operation during which they reconstructed part of the urethra using tissue from inside my mouth. It’s been a great success. However, catheterisation is always a risk for destabilising this old surgery and causing the structure to return.  I’ve read that some surgeons performing RALP use a suprapubic catheter, especially if there is a high risk of stricture. I asked the junior doctor I met about this and he said they always use urethral catheter with no exceptions, because it’s essential to support the new join between the urethra and the bladder.  This makes sense. However, I would like to hear this from the consultant himself, especially because I know some surgeons are very much in favour of suprapubic catheter after prostatectomy.  I could email the urology nurse, who would ask the surgical team, but I wonder if my question will simply land on the desk of the same junior doctor I already asked?

User
Posted 03 Aug 2025 at 01:50

PD, my daughter is going through a similar situation with her breast cancer and feels a little concerned about the situation. We have booked her an appointment to see her consultant surgeon. The appointment is within a week and costs around,£200. I first saw my consultant surgeon at my diagnosis meeting and never saw anyone else, it was always him. We did meet for a few minutes on the morning of the surgery just to go through the consent form.


I think seeing your surgeon before the day is a wise decision to discuss the catheter situation . The Retzius version of the surgery often utilises the spc and I have seen guys mention having an spc with conventional RARP. Has already mentioned I also thought the urethral catheter was utilized to protect the joint,but I am not a urology surgeon πŸ˜€. 


Hope all goes well.


Thanks Chris 

User
Posted 03 Aug 2025 at 08:20

In light of the context with your surgical history I’d definitely be booking a private appointment just so the surgeon is fully versed. Shouldn’t be an issue I suspect but bet to cover all bases with no surprises on the day. 


~£250 is prob well spent given the added reassurance as leading up to surgery you won’t need the additional stress.  I wondered why I was so tense pre-op as it was less hassle than having my tonsils out….although had to be mindful following clinical guidelines and not do too much. 

Edited by member 03 Aug 2025 at 08:23  | Reason: Not specified

User
Posted 03 Aug 2025 at 10:49
My consultant performed the biopsy and did the follow-up face to face so there was ample opportunity to ask questions.
User
Posted 04 Aug 2025 at 19:12

Thank you again to those who have posted advice and/or what their experience was at a similar stage.  My (NHS) surgery date has now been knocked back by a further week to 9th September (and even that still to be finally confirmed).  Meanwhile, I have made a private appointment to see the consultant on 20th August.


I don't have a lot of questions to ask him, other than the supra-pubic catheter one (and even that probably won't affect what happens).  However, I hope just having met him face-to-face will make me feel better.  He has an fantastic track record, so I'm sure I am in safe hands.

User
Posted 05 Aug 2025 at 19:14

I've never heard of people going private to see their NHS consultant, except to have cataract operations although I think outsourcing has got rid of the waits.


My experience, 9yrs ago, was I saw the consultant surgeon when I said I wanted surgery but I never saw him again for business.  


Consent was done by a doctor and when I queried if the Consultant was doing the op he said yes but there are 4 doctors as well, or was it 3, but he seemed a bit offended so I felt a bit uncomfortable.  It was a pre-robot op, I wonder how many do a robot op?


My first 2 post op clinics were done by a locum consultant.  Then it went to a doctor. Then to a nurse, where it's remained for 9yrs.


 

User
Posted 20 Aug 2025 at 20:33

Today I had my private appointment with the same consultant who will be doing my RALP on the NHS.  It was very worthwhile.  Most of all, the fact that I have now actual met face-to-face the guy who will be in charge of my operation. 


We discussed the extra risks for me due to my history of urethral strictures and urethroplasty and what steps they will take to reduce those risks as much as possible.  The appointment was expensive and may not have made much/any difference to how my op will actually be done or the outcomes.  However, it’s made me feel a lot better, so it was worth it.  


By the way, on the question of urethral or suprapubic catheter, he was clear that he thinks urethral is the way to go, even though some surgeons do suprapubic and there is research evidence that it can be beneficial for some patients.  He explained his reasons, which made sense to me, so I’m happy with that now.


What’s more, there were some gaps/inconsistencies in the information he had about my history whilst under active surveillance, so he’s now corrected all that, so I guess that’s another benefit of having met him today.


Thank you to all those of you who have commented.  It’s really helped me.

User
Posted 20 Aug 2025 at 20:33

Oh, and I have a date for RALP now - 9th Sept.

User
Posted 20 Aug 2025 at 21:12

Hi PD123


Good luck as you prepare for your RALP.


Please what reasons did your surgeon give for the choice of urethral catheter over suprapubic catheter?

User
Posted 20 Aug 2025 at 22:33

Thank you ☺️


The reasons why he said he'd use a urethral catheter, rather than suprapubic......


He said that during the operation they need to pass a catheter through the urethra multiple times, whether or not the catheter they finally leave in is suprapubic or urethral.  I guess this makes sense, because not only do they need to be sure the urine has somewhere to go once they've removed the prostate, but they need something to support the eventual joint between the urethra and bladder (the anastomosis).  So, even if I ended up with suprapubic, there would be no way of totally avoiding putting a tube through the urethra during the procedure.


