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Does anyone regret having radiotherapy ?

User
Posted 14 Aug 2025 at 11:47

4 years ago I had hormone and radiotherapy and my PSA is now 0.07. I was given the choice of surgery at the time and found it a really hard choice but at 70 years of age I was worried about side effects like incontinence so chose the 20 sessions of radiotherapy.  I havent been too bad over the years but  recently started to experience fatigue again and when my gp requested a poo test the reading came back raised and yesterday I had a CT colonoscopy to check for possible colon cancer. I'm now nervously waiting for results.  I just remember reading that there was a small risk of this with radiotherapy something like 2 %. and so I agreed to the spacer gell being inserted to protect the rectum.  I now find myself regretting not having surgery but of course its too late.  Just wondering if anyone has had a similar experience .

User
Posted 14 Aug 2025 at 11:47

4 years ago I had hormone and radiotherapy and my PSA is now 0.07. I was given the choice of surgery at the time and found it a really hard choice but at 70 years of age I was worried about side effects like incontinence so chose the 20 sessions of radiotherapy.  I havent been too bad over the years but  recently started to experience fatigue again and when my gp requested a poo test the reading came back raised and yesterday I had a CT colonoscopy to check for possible colon cancer. I'm now nervously waiting for results.  I just remember reading that there was a small risk of this with radiotherapy something like 2 %. and so I agreed to the spacer gell being inserted to protect the rectum.  I now find myself regretting not having surgery but of course its too late.  Just wondering if anyone has had a similar experience .

User
Posted 13 Sep 2025 at 15:43

^ Tony51:"4 years ago my prostate testing and treatment was a lot quicker. Maybe a sign of the times with the pressure on the NHS."

Same here (Nottingham). May well be particularly so for prostate, an inevitable outcome of all the publicity about need for increased testing.

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User
Posted 18 Aug 2025 at 12:03
Hi Tony, I had radiotherapy in July which I was offered and chose over surgery, I only had 5 ( higher doses ) sessions over 10 days and a month later I’m still feeling the effects of fatigue and I was told they didn’t use the “spacer” option but the side effects will subside then just when you think you’re getting better they come back, I still get some bladder and bowels problems but I still would have chosen RT over surgery.
User
Posted 18 Aug 2025 at 14:53

Of course, the other side of the coin is that you might have opted for surgery and suffered considerably worse side effects, ED and incontinence for example.  Clearly, those whose side effects are minimal and where the procedure was successful are going to be relatively happy regardless of which type of treatment they had.  Those who have not done well are more likely to wish they had had an alternative.  I don't think you can gather much from one or a few responses; you need the assessment of many men to ascertain whether in general significantly more men reget their choice.  Even then the result could be skewed because RT is given in cases where surgery might not do the job so patients hope RT will do it. 

Barry
User
Posted 18 Aug 2025 at 16:34
Thanks for the replies. Much appreciated. Some good points made.
User
Posted 11 Sep 2025 at 21:01

Bit late but......I had ERT and hormone treatment in mid-2021, age 73. 4 years on and PSA has leapt to 2.9 on first of the planned annual checks. I do not however regret not having surgery,  although at my then age and with COPD Consultant didn't really give it as an option. The ERT process was easy and hormone side effects acceptable. 

Bought me 4 OK years at little inconvenience! 

Investigating, never mind treating (if possible), the obvious recurrence proving a long drawn out process but 4 years is 4 years.....

When I had a colonoscopy 2 years after the RT the signs of "over spray", pointed out to me by the radiographer,  were clear to see. Nothing else "remarkable".

I'm not sure how closely your diagnosis can be directly attributable to the RT. I have read of the possible link, but the odds are very small.

I think your regret is likely misplaced but in any case you are where you are, water, bridge, and all that.

I wish you the best of luck.

Dave.

User
Posted 12 Sep 2025 at 10:01
Thanks Dave, some good points made.

It is now 4 weeks since my ct colonoscopy and still no results . Hospital says there are delays due to holiday period. So still none the wiser at the moment.

User
Posted 12 Sep 2025 at 12:10

The timeframe for increased risk of bowel cancer after pelvic radiotherapy is 10 or 20 years. That doesn't rule out unrelated bowel cancer now, but much more likely is radiation proctitis - basically an area of the rectum in contact with the prostate which has healed after the radiotherapy and has fine fragile surface blood vessels which easily break. This is a common side effect of healing after radiotherapy. This is harmless providing the blood loss isn't making you anemic or causing any other quality of life issue. It usually shows as bright red blood smeared on toilet paper when you wipe, and possibly a red line on the side of a stool (poo). It can happen in the bladder too.

User
Posted 13 Sep 2025 at 11:49
Thanks for that Andy. All my blood tests were normal but my FIT poo test was positive though no blood seen on toilet paper. Just feeling very tired all the time so something not right. Doesnt help with long delays confirming results. 4 years ago my prostate testing and treatment was a lot quicker. Maybe a sign of the times with the pressure on the NHS.
User
Posted 13 Sep 2025 at 15:43

^ Tony51:"4 years ago my prostate testing and treatment was a lot quicker. Maybe a sign of the times with the pressure on the NHS."

Same here (Nottingham). May well be particularly so for prostate, an inevitable outcome of all the publicity about need for increased testing.

 
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