Hi Guys.
Ive been suffering what i consider prolonged Chemo Mouth after having to stop my Docetaxel after my 7th infusion last year.
I was diagnosed January ‘18, PSA 25 locally advanced. Had Brachy and Radiotherapy early that year with Prostap HT.
May ‘24 after failure of the HT and Radiotherapy i started on Docetaxel chemo. After my 7th infusion in September i was so rough i needed a wheelchair to get around and wasn’t eating at all. So my Onco stopped the chemo and we just had a rest from treatment except the HT. Saw him again in February as my PSA had doubled to 34.
Still no action till April when my PSA went up to 40. I’d had another bone scan and it showed some extensive spread from my knees to my skull.
So May ‘25 started Radium 223 with the intention of targeting those bone Mets. I also changed my HT from Degarelix injections to Relugolix pills on the same day i had my first Radium.
The issue i have is basically since the chemo finished I’ve suffered with a bad taste in my mouth and my smell is affected as well. Also my appetite has reduced a lot and im not really eating anything at tea time. I can eat sweet things still but savoury especially makes my gag ..
My Onco has upped my steroids to 2mg / 4mg alternate days hoping that will help. Hasn’t done much as yet. But strangely back in May as we went to Center Parcs for a midweek break with the family they upped to 4mg every day and i was able to eat …! The day we came back he reduced them to 2mg.
So I'm just wondering if anyone has experienced this as well?
Thanks
Phil