Treatments on offer

User

Posted 18 Aug 2025 at 15:18

I was diagnosed with PC on May 25. After my biopsy I was given a Gleason score of 3 +3 which meant the only treatment on offer from my Trust was Active Surveillance. I was not happy with the treatment on offer and asked to be referred to UCLH for possible acceptance for focal therapy ( Nano Knife ). I was offered the chance of treatment but had to go to London for a targeted Biopsy. The results came back with a Gleason 3+4, which meant the treatment on offer would be Cryotherapy, this is due to the position and size of the cancer. I asked if RARP could be offered, the answer was yes but I could only have this at my local Trust.

With this new info, I went back to my trust for further consideration due to the increased Gleason score. The Trust group met and decided to stick with the original treatment of AS. I am not happy with this news, what is the point of catching it early if they won't treat it.

For the time being I am considering the offer from UCLH. My hesitation is due to the complications with Salvage treatment on recurrence. Has anyone experienced cryotherapy? Any advice? Would be welcome

User

Posted 18 Aug 2025 at 17:02

Hi Thanos.

I'm sorry that you've had to join our Club, but welcome to the forum, mate.

View this video it describes all treatment options and possible side effects of each.

https://youtu.be/zYTU94-8pTc?si=1Z29_l8rbTwF6DHl

Good luck, mate. 👍

User

Posted 18 Aug 2025 at 19:20

Which country do you live in?

If it's England, then you have a right to be treated by any NHS hospital in England which is willing to accept you.

User

Posted 18 Aug 2025 at 20:53

I live in England and UCLH has told me radical therapy must be done by your Trust. In my case, my Trust does not offer any treatment but AS.

Thanks for the reply

User

Posted 19 Aug 2025 at 00:18

I note that your local Trust will not do a Prostatectomy and nor will UCLH in your case. However, it seems you are prepared to have it in London, so could try another of the main hospitals there. We have had several members speak well of Guys for example.

Cryotherapy is not often mentioned in the UK but is done more frequently in the USA. I knew somebody who had it and it was successful in treating his cancer but when I last met him in London about a year after the procedure, he was still struggling with ED.

Edited by member 19 Aug 2025 at 12:05 | Reason: Not specified

Barry

User

Posted 21 Aug 2025 at 14:00

I live in Lancashire - I was 3+4 with 16 positive samples and a psa of 40 - they said the cancer was contained within the prostate and my oncologist immediately started me on HT followed by RT after 3 months- he said that was the correct and only option for me - now 3 months after Rt , and 8 months on HT ( unpleasant but better that the alternative! ) my psa is down to 0.2 . That was through Blackpool Victoria hospital with treatment at Preston.

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