Biopsy results today

I hope the waiting is not too long and stressful for you both. 

The amount of information they give out seems to vary wildly. When I went in for my biopsy I knew virtually nothing of what the mri scan had shown. But the doctor doing the biopsy explained it to me before the procedure and it sounded fairly grim to me. I'm not sure if knowing in advance would have helped or not, but I know that not knowing was very stressful and led to a lot of speculation and sleepless nights. 

When the biopsy results came back they didn't tell me anything at all. Just that they hadn't found cancer in any of the samples. 

I'm not sure what the protocols are for giving out test results but it seems they think the less information the better, people aren't equipped to deal with the type of information contained so might as well keep it from them. 

I think doctors are so removed from patients that the forget they are dealing with a human being and not just a set of test results and numbers on a score card. I had my scans and biopsy and got no information from them at all. The MDT never saw me and just pronounced on a set of data, not a patient. 

I know doctors are busy, but the impersonal way you are treated on this journey is pretty poor for my money. 

I saw a guy in A&E this morning when I went for a wound check. He'd broken his ankle by the look of it. The consultant orthopedic surgeon came out to see him in the waiting room and gave him more information about what was happening to him than I got through numerous visits to cancer clinics. And the nasty piece of work still had the cheek to curse and swear about the bloody state of the NHS and that the doctor was Asian after he had left. Nice.

Hi MrsW.

I don't suppose you know if the Gleason 7 is (3+4) or (4+3)?

It's not great news that there appears to be capsular breach, which puts his staging to T3. However, it's good news that there appears to be no spread to the lymph nodes.

Try not to worry about the bone scan, it's common practice, just to be on the safe side.

I had capsular breach T3a and a much higher Gleason 9 (4+5). I opted for RARP, which appears to have sorted the problem. Two and a half years post op, my PSA has remained undetectable.🤞

Please keep us updated and good luck to you both. 👍

Hospital just called ct scan tommorow and bone scan Friday,  really scared now as that seems fast .

Yesterday the urologist was asking what hospital he would like for scans , then next day appointments have been made for this week , do you think they were holding back information and already had these booked in . 

Hi Mrs W.

I understand where you're at today - we are in a situation a bit similar/not but you get what I mean. My husband has been peeing more than normal (he divulged to me 2 wks ago that it was up to 15 times a day) so I got him an appt straight away with his GP who did an internal and said his prostate was enlarged. Got an appt for one week later for mri/ultrasound/psa test. Followed by a meeting last friday with the urologist who said the mri is showing an abnormality and that his GP report said the prostate was "raggy" and hard. His psa was 2.8 fairly normal, but she spoke about cancer from the start of the conversation and the options. We came out of there in a daze. He has a biopsy scheduled for next Monday. It's all very quick and difficult to digest. My husband is a fit healthy 57 year old and I feel crushed for him. I know everyone says prostate C is slow developer and loads of treatments etc but each individual case is different and I'm petrified it has spread already as he said he has a bit of pain in his upper right back (it may not be related but the mind works overtime) and his father died from it (aged 76 and didn't look after himself at all), one year after diagnosis. It's a head wrecker and difficult to make sense of any of it, like being in some kind of a time warp at the moment and I keep giving myself a good talking to, to stop panicking yet. But it's kind of impossible - is it? I hope you'll be ok.

Edited by member 05 Aug 2025 at 14:46  | Reason: updated

Hi

This is the thing-the urologist said nothing about Pirad score or gave us any information on the mri result, she only said the mri showed an abnormality on the prostate and she had the screen up and pointed to it, so we could only see a darker area on the lower left side of it. Then she went on to say that my husband needs a biopsy to determine what it is and if it's early cancer they'll monitor it and if it's worse the prostate would have to come out. She was very matter of fact with little empathy. I asked her about the psa reading of 2.8 and if a reading could show normal and still be cancer and she said yes. That left us wondering if the psa's are any good in the first place now. So we are here now with one word in our minds - CANCER. It's exhausting because the mind is working overtime. I understand these professionals are busy etc but this is someone's life being dealt with and we're just expected to digest the information at the meeting, pay the bill and walk out. I don't know how long after the biopsy will we get the results - it's private healthcare so I'm hoping a week. Seems like a lifetime. My husband works with a guy of 47 who is T3 and having his prostate out in October, he had no symptoms at all and it was only spotted because he presented to the hospital on another matter that they did his bloods and his psa was 3.5

No not in the Midlands - I suppose all we can do is wait and see what the biopsy shows and take it from there. But I do think personally the more information the better as we could get our heads around it more, at the moment we have nothing to go on other than "abnormality" and the wait is stressful to say the least. I hope everything works out ok for ye, and that ye can deal with whatever is ahead with courage and success.❤️It's helpful to get on a forum like this and get a bit of insight from people in the same situation.