He also said that problems with healing/stricture at the anastomosis are greater with suprapubic.  I suppose due to no catheter to support the anastomosis during the first week or so of healing.


Added to that, he said in the past he had done suprapubic quite a few times and, in his experience, outcomes were not as good.


Another point he made was that, at the start of the procedure (with me unconscious) they will do a cystoscopy as a survey of the inside of the urethra.  This will allow them to see if there are areas of possible obstruction (due to previous strictures and surgery) where they need to be especially careful when passing the catheter through, including selecting the appropriate thickness of catheter for my anatomy.


His final point was that they have way more experience doing this procedure with a urethral catheter and departing from their standard procedure (by using suprapubic) can increase risks as they are doing things in ways they are less familiar with.


To avoid all of this, I've discussed with them before the option of radiotherapy (internal or external).  However, the risks for me from radiotherapy (as opposed to RALP) are worse from the point of view of likely disruption to the urethroplasty and/or recurring stricture.  What's more I have long history of chronic prostatitis (can be very painful), which radiotherapy can aggravate.  So really, AS or RALP are my only options and after 2 years of AS things are visibly and measurably getting worse so if I leave it, the risk of the cancer escaping the capsule keeps rising.  I'm 62 years only and in good health otherwise, so now is the time.

User
Posted 20 Aug 2025 at 23:12

PD123, I have a permanent suprapubic catheter and from a long term point of view a SPC is preferable to a urethral catheter. The other thing not mentioned, why put a hole in a perfectly functioning bladder if you don't need to.πŸ™‚. Hope all goes well.


Thanks Chris 

User
Posted 20 Aug 2025 at 23:42

Hi Chris,


That’s a really good point and I think he did say something along those lines.  


Sorry that you have to live with long-term catheterisation.  Over time, have you managed to adjust to living with it?

User
Posted 21 Aug 2025 at 05:57

PD123, I tolerate it, it has it's advantages at times. The 8 weekly changes can sometimes be challenging. Taking out a SPC after eight weeks is alot more traumatic than removing a urethral catheter after a a few days or weeks.


I do miss getting up in the morning and having a good pee, emptying a night bag does not give the same pleasure πŸ™‚.


Thanks Chris 

User
Posted 21 Aug 2025 at 07:46

Hi Paul(PD123)


I was told by the CNS that suprapubic catheter will increase the chances of regaining continence and it will only be used for about a week post ops before removing. And once the catheter is out, the hole punched in the bladder will self heal and it does heal quick.

User
Posted 21 Aug 2025 at 08:03

Yes, I’ve read the same.  It’s one of the reasons I raised it with my consultant, but you can see his response above.  I think many people use suprapubic catheters very successfully after prostatectomy though.

User
Posted 21 Aug 2025 at 08:41

Yes, I read the reason - during the surgery they need to pass catheter through the urethra a fews times and it also support the eventual joint between the urethra and bladder (anastomosis).

User
Posted 21 Aug 2025 at 09:14

But people do have suprapubic very successfully. However, from what he told me, in my case it will be extra important to support the joint, due to my previous surgery in the same area. There is extra risk for me from passing a tube through the urethra, but that can’t be avoided during the procedure, whichever catheter type I have. So, for me, urethral looks like the way to go.  But for someone else who doesn’t have my history, suprapubic might be better, especially if they have a surgeon who is very experienced at doing it that way. 

Edited by member 21 Aug 2025 at 09:15  | Reason: Not specified

User
Posted 21 Aug 2025 at 09:43
Hope all goes well on 9th September, and of course thereafter.
Barry
User
Posted 21 Aug 2025 at 09:46

Thanks Barry 😁

User
Posted 21 Aug 2025 at 09:54

BDO, I would obviously bow to the greater knowledge of your CNS regarding continence recovery. Some research certainly suggest short term recovery is better, but I wonder if that is linked to the SPC being more widely used with the Retzius version of RARP, which also reports better short term recovery.


Not having the urine release mechanism kept open by the catheter could be a benefit. We will never know what caused my stricture, the main causes are cited as , over tight sutures, urine leakage through the joint and trauma at the site of the joint. My robot did not have tactile feed back and my post op urethral catheter got stuck on the way out, I also had surgical clip migration into my urethra and bladder. I was 99 percent dry 4 days after catheter removal.


 


My first SPC was inserted during an aborted urethral dilatation.  I seem to recall my bladder capacity was shrinking before SRT. Was it connected to having a hole punched into the bladder or me doing self dilatation. Like wise we will never know why salvage radiation had such a detrimental effect on my bladder. Was it connected to having a SPC in situ during SRT, perhaps the odd occasion when the bladder was empty during the SRT sessions.


I must point out that my situation was described as very rare.


The hole in the bladder does heal quickly, something that is drummed into those of us with long a long term SPC. We supposedly only have a thirty minute window to get it replaced if it came out. The district nurses take about 3 seconds to remove the old one and fit the new one 


Thanks Chris 



 

User
Posted 21 Aug 2025 at 10:13

Paul and Chris - thanks for further clarifying this. 


 

Edited by member 21 Aug 2025 at 10:32  | Reason: Not specified

 
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