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Treatment options......

User
Posted 19 Aug 2025 at 16:45

Hi


I am new to this & really appreciate the discussion on treatment.


I recently had a Cancer score 3 + 4 which is moderately low in comparison. I am nearly 62 years of age.


I am having a follow up discussion on my options & I'm scared. I was informed about Radiotherapy (SABR) & having to wear a 'bag' for a short while. It seems like a good option but I've never felt so scared.


I am reading your experiences & looking for some comfort, if that's possible.


 


Kind regards


 

User
Posted 19 Aug 2025 at 18:08

Hi Nick,


I'm sorry that you've had to join our Club, but welcome to the forum, mate.


Here's an excellent video on all treatment options and their possible side effects.


https://youtu.be/zYTU94-8pTc?si=1Z29_l8rbTwF6DHl


Whatever you chose, you'll gets lots of help and support here.


Good luck.👍

User
Posted 19 Aug 2025 at 19:19

Hi Nick another Nick here , these’re a few of us on here recently unfortunately 


I was diagnosed out of the blue in March mate 56 years old and also 3+4 ,  it takes some taking in , I looked in depth at AS, SABR , focal therapy and full Surgery and eventually decided on the full surgery which is on Friday 


treatment options was the first question I asked and is most likely the most common question on here , don’t think there is any right or wrong answer as everyone is different , in my case I spoke to 3 different surgeons, 2 Oncolagists and a focal therapy consultant just to get as much info as I could , I also looked at the many threads on here especially in the localised cancer section which helped 


good luck mate 


Nick

User
Posted 20 Aug 2025 at 10:07

Thanks Nick.


Hope all goes well on Friday.👍

User
Posted 20 Aug 2025 at 10:14

Hi Adrian.


Thank you so much for the video link.


I wasn't made aware of LDR Brachytherapy, maybe not available to me as it shows treatment only at Bartholomew's Hospital. 


Take care 👍


 

User
Posted 12 Sep 2025 at 16:02

Nick, I am sorry I have come to this so late and maybe I am still in time to give you a contrary view. 
I have Gleason 3+4=7 too and the surgeon who did my biopsy advised removing my prostate or, second choice , radiotherapy. 
I refused. A friend had the same 3+4, the same surgeon, the same advice and refused too. He was 50 and went to another surgeon who suggested and strongly supported AS,  Active Surveillance, PSA twice a year and MRI once a year and this is now 7 years on with no change to his status and no treatment! Still continent, still erections etc!!


I have gone to the same second surgeon, top urologist and well known researcher etc who advised me to do the same thing, AS. 
I am 68 , so normal life for as long as possible and if signs of growing cancer emerge, then surgeon says we can zap one bit or more etc! He says I have a good chance of dying with this cancer rather than because of it. 
I hope this helps? R

User
Posted 12 Sep 2025 at 19:13

Hi R.


Thank you so much. Your reply has given me comfort. 


I have my meet about my options in a couple of weeks & am scared & anxious.


I will be filled with dread if I'm offered removal. Fingers crossed that A S is on the table without me having to choose it.


Thank you again so much.

User
Posted 12 Sep 2025 at 20:53

Of course you’re scared, as I was and Adrian with his video and the other boys really helped but don’t be bullied by any doctor. Our 3+4=7 is exactly what has been in the press about the new thing is not to operate but to do AS. Higher than that they are not sure but for ours many doctors now recommend AS. So if you are told have it removed or radio etc, tell them you want to think about it and get a second opinion. Privately you can see top people for a one off £300, expensive in one sense but cheap when we are talking about our lives. You can see someone else without upsetting the first person - if it’s private for example, you book yourself etc. No one knows. 
Nick, I’ve had a quadruple heart bypass, refused the first surgeon who wanted to do a very invasive operation and researched myself and chose a surgeon specialising in keyhole surgery; I am the first person to have a quadruple heart bypass through keyhole surgery - now I have f… cancer and macular degeneration!!-  because I found the surgeon suitable for me. 
Adrian’s video opened my eyes, thank you so much to him and made me determined to find someone who read my notes, looked at my biopsy results and said yes, we should do AS. If bad luck hits again, I might have to be zapped here or there he said but normally he says it might grow so slowly if at all ( as we get older the cells grow much more slowly) that I should die with it. This is the latest way of thinking by some surgeons for 3+4. 
For this sort of thing, as the other Nick above says, a second opinion is of paramount importance. If you live in or near London, lots of choices. If I can help please let me know, I owe this forum and happy to pass on my bit!

User
Posted 12 Sep 2025 at 20:55

I hope you are recovering well. R

User
Posted 13 Sep 2025 at 11:56

Thank you again.


I will push back if offered removal. AS will hopefully be offered!!!!!


As a possible option from Adrian's video, I did like the option for LDR Brachytherapy. I am aware that this is London based. 


Take care & big thanks


 


 

User
Posted 13 Sep 2025 at 12:05

Good luck! R

User
Posted 14 Sep 2025 at 17:08

Sorry to hear you are going though the same journey as it’s mind blowing initially.


It maybe prudent getting a second opinion from the top specialist > UCLH or London Bridge (Guys). Connecting with a high volume well respected robotic surgeon specialist is worth investigating maybe while you are relatively young and will potentially have prospects of good outcome while thought to be localised. 


Things to bear in mind is that Prostate cancer is usually a multifocal disease which  tends to appear in the anterior area of the prostate. Unfortunately this can mean  breaking out sooner than one would hope as was very much my case.


While scanning tech is coming on leaps and bounds it doesn’t always tell the whole picture plus biopsy can miss small amounts of potentially higher grade cells. Both factors were very much at play in my case and post RARP histology upgraded me to 3+4 T2C. (From 3+3) which was close to breaking out and becoming T3. In my case I’m so pleased I ignored the local team and MDT regarding AS and got a second opinion with a top London prof surgeon.


I’m now nearly 6yrs post op …fully continent, no significant ED issues and PSA undetectable thus far.


 


 


 


 

User
Posted 14 Sep 2025 at 18:17

Definitely worth getting a few different opinions , I would also (if you don’t already know ) be asking size of tumour and where it is positioned , what is the percentage of the pattern 4 


one thing I found that also seems to be overlooked is the quality of the scan , as I mention earlier in the thread I was also 3+4 and was told that active surveillance was an option for me but I was also being told that my MRI scan could have been clearer 


I paid for another MRI, this time a MPMRI with contrast on a more advanced scanner , the results from that showed tumour was larger than previously advised although it could have grown and was closer to the edge, my decision for surgery was made after that and I’m glad I did as after surgery pathology showed that tumour was in fact much larger than both scans had shown, was indeed very close to the edge , it also showed the true percentage of pattern 4 , I was originally told this was less than 10% where infact  it was nearer to 30% so the more aggressive buggers were 3 times higher than originally thought


im now over 3 weeks post op and all is going well , absolutely no regrets and it’s nice to wake up knowing it’s gone ( although still got PSA test in 5 weeks ) 


We are all different in regards to what our favoured treatment options are and it may be that AS is a good option for you but as above get as much information as you can before making a decision 


All the best


Nick


 


 

 
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